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how long have you been suffering with UC

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Ulcerative Colitis
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Posted 9/10/2014 7:08 PM (GMT 0)
Since 1964. 50 years. Stated in rectum and has progressed to left sided UC. Over the years have had remission's for 3-4 years and flares for the same. Currently have scopes every year.
Posted 9/10/2014 7:13 PM (GMT 0)
5 years diagnosed thus past July. Crappy disease...literally.
B
Posted 9/10/2014 8:37 PM (GMT 0)
Holy moly Enjoygolf, you might have the record on this site, I was in 10th grade when you got UC.
I feel humbled with my mere 34 years, UC 1980.
Old Mike

Post Edited (Old Mike) : 9/10/2014 6:16:38 PM (GMT-6)

Posted 9/11/2014 12:12 AM (GMT 0)
Old Mike,

I was in the 11 th Grade. Luckily I found a specialist in the SE that could diagnose and treat UC. Main treatment in the. 60's and 70's was sulfa drugs suppositories and pred.

Enjoygolf
Posted 9/11/2014 12:37 AM (GMT 0)
Crohn's colitis rather than UC, but whatever.

Was diagnosed 14 years ago in 2000, but it feels like I've had it for a million years to be honest.
Posted 9/11/2014 5:32 AM (GMT 0)
Wow half a century.. more years to come.
Posted 9/11/2014 11:18 AM (GMT 0)
UC should not be life threatening if controlled properly. I do not see myself as any different from anyone else. To be honest I would rather have UC than a heart or brain problem which could be fatal
Posted 9/11/2014 1:30 PM (GMT 0)
Diagnosed in 2005. I now get scopes every year since I'm approaching the ten year mark. After my initial diagnosis and pred cycle back in 2005 I went into remission for 4 years. However after that I've had a flare come and go since then.

Changed my life.
Posted 9/11/2014 11:11 PM (GMT 0)
Was diagnosed April 2014 at 18 years old. Wouldn't trade those 18 years for anything.
Posted 9/12/2014 1:10 AM (GMT 0)
symptoms started at age 38y.  diagnosis of UC age 60... age 62 now. And on entyvio
Posted 9/12/2014 1:13 AM (GMT 0)
Diagnosed 1 1/2 years ago but had other flares years prior to being diagnosed.
Posted 9/12/2014 1:29 AM (GMT 0)
My grandmother had IBD when I was just a little kid and I'm 54. She lived into her late 80s. And that was before most of the drug options they have now were invented. And the IBD is not what killed her. It was complications from a fall.

She flew to some Jewish hospital somewhere regularly, I remember that. She cooked great meals for us and then she ate softboiled eggs sometimes. But, she had parties, played canasta. Had a cabana on Miami Beach. Shopped a lot. Flew to Atlantic City or Las Vegas twice a year. Drove a huge white Cadillac that she needed a booster to see out the window. She lived a way more active life than I am managing right now.

She did have her colon removed, but I don't remember when. I was an adult.
I know she was very sick sometimes, but mostly she was your normal Jewish Gramma.
Posted 9/12/2014 1:45 AM (GMT 0)
DX on Sept. 12, 1980 -- so 34 yrs officially with UC tomorrow! (My case was later termed "post-infectious" by IBD gastro; had intestinal amebiasis ca. 1975 that was "treated" with the wrong drug by a dopey internist.) Suffered recurrent UC flares 'til my gastro put me on Colazal as part of NIH Phase II clinical trials in 2002. That was my major break-through toward achieving longterm remission, TG! / Old Hat (33 yrs with left-sided UC; presently in remission taking brandname Colazal)

Post Edited (Old Hat) : 9/11/2014 11:14:23 PM (GMT-6)

Posted 9/12/2014 3:02 AM (GMT 0)
A little over two years, but I had symptoms for about two years before the diagnosis.
Posted 9/12/2014 10:22 AM (GMT 0)
nice to hear that guys. i hope that i can also live as long as you guys.

also my boss is currently working up with HR so that i can work from home. what a great boss i have :)

Post Edited (Arbee_DC) : 9/12/2014 4:26:14 AM (GMT-6)

Posted 9/12/2014 8:06 PM (GMT 0)
Just over 4 years! Woohoo! :)
Posted 9/12/2014 11:16 PM (GMT 0)
Diagnosed only recently, Feb 2014.....but I must say I never thought for a second that it would shorten my life span...just that it would make life trickier to navigate.
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