Open main menu
☰
Health Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
View Forums A to Z »
Log In
Join Us
Close main menu
×
Home
Health Conditions
All Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
Support Forums
All Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
Log In
Join Us
Join Us
☰
Forum Home
|
Forum Rules
|
Moderators
|
Active Topics
|
Help
|
Log In
New member diagnosed with ulcerative colitis
Support Forums
>
Ulcerative Colitis
✚ New Topic
✚ Reply
❬ ❬ Previous Thread
|
Next Thread ❭ ❭
Doolittle32
New Member
Joined : Oct 2014
Posts : 1
Posted 10/22/2014 5:36 AM (GMT 0)
Hi all, I am new to the site but have been reading posts since having symtoms the beginning of August this year, following a horrendous flare up.
Symptoms were bloody diarrhoea, mucus, abdominal pain, a groaning to the left side of stomach, waking in the night to have BMs and constantly having an urgency to go (which is so embarassing when at work or in public) :-(
Had a colonscopy last week and doc says very probable UC but awaiting biopsies. My whole colon is inflamed, angry and red and I have now been prescribed pentasa....I take 4 x 2g tablets (2 on a morning and 2 evening) and by aren't they HUGE?! I actually have to dissolve them on a tablespoon of water first and drink them down.
I have been on these since Saturday and already my symptoms are settling but I still wake at 5am every morning for a BM and then several times after that up to around 8am when I leave the house for work. Very annoying and feeling so tired !
However the bleeding has subsided a lot and pain has lessened so all good. I'm also a lot better during the day and evening.
I find this support incredibly helpful an have found comfort in reading your posts to know I'm not the only one suffering.
I'm female 32 years and feel relived to have a diagnosis (well kinda a diagnosis!) now so I can treat it. Will I be on these meds forever? Have a follow up apt in 3 weeks time x
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 10/22/2014 7:52 AM (GMT 0)
There is no cure for uc so yes, you will be on the meds forever. It is a huge mistake to get better and quit meds because you will flare again and the meds that worked before might not work again, causing you to have to use worse meds. You shouldn't dissolve the meds first. They are designed to release at a certain point.
malaika
Veteran Member
Joined : Feb 2014
Posts : 524
Posted 10/22/2014 9:52 AM (GMT 0)
Sorry that you've joined our UC club! But it sounds like the pentasa is doing the trick for you which is great.
Please don't soak your meds first, that will dissolve the enteric coating, and the medicine won't release where it's supposed to. I know, they're absolutely massive... try putting some food in your mouth first, that works for me. You'll get used to them soon.
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 10/22/2014 11:31 AM (GMT 0)
hey poolittle -
just so you know the truth - not everyone is on meds forever -
hang in there
hungry4food
New Member
Joined : May 2014
Posts : 3
Posted 10/22/2014 6:24 PM (GMT 0)
Doolittle32,
I'm 33 and was diagnosed with UC/colitis at age 22. It's definitely been a learning experience. I'd like to share some things I didn't know that I would have liked to have known early on.
What we let enter our mouth and what we do can greatly affect our gut and thereby our immune system. Everyone's experience with diet, medications and lifestyle adjustments will vary but don't get discouraged. Nomorecrohns.com was an eye
opener for me. It suggests a really good book about
how certain foods are processed by the gut.
Remember that knowledge is power. I've researched natural ways to control my ulcerative colitis and it's worked so much better than prescript
ion medication for me. I use boswellia extract (from the Indian frankincense tree), turmeric extract (with black pepper extract to increase absorption), buffer vitamin C (with rosehips fruit to increase absorption), and vitamin B-12(also called methylcobalamin).
Also, I frequent a pharmacy that has staff knowledgeable in natural wellness products.
I hope your experience proves to be less eventful than mine. Take care
CTHLJ
New Member
Joined : Oct 2014
Posts : 1
Posted 10/22/2014 9:13 PM (GMT 0)
I'm new to this forum. My 19 year old son was diag with UC Nov 2013, right after he went away to college. he of course was put on prednisone right away tapered and lialdi 4.8 GM calcium and vitamin d. Almost immediately improved symptoms. School started again this yr. and so did his flare... Doctor now has put him on uceris 9mg as well. He has been taking that for 4 weeks, with no improvement. I've been trying to find out all info that I can, to try new things diets, oral probiotics, enemas etc. wanting to try all things, before they suggest him going on the next stronger medication. Of course without jeopardizing his health in anyway. Besides diarrhea. And frequency to the restroom he never complains about
pain and he has continued to drive an hour to work, then go full time to college at iupuc and farms regularly leaving at 5:30 am and not getting back home till 8:30 most nights. Stress, exhaustion, and lack of sleep can't be good.....But try telling that to a 19 year old independent boy. Any advise would be great and much appreciated.
Just a worried mom seeking out information, hate this for my son :(
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 10/23/2014 2:54 AM (GMT 0)
Cthlj try creating a new thread for advice on your subject :) I would suggest trying prednisone again and upping the Lialda to hopefully get back in remission. And be sure he stays on his maintenance dose of lialda 2.4mg or two pills a day) between flares - and no missing doses!
And to the original poster - once you find something that works STICK TO IT. here may be a time down the road that you can play with suppliments and herbals and find some relief... but for now I would suggest sticking with what works.
hungry4food
New Member
Joined : May 2014
Posts : 3
Posted 10/23/2014 2:55 AM (GMT 0)
CTHLJ,
My first symptoms started after three years at the University of Texas. My mom totally wanted to just fix it and make everything better. I'm sorry you're having to worry about
him. Looking to a support network is definitely the way to go.
I'm not sure how to talk to a 19yr old man but...perhaps reminding your son of the side affects of these meds might help. Also, encourage him to do his own research so he can anticipate when a flare might occur.
It took about
10yrs and I've developed oste
openia from having so many flare ups treated by prednisone. One important thing for me was learning to breathe. I didn't feel the stress mentally but something was definitely going on when it was time for midterms. Relaxation techniques are important.
Refer to my previous post in this thread (directed at Doolittle32)
Knowledge is half the battle. Take care.
✚ New Topic
✚ Reply