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Ulcerative Colitis
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Posted 11/13/2014 8:45 PM (GMT 0)
I have UC and it had taken them over a year and a half to diagnose it...I notice that when my symptoms get flared up, my ears also get red hot and itchy..I think its inflammation..My doctors are driving me crazy because they dont think its related..my GI actually made me mad yesterday because he didnt listen at all. Please if anyone has any insight I would greatly appreciate it..I spend most of my time in the anxiety forum because I have anxiety issues. They have gotten worse of course dealing with my stomach issues...

Thank You...

Posted 11/13/2014 9:36 PM (GMT 0)
Did you ask an ear, nose, & throat (ENT) doctor about those symptoms? It could be an allergy to meds or something else that is not a major threat to you. In my experience it's not unusual for GI doctors to decline comment on other parts of the body, kind of like "I have my territory, and other docs have theirs" as an attitude. Frustrating for patients, alas. / Old Hat (34 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 11/13/2014 9:50 PM (GMT 0)
What meds are you on? In defense of the GI, he's not an ear doctor.
Posted 11/13/2014 10:18 PM (GMT 0)
I agree, he's not an ear doctor - he's a rear doctor - and an idiot -

inny ear or outy ear itch paddi c ?
Posted 11/13/2014 10:25 PM (GMT 0)
i'm not a doctor but i can tell u with 100% certainty that your symptoms of hot and itchy ears have nothing to do with inflammation, it's an obvious nervous symtom and absolutely nothing to worry about. Many people on the Polish uc forum have similar sensations and doctors also ignore it completely. Fortunately these symptoms compared to others are not such a great nuissance. The power of the mind to spin horrible scenarios is really unlimited, many people who suffer from gastrological problems sometimes develop the so called "globus hystericus" (http://www.medicinenet.com/script/main/art.asp?articlekey=9023) and i imagine it must be unbearable. You should calm down because uc can come and go into remission or even into submission (plagiarized from Soy :)
Posted 11/14/2014 2:05 AM (GMT 0)
There's a chance it could be an allergic reaction. Do you increase your meds or do anything different during flares?

When I had an allergic reaction during a Remicade infusion, the first thing that happened was my ears and head got really, really hot. They pulled the IV right away so no time to get itchy.

Also, I found out I was allergic to non-UC medication when my feet became itchy and hot. My doctor said it was an allergic reaction.
Posted 11/14/2014 5:01 AM (GMT 0)
Thank you all very much. Of course my anxiety doesn't help with it. I am on Xanax and hyoscyamine and was on uceris. He thinks I'm in remission and it's only microscopic so he doesn't want me on anything else right now. I've tried thinking of any thing I'm doing differently and I'm not. I totally watch what I eat etc due to when my stomach issues started over a year and a half ago. For 3 months I had diarrhea up to 20 x a day.. Lost over 20 lbs.. Saw a neurologist, cardiologist and the GI doc. Everyone said I was fine. Went to the E.R. 5 times with the most pain I'd ever had and I passed out once from it. The GI doc did an endo and colonoscopy and said nothing was wrong but a few polyps.. Had a little time where I felt good and then it came on once again with a vengeance. He did another endo and colonoscopy and said I have microscopic colitis. I just asked him if he thought my stomach issues could cause that since he has seen a lot of stomach issues. I'm trying to see an ENT right now also.. Waiting for insurance to approve it. I appreciate all the advice because I am at a loss here and the itching on the outer ear and lobes is driving me crazy..
Posted 11/14/2014 5:11 AM (GMT 0)
I have to disagree ewa inflammation signs are red hot and swelling. So that is why I assume inflammation could be the cause.
Posted 11/14/2014 6:54 AM (GMT 0)
Hello Paddi, what you're experiencing are part of UC complications. You can actually take down these things and ask for your doctor's advise regarding your condition.
Posted 11/14/2014 6:14 PM (GMT 0)
Red itchy ears? I seen this happen to a friend (doesn't have IBD) when he ate some cookies that he'd never had before, it was clearly and allergic response to those cookies. It was the weirdest thing I ever saw cuz it happened instantly after he ate one cookie.
Posted 11/14/2014 6:51 PM (GMT 0)
Paddi, i of course may be wrong but i think that colon inflammation would not manifest itself in such a strange way. if you had ear inflammation, there would always be some discharge from an ear and some pain. When you mentioned your anxiety, i thought about myself because i suffer from an incredible health anxiety disorder which drives me crazy. When something goes wrong i always develop thousands other symptoms and get panic attacks until some nice doctor puts my mind at ease. So my telling you that you should calm down is a total cliche because i myself can never calm down and i go from one doctor to the next until i finally believe someone and then my symptoms disappear :) Anyway, i think that you have no reasons to be worried, i'm sure that there would be at least one doctor who would notice something suspicious.
Posted 11/15/2014 2:07 AM (GMT 0)
Ewa,

Thank You, I do agree that my anxiety is a big part of things. I do know many of the things I go through are due to my anxiety. I dont have pain on the ears or drainage..I do get sinus infections alot and sometimes it drains into my ear. I know the difference in the pain and irritation. The red/hot/itchy I get is outside the ear and on the lobe and slightly above the lobe. Its not from earrings, because I dont wear them. I try to remember if its something I ate but can never put a finger on it. I usually eat just about the same things anymore due to my stomach anyway. I have tried benadryl and it seems like it is not doing any good, and either is the cream my primary doctor gave me. I know that long time UC can lead to inflammation so I dont know if it can go to other areas. I dont know alot on UC and I try not to google everything because it leads to extra anxiety for me. I tried talking to my GI about it and to me he just didnt want to talk about it. I have been working with my regular doctor as well.

I really want to thank all of you for your advice. It helps so much because I have anxiety enough and now I have to worry about yet another symptom. My regular doctor thinks its allergies too. But for the life of me I cannot figure out what it could be.

Also my ears will get red and hot with my anxiety but not itchy with a little bit of bumps like rash.

 

Posted 11/15/2014 5:28 PM (GMT 0)
Maybe getting allergy testing done will be helpful? Something to consider especially if you're having those kinds of symptoms (itchy red ears) I think it would be a good idea to get testing done so that you can eliminate whatever is bothering your system.
Posted 11/15/2014 5:53 PM (GMT 0)
I think it is allergy based too...Why not keep a food diary for a month? See what happens, its actually quite amazing to see what you do eat throughout the day, and easily forget about.

Or it could be something else, like a skin disorder, I would see a dermatologist just to rule that out.
Posted 11/15/2014 8:06 PM (GMT 0)
Have you seen a skin specialist?

q
Posted 11/16/2014 5:29 AM (GMT 0)
No I haven't seen a dermatologist yet but that will be next.. I thought back to this past week and the only thing I can think of is tomatoes. I usually avoid them because they don't like my stomach.. I ate them twice this past week in something. I think my stomach acting acting up and then my ears too made me extra worried that it was my UC or something bad.. Going to keep track and see my doc tues and maybe get a referral to a dermatologist.. Thank you everyone for your help.. It means a lot and talking about it always helps..
Posted 11/16/2014 8:22 PM (GMT 0)
I had a similar situation, my PCP, ENT, and dermatologist all said dry skin use baby oil on it, but when I started Humira it went away.
Posted 11/19/2014 4:49 AM (GMT 0)
I'm seeing the dermatologist Thursday and of course now im full of anxiety and scared!!!
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