Posted 11/13/2014 5:53 PM (GMT 0)
The weeks have gone by fast. Feeling almost normal at times. More good days than bad. Still have some days that I have a lot of gas sending me to the bathroom with spots to pink mucus but not like before.
BM now 3 on average vs the previous 15-20. Urgency better but not gone. Tens. sometimes. No excessive bleeding... just pink liquid on tissue. No liquid stools except when I forgot my good sense and ate ice cream, that took 3 days to recover from. No more cramping....occassional burning on my left side but not every day as before. Usually find this if I eat something I should not have. Lower legs no longer hurt. Accident from several a day to maybe 1-2 per week. Still have gas from 10p-1a... but also not as often or as bad. Still on prednisone 15mg daily until next md visit in Dec and the taper.
Bad effect: sinus problems more... have been on antibiotics once for ear and once for sinus since starting Entyvio. I have always had sinus problems but a little more since starting entvyio. It is tolerable. Infusion is tolerated well. no headaches or other problems found.
My old nursing instructor came by to visit and asked how I was doing and stated at least you have color back in your face and look a lot better. The people I have worked with for over 22 years say that I am actually starting to look and act like I did before I got sick. Hope this helps someone.