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going to Disney World in 10 days with a flare

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Posted 11/22/2014 4:46 PM (GMT 0)
have to fly and be at the parks for 7 days with my family...any tips for cooling down the flare or advice of while i am at the park?
Posted 11/22/2014 5:25 PM (GMT 0)
I have been to Disney but never in a flare. Don't don't if you've been there or not but the good news is there's a bathroom every few feet. Well, not litterally but they are everywhere. If your flare isn't too bad Imodium could be your best friend. Good luck and try to have fun!
Posted 11/22/2014 6:30 PM (GMT 0)
Imodium and bring an emergency kit with you. That's a Ziplock bag with a change of underware, extra tp, wipes.
Posted 11/22/2014 6:39 PM (GMT 0)
Sounds fun, but like any trip during a flare, the best part is going back home. Try to remain calm, have a map with the bathrooms marked, have a plan when it comes to unforeseen urgency, and bring along a change of clothes for the sake of hygiene and mental calmness. You can take something like Immodium to slow things down, but don't get overexcited or overdo it. Keep your diet as clean as possible when you're there, and stay hydrated. Whatever happens from there on is alright, don't let the fear of an accident stop you from having fun.
Posted 11/22/2014 7:24 PM (GMT 0)
Brother (or sister),

This will be an unconventional response, but I speak from an experience I had on a trip 10 years ago. Going on a trip while flaring can be a personal hell. I did it against my best wishes and was not able to have any semblance of fun. It held my family back because they too were constantly worrying about me finding a bathroom.

If I were in your shoes, I wouldn't make the trip and would just focus on healing the flare first.

If you do go, I wish you nothing but the best experience. I don't envy you because it's a tough thing to deal with.

Best.
Posted 11/22/2014 7:28 PM (GMT 0)
pred, depends, & as always, immodiyumm !
Posted 11/22/2014 8:01 PM (GMT 0)
If you have an android or iphone you can get the "my disney experience" app...guess what it has? A map of bathrooms for every park!
Posted 11/22/2014 10:17 PM (GMT 0)
If your urgency is great at times, I'd recommend taking some Depends or the equivalent with you. You will enjoy your experience much more if you don't have to worry constantly about an embarrassing accident.
Posted 11/22/2014 11:22 PM (GMT 0)
Your recent posts indicate you haven't been able to get this flare under control yet and so I think if your not super prepared you could find this trip very very difficult. As mentioned, I think I would wear a Depends every day for ease of mind, and take the Imodium regularly.

Does your family know how tough things are for you at the moment?
Posted 11/23/2014 2:28 AM (GMT 0)
Oh gosh, I get anxiety just thinking about this. I don't know which is worse, the flight or the days at the park. How about starting uceris or pred now to get things in control? In my case, I wouldn't go otherwise. Too unpredictable and I am too worried about a crap in the pants. If you must go I suggest what others said, start testing with Imodium now and see how it works for you. Bring a bag and a change of clothes everywhere. Wear depends or a long pad incase there is an accident. Keep in mind a pad is really only good for protection in the event of a shart but it's saved my butt...

On the positive side, there are probably toilets everywhere. Negative, they may be crowded.
Posted 11/23/2014 3:27 AM (GMT 0)
Are you renting a car to avoid having to wait for the buses or monorail? Agree wear pads/diapers bring a change of clothes. Don't try to overdo it.
Posted 11/23/2014 5:51 AM (GMT 0)
I hate to sound flippant but a flare is less painful than Orlando.

Good luck!
Posted 11/25/2014 12:01 AM (GMT 0)
The thought of having to travel while flaring- gives me nightmares. I would reschedule my trip if at all possible.

On the upside Disney has a lot of bathrooms spread out all over.

Maybe you could also stop by a grocery store and pick foods to eat that are more friendly to your body?

I also suggest an emergency kit. I also might consider letting the flight attendants know about my bathroom needs/urgency.

And if the worst happens, at least you'll mostly be surrounded by strangers you won't see again.

If possible I'd reschedule.
Posted 11/25/2014 10:56 AM (GMT 0)
Oh sweety.. surely your family would understand if you cancelled. I have missed a family trip and did not miss it one bit. You will have plenty more in your beautiful life.
Posted 11/25/2014 11:59 AM (GMT 0)
I was at the parks with a major flare. Thankfully there are restrooms at every corner. However, it is still stressful. I would use depends and pack an emergency kit as others have stated.

Also how about upping your meds to get your flare under control?

I hope it all goes well.
Posted 11/25/2014 1:23 PM (GMT 0)
We went to Disney 2 years ago and I was in a major flare. I was also on MTX and had to bring all the needles, disposal box etc.

The good thing about Disney are there are tons of bathrooms. And they are clean.

I had imodium and kept a change of clothes in our backpack (but never needed them).

We stayed in a hotel w/ quick access to all the parks so I was never too long w/out a bathroom close by.
Posted 11/25/2014 8:49 PM (GMT 0)
On top of being tons of bathrooms available, they are immaculate.
Posted 11/25/2014 9:27 PM (GMT 0)
If you go, maybe consider not going on the rides. That would be a nightmare to be stuck on ride and the urge hit you. There's plenty of fun, neat stuff to do there without rides. And, like other people have said, there are tons of (very clean) bathrooms around. I didn't even have UC the last time I was there and I still remember how clean the bathrooms are. Now it's second nature to remember things like that.
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