My Remission Story (eek!)

Thats great news! Congrats! How much do you take and how long did it take? Are you still on meds?

sorry HCD, but you can't use "that" word around here without causing widespread panty wadding !

in the future, please refrain from using that kind of positive rubbish -

and I have no idea what autonomy is, but if it can be put on the grill and tastes good, i'll order some up

You rock!

Your blog is awesome, thanks for sharing your experiences.

I hope your remission lasts for a very long time and your life reaches new heights.

You're funny, Soystud. :)

iPoop and DMC, I take 2ml of Cordychi extract per day. Additionally, I pop a couple of pills of the Raw Gluten-free support twice a day. Occasionally I take Berberine (Candibactin) when I remember to do so, mostly because it's around.

I continue to take Humira weekly, but before my healing breakthrough I was flaring every 4-5 days despite it. I can hardly say it was helping me.

It should be noted that I was someone who could make it down to 5mg of prednisone, so taking Cordychi is the perfect substitute.

I also have a minimal amount of dysbiosis. I've tried all sorts of diets to snuff it out, but I had to come to peace with understanding that the "bad bugs" will always be there. My new approach is to crowd them out with probiotics and I think that's working.

Stress management is also key for me. Everything else can be in place, but if I'm stressed all may be lost.

Post Edited (HouseCallDaily) : 12/29/2014 6:24:45 PM (GMT-7)

Bananagirl, what ingredient was it? Thanks for letting me know.

i think it was rhubarb extract?? i can't remember for sure so don't quote me on that! i threw my bottle away after i found that out. i was seeing a naturopath at the time and i swear he was trying to kill me with his anti candida protocol to rid me of c diff.

This is interesting, has anyone else had any luck with it?

"I was informed that while mushrooms like reishi can enhance the immune system, they contain "steroidal components" called lanostanic triterpenoids, which actually suppress inflammation. I haven't been able to confirm this yet, but I was even told a given amount of reishi/cordyceps extract would be equivalent to 5mg of prednisone in terms of its anti-inflammatory power."
- http://diagnosey.blogspot.com/2014/12/remission.html


ozonehole - seemed to also have luck Reishi
https://www.healingwell.com/community/default.aspx?f=17&m=1385214

Thanks for sharing.

I think if all lifestyle factors are controlled for, stress is the tipping point for a lot of flares. I do believe you have the knowledge and are capable of keeping your disease as bay because you are well versed in holistic modalities.

I proselytize things like meditation, yoga, stress reduction and proper sleep because I strongly believe they are prophylactic for not just preventing UC flares but also other diseases and conditions.

From my understanding of candida and so-called "bad" bacteria, we will always have some percentage of them in our colon. It's only when the "good" ones aren't able to keep the "bad" ones in check that our immune system goes haywire. This is the rationale behind why anti-candida protocols do not work.

Hoping your health stays this way forever. :)

Point taken, soystud.

I meant to imply that people are led to the popular notion that once candida is dealt with, it will never come back, but it almost always "comes back", making some of the heavy duty protocols kind of in vain.

I have no doubt that capryl (which is also present in raw goat milk btw) helped you out. Sugar will always feed the bad critters, so eliminating that should be part of some universal health protocol (and for diabetics).

Best.

Post Edited (Guardian7) : 12/30/2014 9:11:38 AM (GMT-7)

Thanks, Tunnel!

I've found that writing everything out helps me to wrap my mind around this very complex disease. As a physician and patient, I can't help but stay up way later than I should and try to unravel the mystery. I feel like I'm getting closer. At the very least, I'm looking at this through many, many angles and seeing what fits (and what doesn't). Coming on to this forum and seeing what's helpful for others provides a lot of clues.

My goal is to make a more efficient program than what's currently being used: The 4-5Rs (Remove, replace, re-inoculate, repair, etc.) There needs to be something more specific to UC, says me, especially since the burden of testing and trialing takes its toll financially and emotionally (I know all about that). Ideally, if someone's newly diagnosed with UC, they'd know what standard tests to get and then base the rest of their treatments on those results PLUS their own UC "subset." - For example, someone with mild dysbiosis, L-sided (not pan) colitis, and histamine intolerance would think to try DAO before immunologics. Someone with fluctuating disease affected by diet & stress would try an elimination diet and GSE. (These are just hypotheticals.) As soon as I can come up with clear categories and what these patient subsets respond to, I think a lot of suffering can be alleviated. I'm dedicated to this.

That's very sweet of you to say, DMC.

I'm already a practicing physician in Physical Medicine & Rehab (PM&R). Each day at work I see people with various forms of autoimmune disease and almost all of them admit to bowel issues. I see such a clear connection.

I only work 2-3 days out of the week due to the limits of my disease. I'm starting to think that maybe I could accomplish more good by helping others online.

Lately I've been posting furiously to explain how I see the disease process working and, having had my own success recently, I'm super charged up about making this useful to others.

We'll see where this goes!

well, it's not a defeat because something really worked and even if u get back to humira for a time, it's nothing bad because your colon will heal and your next experiment with something else will turn out successful and you'll be healthy off the meds forever :)