I cured / got rid of my ulcerative colitis

There was that clay person who claimed to be CURED by this magical clay. I wonder how many customers he/she brought for that company.

It's cruel but very easy to be a shrill for a company and claim product XYZ helped them CURE their UC, like all that crap from "lookforcure" on the Terramin clay:

"After 5 years of ulcerative colitis suffering finally feel much better!" - https://www.healingwell.com/community/default.aspx?f=38&m=2392791

"Hello everybody,today is the 36th day of me taking Terramin and Pascalite clay.
I feel great! No pain, no gas, no cramps, no blood. I have more energy, I can leave the house and do whatever I want, without any pain or fear that my intestines will go into spasms any minute. My diet is much less strict. I do not take any drugs or other supplements, not even the probiotics. I have got my life back!
Clay is very easy to take, just 1 teaspoon of the clay powder in a glass of water, 3 times per day. It is safe, simple and there is no side effect. Even if you do not get the results I have with colitis, you still will get the minerals from the clay, boost your immune system and increase your energy level.
If anybody is interested, here is the link to my original post:
" - https://www.healingwell.com/community/default.aspx?f=38&m=2402620

I bet that lookforcure user generated quite a lot of revenue for the clay companies there, tens of thousands of dollars? hundreds of thousands of dollars? All from the pockets of sick, desperate UC patients willing to try anything to make them feel better.

I personally fell for it, bought some, and it did jack crap.

I think that's why some people are upset when they see a cure thread.

I think we all have a right to feel what we feel and express what we feel based upon our experiences with this disease. And if that random person wants to come on here and share how they tried a "diet" or some other alternative treatment that is all well and good. However, if some of us who have had differing experiences with this disease don't want to buy into it, that is all well and good too. I tend to not pay much attention personally to those posters who come on here just to talk about a cure never to be heard from again. It may not be their intent, but it comes off pretty presumptuous to me. I agree with NCOT about having this disease for an extended period of time before shouting out about a cure. I'm not tricked into believing for one moment that my remission is a cure. That comes with experience unfortunately.

And Soy, let me play devil's advocate with you. You want to know why those of us get annoyed with posters talking about a cure. But why, then do you get annoyed with us for getting annoyed?

hmmm, I think you got me rg


nah,i haven't gotten annoyed in ....... let's see ,,,,,,,,,,,,, forever !

I just find it interesting - it's like someone is attacking their mother or poodle - everyone here (with the exception of a few) are adults with I'm assuming at least part of a brain, so why all the panties in a bunch cuz someone claims they have a cure - everyone knows there aint no cure !

the folks that wanna get all ruffled, that's their right - but why all the bashing ?

I'm tickled pink every time someone comes on here and says they're cured/in remission. Even during the worst of my flares it's still gratifying. I wouldn't be where I'm at if it wasn't for people posting progress.

I wonder if I'd get a bigger audience if I put "cure" in the title when I post my story......


Good to hear it Jardine.

Judy2 said...
Diet has absolutely no effect on my UC. I always just skipped the diet threads because they don't apply to me. I tolerated people who had the condition for six months sagely telling me that if I'd just do what they did I'd be well.

It's no longer possible to avoid those threads because this has become an alternative medicine forum, so I just don't come here much. I hope you find a place to get support.

It has everything to do with my status. I cannot tolerate anything based on flax, going to throw out the flax milk whatever product because even that made a difference. However wheat/sugar no impact. Dairy and Flax a big yes to the point of going straight down a flare path until halted.

Hi Kim,
I have UC and eczema that has so far flared horribly whenever I eat dairy, too much fruits and wheat.
I had a high gluten-sugar-egg diet for years preceding my UC diagnosis.
I try to follow a Paleo ish diet with legumes(properly prepared) and rice two-three times a week. This is due to me avoiding pork(histamine reactions) and avoiding red meat(too hard to digest), so pretty much leaves me with poultry.

Also, my eczema is limited to my nose. Even when I am not flaring, I have dry flaky skin..
I wanted to ask you if you have managed to reintroduce grains such as rice.
I am originally Indian and my family is vegetarian. Cooking non-veg is not an option at home. While I am away for my studies, I can make non-veg dishes. But back home it is a problem! My parents unknowingly are putting up obstacles, but I can't really blame them for it.

I remember twiggs posting something years ago about how garlic helped his symptoms. I went out and found Kyolic garlic capsules with Candida cleanse. I still use them to this day even though he went back into a flare after talking about them. I really think they help me. I think it's great that we have these forums to share what works for us. I've shared some things in the past that I would never recommend now (vegetarian, high doses of vitamin A to name a couple). I just got excited about improvement and wanted to help other people. I think we should be supportive of each other as we all try to navigate this crazy disease. I will never go back to eating grains or sugar. Cauliflower rice and zoodles work for me. :)

It has to do with what your allergic to and what your insides don't like. That doesn't mean it HAS to Celiac Disease. I hate when people automatically say that on here. I don't have celiac. I absolutely have proctitis, but cutting out wheat and gluten products helped me a lot right away! I felt better, more energy. I ended up taking it further and went more SCD…bone broth, the works. But gluten was adding to my issues no doubt. I felt better all around right after cutting it out. That doesn't mean I don't miss it…this is the Western world and we eat a tons of processed wheat. In general, the food we eat is causing all these problems. Sorry but anything man made isn't good for you and your body doesn't know how to process. Eventually it can't take it anymore and it turns on you.

Also perhaps SCD doesn't work for everyone but I've read that a lot of people had to tweak it for them. SCD allows some cheeses, but not everyone can tolerate it. Same goes for all dairy. It's trial and error. I refuse to be on meds all my life. I will end up with more issues, cancer, you name it. People need to realize doctors these days aren't here to help us. They want us to keep coming back to them FOREVER. It's a money maker..the biggest one. Back in the day doctors actually wanted to help heal people. Not anymore. They want to keep up sick. Otherwise they don't get paid and the pharmaceutical companies don't get paid. Oh well.

29 year old female. Diagnosed 2014. No Meds: Borage Oil, Butryn, High Dose Probiotic, Digestive Enzymes, Gluten Free, Grain Free, Sugar Free, SCD, Paleo. I'm not totally out of the woods but I feel better everyday. My doctor told me it's not a sprint, it's a marathon. I have faith!

I agree with you garylouisville about there not being a conspiracy. Let's face hospital and general practice doctors are busy enough without generating more patients unnecessarily. Also where I come from (U.K.) the National Health is already stretched to breaking point so health professional would never pull stunts like this.

However living in China as I do now (and have done since 2003) it's a different story. Here healthcare (oxymoron) is horribly expensive, dirty,very corrupt, and big business.
For instance a simple and relatively cheap drug like mesalazine would cost me about 18 pounds sterling for one months supply in the U.K., here it would cost me 1200 yuan which is approx. 120 pounds sterling!

'Say no more!'

Regards

Sorry, but I have to admit I haven't read all the posts in this thread. I got about halfway down page 2 before stopping. Sorry everyone, it's just that it's nearly 4am here and I'm only staying up so I can take my Proctofoam.

Anyway I just wanted to say thanks, and I found your post helpful Jardine. Mostly because I had no idea that there was such thing as an allergy clinic.

Like many people I think UC has many causes, not just diet, but I cannot tolerate fibre, and have often wondered if there are other things in my diet which may cause flare-ups. I have asked the doctors in the past if I might have any food intolerances, they just said "Oh you'd know if you had one".

But now I'm thinking it might be worth it to have some tests done, even just as a one-off.

Thank you for the post Jardine! I myself utilize this website to gather ANY information I can and find it to be all very helpful.

rpk- Yes. After a few months of a phase one diet excluding all grains, I started eating rice, and actually wheat at the time. I am now GF as I figured out that I am sensitive to wheat. Feel so much better without it.

Another consideration... Interestingly, since changing my diet and going GF, I been diagnosed with 2 MTHFR mutations, and learned that may (or does) have a factor in auto-immune diseases, as well as UC.

http://symptomsofulcerativecolitissupport.com/causes-of-ulcerative-colitis/genetics-and-ulcerative-colitis/mthfr-gene-mutation/