It's been awhile but Remicade has kept me away

Hello again, it's been awhile since I have posted, but I have to blame the Remicade for keeping me away. I do check in once in awhile to see how everyone is doing, but feel bad for not posting. It took awhile, ( a little over a year), but I think the remi has really helped me get to an almost normal life. Unfortunately, I do still worry every time I go out about where the bathrooms are, and still bring along a change of clothes just in case. I have been lucky that I haven't needed them recently, but that worry is still in the back of my mind. As long as I do my morning routine of spending plenty of time in the bathroom before I head out, I'm usually good until the next morning. Now without that routine, I really don't think I would trust myself. I still feel like the urgency is still there, but as long as it only shows up in the AM, I really can't complain. For anyone that is on Remicade, would you say you are doing about the same. Do you have to follow a certain routine to feel comfortable with going out? We have talked about it many times before, but it's tough to get over all of the worrying about what could happen. Maybe that will never go away. Anyway, sorry I haven't posted in awhile, I will try and do better.

I agree about the breakfast problem. I usually don't go out to breakfast because it's safer to eat at home in the morning. I usually have one or two bm's in the morning, breakfast and coffee and I'm good to go until the next morning as well. Ipoop, I'm glad that you are also doing well. You, as well as many others on here provided me with the information that gave me the courage to get on Remicade. I'm so glad that I did.

I also have a morning routine for poop. I still sometimes have urgency as well and may have any where from 2-5 poops/day.

i prefer to poop in the morning before i go anywhere but it doesnt always happen. i can't force it out! if i end up leaving the house before i can poop, then i will just go late that night or the next morning. it's like my body will not let me poop outside of the house.

i have been doing well on remi too but sadly remi itself is not enough. i have to take azathioprine with it. i have been in remission for 1 year now :) when i wake up in the mornning i try to do one BM before i leave. somedays i even skip a day. i make sure to eat only when i get to work.

i dont have any urgency anymore so im not worried about it. i always keep a change of clothes in my bag. i guess the fear is always there. its hard not to think about it. i have even started to eating a bit of salad. lol i never thought i would ever get to eat that again.