I need 6mp success stories!

Ok old timers of the forum, tell me all the stories of the people who came on here and took 6mp only to go into remission for the rest of their lives without any drama!

Ok well at least tell me it's not as bad as it sounds!


;-(

Thank you T! That is just what I need to hear. I am going to put it off for a bit, just one more try to get to remission first!!!! But it's next and prob in a month or so!

Keep in mind that it will take anywhere up to 3 months to really kick in if you start it, so if you're having issues you'll want to consider something to help bridge that gap!

I am not fairly old around here but.. (sorry for the long read)

I was on a year-full (2013) of all kinds of steroids IM Diprofos, IM Fortecortin, IV Fortecortin and oral prednisolon up to 60mg, lost a ton of weight & muscles to the point where my knees were wider than my thighs and that never put me in remission or even lowered my inflammation markers to reasonable values and at the time i didn't want to take Imuran for a some stupid reason.

Two GIs were begging me to take Remicade as inflammation is getting out of control and i can't stay on such high doses of steroids for a long period, i decided to try Imuran first even though it takes around 3~4 months to "start" to work, that is if it works at at all [Started ~Feb 2014].

Initial dose of 100mg made me extremely nauseous and vomiting so i had 2 options 1-surrender and take Remicade which is crazy expensive 2- starting slow, i chose the latter and been taking it ever since along with the combo in my signature and been doing very well "knocking on wood", my latest lab results on 31th of Jan 2015 are

ESR : 1st_hour: 4mm/hr , 2nd_hour: 11mm/hr [normal values for anyone]
CRP : -0.6 mg/L [normal values for anyone]
Calprotectin: 62 mg/kg [below 200 is normal for patients with UC in remission, below or equal to 50 is for normal people]

No urgency, 1 or 0 formed BM per day


If i may recommend you to try something it would be the 4gm mesalamine enemas you could even take 2 per day (1 after morning BM and one at bed time for two weeks ) as a final trial before deciding to take 6mp/imuran/aza , but don't be so scared of it, the complaining people are always more vocal.

feel free to ask anything.

I used azathioprine at one point. Tolerated it well, and blood work was always o.k. It eventually stopped working like everything else. I suppose it depends on your classification. If you're diagnosis is mild, or mild to moderate you might have some success with it. If you're moderate to severe, or if you're progressing to that state, it might not help much.

My cousin went into remission on 6mp and that was quite some time ago. As far as I know she's still doing well. :)

I'm on 6mp. I started it on December 31st2014. It's been a little over a month now and starting to see it work. I was very tired in the beginning. Here and there I get a bit nauseous. Blood work is great. I'm aware that it takes up to 3months to fully kick in. But so far so good.

Hi! Thanks for asking. It is so slight now (knock on wood!) I am so thrilled. Some days I do not even have it at all!!! I'm so thankful that my doctor pushed me to take 6mp. I finally am able to remember what normal feels like again. Do it. Give it a try. It's worth it. You need your life back.

6mp?? Don't be scared. I'm doing it too. If you notice something odd you'll tell your doctor. Take it at night to avoid side effects. That's what I do. I still get slight nausea and in beginning I would get headaches. Otherwise so far so good.

Deal :) so I was in a very long never ending flare since July. I started it with prednisone 40mg. Now I finished the prednisone and it's just 6mp with my usual 4 tabs of lialda. Have appointment with my GI on Friday. He told me to see its full results needs about 3 months. Deff feel better, but still get urgency all day but not as bad. Even prednisone didn't get rid of that. (Which is why I'm back oft head I'm like this is IBS).

I will be eager to hear how you do on it. If you get nausea (common side effect at the beginning that eventually goes away) there are OTC things you can take to help with that -- just ask your dr what he recommends.

Best wishes!!

Thank you CC. I cannot get into the new GI until a few weeks! So I am just following old GI instructions and playing nice with him! I don't want to be without one. Though i will never no why he being so hard *ss about short dose of pred. I also looking for a GP dr cause they might have ideas.

In the meantime i stay the course and who knows?

If you in socal i sure would!