Anyone here with Raynaud's syndrome?

I searched through the board but didn't find anyone on UC forum, hence the post.

Just went out for 10 minutes without gloves (25F, little windy), to spray windshield defroster on both the cars and my fingers went numb. As it is, my toes swell in winter and must keep warm to be manageable and now this. My fingers went blue, not completely but there was a tint. I wonder, if this is beginning of Raynaud's.

I am taking Verapamil for migraine, so the blood vessels are dilated. Not too sure what more I can take. I have lived in much colder temps than this, never had this problem before (and I hate using gloves so this is not the first time walking out for 10 minutes without gloves).

Any insight?

I used to have a Raynaud's-like problem. It lasted for years. My best guess is that it initially was triggered by a bout of frostbite.

The problem was kind of like a cool party trick. Anytime I drank a large icy drink (while in a nice, warm environment), a couple of my fingers would turn completely white! Eventually it stopped happening on its own. I never saw a doctor about it. That was years before my UC diagnosis.

Yeah, ive seen sherry post about it. My aunt and sister have it. Neither one has any other ai diseases though

You said you have the blue fingers but not the white ones I read on wikipedia? I've had my finger turn white in the cold before but I didn't think much of it other than it was caused by frostbite.

The beginning of my Raynaud's started with intense burning pain when my hands got cold. They didn't change color in the beginning but I've had it for about 25 years now. The procession is when they get cold: nail beds turn bluish, then my finger tips get red, I start to lose feeling,then they turn white. When they start to warm up, I get the pins and needle feeling and then intense pain follows (think pouring boiling oil on your hands). I have to wear gloves if the temps fall below 65.

I've got it in my toes. But not my fingers, which I was told is weird. I was also told it can happen with UC. This was like 9 years ago though so I could've remembered wrong.

Guess you'll have to wear gloves ;)

Gary, are you in a warmer state?

My hubby has an aunt who has Graves' disease. She lived here in MI and nearly got frostbite walking from her door to the mailbox in the cold because of her Raynauds. She couldn't feel her feet most the time. So because of this, they decided to pack up and move to AZ.