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Ulcerative Colitis
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Posted 2/17/2015 1:47 PM (GMT 0)
The first real poop like action in forever this morning! It was far from perfect and started out as D but then got firmer. Omg happy dance.

Is it the Uceris finally kicking in, is it the no grain diet, is it the fact that I am in therapy and sharing my feelings?

I am far from back to good and I know Uceris is not a maint drug but at least now when I see my new GIbwe can start from a better place.

I hope she has great ideas and 6mp is not part of them.

Here's to firmer poops, less blood and no tenesmus, oh and shrinking hemmies!

(This post is the fodder for teenage jokers!i. It's got it all. :-)

Got some ideas for maint plans???
Posted 2/17/2015 1:58 PM (GMT 0)
Three cheers for firmer poops. Glad you're finally seeing improvements :-)
Posted 2/17/2015 2:20 PM (GMT 0)
"Got some ideas for maint plans???"


keep doing what yer doing till it aint doin it no more !
Posted 2/17/2015 5:23 PM (GMT 0)
Congrats, I was getting ready to spell R-O-L-A-I-D-S
Posted 2/17/2015 5:37 PM (GMT 0)
YAY DMC!!!! May this spring and summer will bring blessings to you!!
Posted 2/17/2015 6:02 PM (GMT 0)
Why no 6mp? I don't see how you're going to transition off uceris without some kind of plan and it doesn't seem like mesalamine is doing it... Try to keep an open mind. Maybe you will get lucky. I a happy you're feeling a bit bettter :)
Posted 2/18/2015 1:25 AM (GMT 0)
Yeah just a bit better....

I will keep an open mind but will see what new dr thinks before I take it.

Lots to think about!
Posted 2/18/2015 1:30 AM (GMT 0)
Yay! So happy for you! I hope you continue to do well! And hope you like your new GI. Feel good :)
Posted 2/18/2015 11:27 AM (GMT 0)
Uceris was like a miracle drug for me when I got a flare after being on antibiotics for a URI. It took about 2 weeks until it resolved all my symptoms, but there were zero side effects. So glad you are feeling better!!!

I completely understand your reticence about starting 6MP. I am so afraid of having to go up the med ladder now, but I am more afraid of getting cancer because of simmering inflammation. We gotta do what we gotta do. So many people have success with stronger meds ... I'm sure we will too!!!

Enjoy feeling better and may it continue!!!
Posted 2/18/2015 1:47 PM (GMT 0)
Thank you guys. Same today, but not feeling as well. Gonna get up and att'em and will feel better as day progresses.

Been on Uceris since the 7th. It's a slow working med, but I think it is getting there. Side effects: back ache and constipation.

My GI told me I could land in the hospital for 10 days with some ?itis and he said "you should be scared" and I have never had a dr say that about a treatment before. It just scared me.

So we shall see!
Posted 2/18/2015 2:16 PM (GMT 0)
I also don't understand why you wouldn't take 6MP?

It's a very safe drug at the doses given for UC patients and you can stay on it long term. I took it for 2 years, it didn't work for me but it also didn't have any side effects. I would much rather take 6MP than resort to biologics.

Sue
Posted 2/18/2015 4:25 PM (GMT 0)
Thank you SueBear, I probably will have to. Most stories I hear it only works for awhile if it works at all.
Posted 2/18/2015 5:05 PM (GMT 0)

DMC2011 said...
Thank you SueBear, I probably will have to. Most stories I hear it only works for awhile if it works at all.


Some have been on 6mp, Imuran, or aza for a very long time, it is their maintenance medication. I'd definitely try it before biologics.
Posted 2/18/2015 7:15 PM (GMT 0)

DMC2011 said...

My GI told me I could land in the hospital for 10 days with some ?itis and he said "you should be scared" and I have never had a dr say that about a treatment before. It just scared me.


about what specifically?


Are you still on the other meds in your siggie?

Ups and downs....yep.
Hang tough...great things are improving.
q
Posted 2/18/2015 7:29 PM (GMT 0)
Hi Q, about ending up in hospital for 10 days! I would die. Yes i am taking all the uceris and apriso and canasa, ;-)
Posted 2/18/2015 9:35 PM (GMT 0)
Did he mean pancreatitis? but from using a medication or what...I need the dots closer and LOTS of them.

q
Posted 2/18/2015 9:59 PM (GMT 0)
I think thats what he was talking about, a chance of that!
Posted 2/18/2015 11:56 PM (GMT 0)
I thought uceris worked quickly the first time I took it. The problem is that over time, it became ineffective for me.
Posted 2/19/2015 2:06 PM (GMT 0)
I am on aza as my long term maintenance med and have had no side effects as yet. I have noticed some hair thinning but nothing noticeable to anyone else. Plus that might get better now I am out of a flare.
Posted 2/19/2015 2:31 PM (GMT 0)
Thank happy, what is allopurinol for?
Posted 2/19/2015 2:47 PM (GMT 0)
allopurinol affects the metabolizing of Azathioprine so that you get more of the effective metabolite and less of te ineffective one. It allows you to take less Azathioprine
Posted 2/19/2015 4:32 PM (GMT 0)
Thank you!
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