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Decided with my wife, FMT before 6MP.

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Ulcerative Colitis
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Posted 12/19/2014 4:42 PM (GMT 0)
Thanks for the update. Keeping my fingers crossed for you.
Posted 12/19/2014 5:11 PM (GMT 0)
I wonder if the rectal meds are counterproductive to doing the FT's.
Posted 12/20/2014 4:58 PM (GMT 0)
Good question Gary but from what I read they need to be used in conjunction. It makes sense to keep inflammation down while doing them to me. I often think about the antimicrobial properties of the rectal meds being counter productive but others that have had success continued their meds while doing FMT. I will also continue my meds. Like I said I will also do the transplants until I see my bowel movements change. I plan on doing them for several weeks if needed. I feel that this is something that will take time and wont happen over night. I wont be seeing or asking for a prescript refill for 3 months from my doc so I will be doing them for at least that long but if I am better before then I will see.
Posted 12/21/2014 12:01 AM (GMT 0)
Please keep us updated. Daily if possible.
Posted 12/21/2014 2:59 PM (GMT 0)
live streaming would work too ;-)
Posted 12/28/2014 11:21 PM (GMT 0)
twiggs can you update us on your status? Are you seeing any results yet?
Posted 1/5/2015 2:20 PM (GMT 0)
Hey gang sorry for not posting sooner. I have been busy over the holidays and with all that did not do any transplants for about 10 days. Not to mention I got the flu bug over that time and was questioning everything but that passed and I am fine. It was a head cold and stomach bug that was going around as I knew others who had it.

I had done 7 transplants up to 12/23 and then got sick and with Christmas and all I just could not do them being too busy.

What I have noticed over the last 10 days is that I seem to be picking up my wife's frequency and consistency in bowel habits. I also notice a defined changed in my gas production and smell. I have some really stinky gas as well as my wife does. Keep in mind I had no smell to my gas prior for the last 3 years. I also have gone from having at least one movement a day and sometimes two a day to one movement every other day. I have actually since starting these and more so in the last 10 days gone two whole days without going once!

I do also notice that my movements and it seems since my colonoscopy 10 days before the start of FMT I had really soft and messy to wipe movements. I have not seen blood since colonoscopy which they had taken biopsies and the blood lasted about 12 days. It was the healing of the biopsies that took time.

Ok here goes and once again I plan on doing these till I reach the 35th transplant.

no 8 fmt : Resumed transplants on 1/3/15 retained 8oz first go over night till next morning.

1/4/15 No donor poo

no 9 fmt :1/5/15 First thing today 7:30am. Nice donor poo. Performed 9th enema. I had a movement prior but didn't get all out and did FT but only held it for about 20 mins. I had covered the mixture in the Tupperware so was able to go back after letting the first one go. I did the 2nd and held in just fine.

I feel fine otherwise. Plenty of energy and eating well. I think for me the tell tale sign will be weight gain. I just have not been able to gain any weight back in 3 years since this all started. Like I said I am eating more than my share and if I start to put weight back on I think I can assume things are on the right track. Otherwise I do believe they are making me better.

The guy I am using to follow did these for 6 weeks so I plan on doing the same if not more if necessary.

Oh also I have been fine with only half bottle rowasa nightly but been doing an occasional full bottle to keep things nice and calm. I just wish I could get a firmer movement but my wife's are not firm as we eat a lot of fiber. Hers are soft and messy to wipe also. But not as thin as mine. I guess I still have inflammation.

I will do better to keep you all posted.

Happy New Year all!

Post Edited (twiggs) : 1/5/2015 7:23:11 AM (GMT-7)

Posted 1/20/2015 2:49 PM (GMT 0)
Update:

My last transplant was done on the 1/5 which was the 9th one. I did not have a bowl movement for 2 days and then on the morning of 1/8 I had a movement and then did my 10th transplant.

Within a day of doing the transplant I notice much more gas and really smelly gas. I also started feeling off again. I think I may have picked something up at work again because I began sneezing at work the night before. I don't think the gas and the cold/bug I may or may not have has anything to do with my gas. I just cannot be sure exactly what is going on yet.

My movements started to get much more gassy and smelly and messy. They were also getting thinner and pencil like. They made a mess of the bottom of the bowl which it stuck to. This is something new to me. I also noticed that I began feeling queezy in the mornings and shaky/uneasy. I weas still having a movement inconsistently also and mostly every other day to every two days. I held off doing anymoire transplants to see where this all goes.

Interestingly enough I have been having terrible smelly gas after no matter what I ate right up to date. I have to mention that I have been eating really well so not sure why I go 1 or even two days without a movement now since starting the FMT. I had a movment on 1/15 and then not until 1/18 anf then had two small movements which were really messy and pencil like again.

I had been doing a whole bottle of rowasa nightly for the last week. On the evening of 1/18 I decided to stop the rowasa to see what happens.

1/19 still no more transplants and starting to feel a bit better and not so off feeling. Still have gas but not as bad. I had a small movement in the am and then a second at 11:30am which was a bit more formed and long and not as messy. So no Rowasa on the night of 1/18

1/20 woke feeling a bit better yet. I had a movement at 9:00am which was much more formed and not as messy. I am beginning to think maybe the rowasa is getting in the way of the bacteria making progress? I will keep an eye on how things go but will do one if needed otherwise will hold off one more night to see what my movement does tomorrow.

I am feeling a bit better today so I am not sure of I have or had a bug to begin with. I am taking this day by day and am not sure where it is all going. I just feel better to see my movements getting more formed as of this am. I hope it continues. I will hold of on the transplants until I stabilize a bit. Not sure what is going on with me.

I know it may sound confusing but I am just as confused. I really am not sure what is going on as I seem to get sick often. So not sure if this or that is related to the FMT. I guess I will know in time.
Posted 1/20/2015 4:28 PM (GMT 0)
smell is a sign of colonization. we often lose our stool/fart smell because our gut microbes are depleted.
Posted 2/5/2015 2:19 PM (GMT 0)
Update:

12th transplant as of yesterday. Everything is going well for me as I even stopped my rowasa 5 days ago and have no issues. I was having cramps and loose movements on the nights I was using the rowasa and decided to stop and see. Immediately after stopping the loose movements stopped and began to get more formed movements. I feel fine otherwise. My movements are still not daily and I have movements at different times of the day now more consistant with my wife's schedule. Some days I will go in the am and some days in the evening and some days not at all. This is exactly alike my wife's schedule. I have inherited he smelly gas also.

This and the schedule that's just like hers is the most amazing thing. I plan on doing more transplants with another one being the 13th scheduled for this weekend. I still have some ibs with it being mostly gas and gas cramps but it is no biggie really and goes away in a few hours. I still avoid dairy and some of the FODMAPS foods that I know bother me. Sorry again for not updating more often and will try to do a better job but have been really busy lately.

p.s I have been taking only Vit d3 and 500mg of l-glutamine lately. Still do my green homemade smoothies for fiber and butyrate. I also have gained 3 pounds back.

Best to all of you

Post Edited (twiggs) : 2/5/2015 7:42:04 AM (GMT-7)

Posted 2/5/2015 2:59 PM (GMT 0)
awesome Steve !!!!

just be cautious of an unrelenting desire to shop and look at your hair in the mirror - do you have an alternative MALE donor lined up ? smilewinkgrin
Posted 2/5/2015 5:57 PM (GMT 0)
Great. Please continue with the updates. Can your wife provide samples for the rest of us? Could be a lucrative business.
Posted 2/5/2015 6:17 PM (GMT 0)

twiggs said...
Update:

12th transplant as of yesterday. Everything is going well for me as I even stopped my rowasa 5 days ago and have no issues. I was having cramps and loose movements on the nights I was using the rowasa and decided to stop and see. Immediately after stopping the loose movements stopped and began to get more formed movements. I feel fine otherwise. My movements are still not daily and I have movements at different times of the day now more consistant with my wife's schedule. Some days I will go in the am and some days in the evening and some days not at all. This is exactly alike my wife's schedule. I have inherited he smelly gas also.

This and the schedule that's just like hers is the most amazing thing. I plan on doing more transplants with another one being the 13th scheduled for this weekend. I still have some ibs with it being mostly gas and gas cramps but it is no biggie really and goes away in a few hours. I still avoid dairy and some of the FODMAPS foods that I know bother me. Sorry again for not updating more often and will try to do a better job but have been really busy lately.

p.s I have been taking only Vit d3 and 500mg of l-glutamine lately. Still do my green homemade smoothies for fiber and butyrate. I also have gained 3 pounds back.

Best to all of you

Thanks for sharing. Look forward to these updates.
Posted 2/5/2015 9:39 PM (GMT 0)
Great news Steve, remission is on its way!
Posted 2/10/2015 1:49 PM (GMT 0)
Update: 11 days no meds and feeling fine. The last 3 days and especially today I had the most perfect movement ever in which I inspected with a flashlight and no B or P to be found. I will continue the FMT's once a week until otherwise. They say for every year you have been sick it takes a month to heal. I have been sick for 3 long years. I will double the heal time to make sure and will do these weekly for 6 months. I have been at it now since just before Christmas having done a total of 13 transplants.

L-glutamine and Vit d3 daily along with smoothies and a lot of healing restful sleep.

P.S I did my 13th FMT this past Saturday morning.


Best to all

Post Edited (twiggs) : 2/10/2015 7:12:54 AM (GMT-7)

Posted 2/10/2015 1:53 PM (GMT 0)
That's pretty cool. Keep us posted.

You used a flashlight?

Twiggs, the poop detective - a new serial drama.
Posted 2/10/2015 1:55 PM (GMT 0)
That's awesome
Posted 2/10/2015 1:56 PM (GMT 0)
oh no, not the flashlight !

what is this world coming to ?

awesome Steve !

LOL G man turn
Posted 2/10/2015 3:57 PM (GMT 0)
How much l-glutamine are you taking also? I find this is a very vital step to full recovery.
Posted 2/17/2015 8:28 PM (GMT 0)
Update: 18 days no meds and still fine. I have done 2 more fmt's since last posting making it a total of 15. The last one was done on the 15th. Other than that all is well here.

Guardian I am not taking the glutamine regularly as I may very well should be but it doesn't seem to matter really. I have been eating just about anything I want also. Including red sauce and ketchup! When I remember to take it I sometimes take 1000mg and other times I take 500mg.

It seems as time goes on I am getting more confident with everything changing for the better and it is sinking in. I will stay steadfast and if all stays well I plan on calling my doc to update him sometime late march which will make it 3 months from the start of the transplants.

Best to you all

Post Edited (twiggs) : 2/17/2015 1:38:28 PM (GMT-7)

Posted 2/17/2015 8:45 PM (GMT 0)
That's awesome news, my poop brother.

I reckin' your wife's poop would sell for a fortune in the underground market.

Good on you for keeping at it as well.
Posted 3/16/2015 3:46 PM (GMT 0)
Update: Still going strong no meds and have only minor ibs at this point. I still have days where I do not go at all. I have done a total of 18 fmt's and will do a 19th this week maybe Wednesday or Thursday. I will continue these as long as I feel I have healing left to do. I still have sensations and some gas/cramping at times but it quickly goes away.

Hope everyone is doing well.

PS. about 10 days ago I decided to do an mesalamine enema just for experimentation and it gave me D. The next day I went 3 times. I only did one night and stopped immediately and my movements went back to how they were the day prior to doing them.

Best
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