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Tapering on pred

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Ulcerative Colitis
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Posted 6/7/2015 12:50 PM (GMT 0)
I'm tapering from 40 mg which I've been on for 2 weeks. It did the trick and now I'm on third day of 30 mg. tomorrow I'm supposed to start 30 mg. I woke up this am and it feels like stabbing in my tummy. Yesterday I had horrible D and had to take pepto which worked but usually doesn't. I'm supposed to go kayaking with friends today and instead I'm just lying in bed. Will the pred I just took kick in quickly enough for me to still keep my plans today?

I have a colonoscopy scheduled for Thursday of this week. I'm hoping I'll make it until then. Consultation the following week to discuss remicade.

Not sure what to make of the day today with this pain....
Posted 6/7/2015 12:55 PM (GMT 0)
It doesn't sound good for keeping your plans. What other meds are you on?
Posted 6/7/2015 12:56 PM (GMT 0)
Pain, diarrhea, and kayaking might not be a good mix. I guess it kinda depends on if you're kayaking in an area remote enough where you can easily make emergency bathroom stops in the woods, if needed. Done it before.
Posted 6/7/2015 1:07 PM (GMT 0)
I'm on Imuran 100 mg and that's it. I tried endocort and Apriso but neither worked.

Yea I haven't had D at all today...fingers crossed
Posted 6/7/2015 7:29 PM (GMT 0)
Feels like someone kicked me in the stomach. Hasn't gotten better at all today. It almost takes my breath away & hurts to touch.
Posted 6/7/2015 7:35 PM (GMT 0)
is your abdomen distended? Don't take more pepto bismol until you call your doc as it can keep toxins in too long
Did you eat something that went bad?
Posted 6/7/2015 7:48 PM (GMT 0)
I didn't eat anything bad. I had two slices of cheese pizza yesterday for dinner and for lunch we went to Panera and I had a salad and a side of Mac and cheese. I didn't finish the salad bc it had kale in it and I don't like kale. For breakfast I had cereal. I'm not at the point where I need to call the doc today but I'm tempted. At what point is it bad enough to call?
Posted 6/7/2015 9:18 PM (GMT 0)
You may have a food histamine intolerance, like me. Pizza is high in histamines and so are certain cheeses used in mac and cheese. This is what would happen to me until I either eliminated high histamine foods from my diet or took DAO before meals. Many UC'rs are low in DAO which causes a histamine overdose which is what may have caused your problems.
Posted 6/7/2015 9:55 PM (GMT 0)
I would call your doc
Posted 6/8/2015 1:23 AM (GMT 0)
Do you know if you're sensitive to dairy? That's a lot of cheese and I know for me (and many others with UC) dairy is a problem while flaring.
Posted 6/8/2015 2:14 AM (GMT 0)
Good question, never really had a problem with dairy before. I drink milk, cereal, ice cream- all that has always been fine in the past. The pain did get a little better after I laid low for a few hours. I am calling the doc tomorrow if I don't feel better. Thanks for the advice everyone.
Posted 6/8/2015 4:25 AM (GMT 0)
feel better
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