ever think about the future with uc?

I'm hoping I feel better physically and mentally....the only worry I would have is not being able to get my meds due to availability.

q

quincy said...
....the only worry I would have is not being able to get my meds due to availability.

This is what I'm afraid of also. My VSL has already lost coverage. My other meds, since diagnosis in 2009 have gone from $30 to $70 and now to $100.

Feel sad that so many young people have surgery and in fact are encouraged on here to have it. I am 68yrs old now and apart from an accident last year, have been pretty good for the last 15 years. Because surgery is right for you you shouldn't push it on to other people. People cope in different ways. My life has been appalling marriage wise which no doubt contributed to my symptoms, so I think most people would say how have I managed with that and UC, but I did. If my daughter/son had it I most certainly wouldn't say have surgery, and moan because there is no medical miracle on the horizon.
UK Gran

Well reading that others had surgery or would consider it has actually helped me fell better about UC and not fell so worry about the futur. I now fell I have an option that is not as dramatic as I believed It to be.

Notsosicklygirl I can relate, I wouldn't say I worry per se but I do sometimes think about the limitations of this disease. Like when watching programmes like amazing race or the bachelor & I think I couldn't be a contestant. Not that I'd necessarily want to lol. It just gets me thinking about what it would be like to be 'normal' not have to worry about toilets being handy or a few hours each morning to sort your bowel out.

I too feel tied to my current job because of the disease but I'm also thankful i have one where i can currently make it work without anyone knowing.

Lots of people say as above that stopping work/retiring removing stress helps a lot so this is what i hope for in retirement as i too want to travel more. I'm also thankful that I travelled a bit before i got it.

Theres a lot of great advice here re not worrying about what hasn't happened yet & that's what i try to do too.

It is a crapty disease & annoying how it can bring anxiety with it too. I'm quite easy going but theres nothing like crapping yourself in public to raise the stress levels lol

drazzit said...
Feel sad that so many young people have surgery and in fact are encouraged on here to have it. I am 68yrs old now and apart from an accident last year, have been pretty good for the last 15 years. Because surgery is right for you you shouldn't push it on to other people. People cope in different ways. My life has been appalling marriage wise which no doubt contributed to my symptoms, so I think most people would say how have I managed with that and UC, but I did. If my daughter/son had it I most certainly wouldn't say have surgery, and moan because there is no medical miracle on the horizon.
UK Gran

I've been struggling with it for ten+ years now and I am missing out on life. I don't want to have excruciating pain and multiple BMs every day for the rest of my life. i don't want to plan my day around BMs and i don't want to eat based on how i feel every day. I don't want to worry about accidents. I want to do fitness and not feel weak and limited. I want to take a month to travel and not worry about medication and toilets. I want to ride on a plane or train and not sit next to the toilets. I just want to enjoy life, i don't want to spend my whole life concerned with UC symptoms.

This illness is very individual, and in mild cases, i could see living with it and having breaks from it but some cases don't respond to anything and in those cases, surgery can be a way out. I definitely do not intend to push it on anyone else but i think it's the right thing for me. I think it's the only thing left for me. After nearly dying from UC meds a few months ago, I see that while surgery sucks, maybe i can get my health back and stop being so miserable and negative. I do not have or intend on having children so I don't worry about how I would deal with a child with this illness but i think it's narrow minded to think that you can control this disease to the point that they wouldn't need surgery, and if it came to that - I would learn everything possible and weigh the options.

mid30s. I think this is a good age to do it if it's coming to that. Probably easier now than at 60...

yup, it is very tiring. I am at the point where I accept I have tried every medical option, a ton of alternatives and diet too - nothing stops my body from hating my colon. I understand people who feel like they would never have surgery and I feel that way too, honestly, it's the last thing i would ever want to come face to face with but it's a heck of a lot better than living your life without being able to enjoy food looking for bathrooms every where you go. It's a huge risk of course and i wouldn't recommend anyone do it if they have medical options.

Nssg, after the whole sepsis thing you had, I would've been like sign me up for surgery (had it been me): Colon = evicted, you almost killed me.