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Ulcerative Colitis
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Posted 7/4/2015 4:35 AM (GMT 0)
I've posted here before but I'll give a quick summary of my background. I was on Lialda for 4 years, then it stopped working and my doctor put me on Humira, which I just took my second dose today, but I am still taking Lialda also until I see my doctor again in 2 weeks. So I'm a 27 year old female and I am 5'1 and petite and have always been thin. I never had to worry about having a stomach until I got UC. I was wondering if anyone else has this problem? Sometimes I get so bloated that I look like I'm pregnant. I wonder if I will ever be able to have a flat stomach. I feel like exercise doesn't even help. Can I ever have abs? Or am I just doomed because of my UC??
Posted 7/4/2015 10:55 AM (GMT 0)
Are you on prednisone or another corticosteroid? It can cause bloating and water retention. If so, try to cut salt out of your diet as it wil just make it worse.
Posted 7/4/2015 1:43 PM (GMT 0)
Since being Dxed with any medication I had caused a bloating of my stomach at one point I only weighed 95 pounds and I had it Now I take I Lomotil a day am on Entyvio my GI said the Lomotil causes it By the way I have gained 20 pounds on Entyvio much needed weight gain wink
Posted 7/4/2015 2:11 PM (GMT 0)
Do you take a probiotic? Adding one might help but it can be trial and error at which will work well for you. Some can make you feel worse. I always take mine at night before bed too.
Posted 7/4/2015 3:06 PM (GMT 0)
I am a small female too, and I get a weird bloat when I have symptoms starting to stir up. For me, it's different than water retention or gas - my lower belly gets really round and really hard. I think it's inflammation of some sort - it subsides as my symptoms do. Hope you feel better soon!
Posted 7/4/2015 3:18 PM (GMT 0)

CGK1998 said...
I am a small female too, and I get a weird bloat when I have symptoms starting to stir up. For me, it's different than water retention or gas - my lower belly gets really round and really hard. I think it's inflammation of some sort - it subsides as my symptoms do. Hope you feel better soon!

Mine gets like that too from my IBS (my CD is currently in remission) when I first became sick with Crohn's I never had any bloating, it wasn't until I developed IBS I mostly have IBS-C but on occasion will get D so it's considered alternating IBS. Though it's so hard to know sometimes since many get bloated with just their IBD alone.
Posted 7/5/2015 10:46 PM (GMT 0)
I was on prednisone for a short time but I stopped it almost a month again, that's when I started Humira. So I am currently on Humira and still taking Lialda until I see my doctor again.
Posted 3/22/2017 5:54 PM (GMT 0)
I have the same problem! Has anyone had any success with a med/diet that made the bloat go away? I've had very active colitis, then I suddenly hit remission, but now I am so bloated that it looks ridiculous. I feel so embarrassed and I've seen SO many posts about similar problems, but no advice other than just "let it run its course." Any advice????
Posted 3/23/2017 12:20 PM (GMT 0)
I am bloated as well and have mild proctitis now in remission on Rowasa and Canasa. I was on Lialda and my doc told me to get off of it to see if the bloating goes away. I am also on the fodmap diet but I actually eat less than the diet allows. I've tried IB Guard, lots of gas x , tons of peppermint tea etc etc. I have no fat on my stomach at all .. its all intestinal bloat. I've had an Enterography MRI with no inflammation seen, a Hydrogen breath test that was negative for SIBO. I wanted to try probiotics but they have caused more bloating in the past so am reluctant to try them again. Sometimes the bloating is mild and other times I look 6 months pregnant and it hurts. UGH
Posted 3/23/2017 1:35 PM (GMT 0)
I believe bloating is a side effect for several of the mesalamines, Rowasa is one of them, not sure about Lialda, but you might want to check. I had terrible bloating on Coalazal and also on Rowasa, but I am also mesalamine intolerant. However, double checking the side effects of Lialda might at least put your mind at ease.

But when you're in remission, Low-FODMAP might be the way to go for two weeks so you can figure out if you have food triggers that are causing bloating. When I was previously diagnosed with IBS, I had a lot of success figuring out which foods caused bloating/gas/cramping issues for me on a low-FODMAP diet.

Low FODMAP is a short term elimination diet (2-3 weeks) followed by careful reintroduction of different food groups one at a time. The diet is based on the principle that certain sugars (fructose, lactose, ogliosaccharides, etc.) cause fermentation of gas in the gut, leading to gas, bloating and (for some) looser stools.

There is a great book by Patsy Catsos that helps explain how to do this diet and then the reintroduction. The goal is to be able to eat as many different foods as possible without issues. However, very important to point out that dietitians say the diet is NOT considered safe for UC while flaring because it encourages eating of fruits, veggies, whole grains, etc. - only when in remission and probably under the guidance of a dietitian who specializes in low-FODMAP, to be safe.
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