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Lack of sleep during flare

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Posted 7/10/2015 2:47 PM (GMT 0)
I have no problem FALLING asleep, I just have a problem STAYING asleep. I wake up almost every 1-2 hrs with an urgency to go to the bathroom. I was wondering if there's anything I can take (something safe for my colitis) to help me sleep through the night. I need sleep to heal, any suggestions?
Posted 7/10/2015 2:56 PM (GMT 0)
You-see-How awful! I have been there. In my experience, when the UC wakes you up at night it's because you are needing something more to battle the UC. I don't think sleep aids will work. I would talk to your GI about what to do. Sorry you are going through this.
Posted 7/10/2015 3:15 PM (GMT 0)
The last flare I had, I was up every couple of hours. And I took Ambien and was still getting up every hour or two.
Posted 7/10/2015 4:42 PM (GMT 0)
It's urgency waking you up...I think it's better than sleeping through it. Are you using any antispasmodics? They can help quiet some of the spasming.
When you have the urgency...what type of bm are you having?

q
Posted 7/10/2015 5:34 PM (GMT 0)
When I have the urgency and I go to use the bathroom, it's mainly constipation and just a little bit of the leaky stuff comes out. (Small pieces with some liquid (not D though)
Posted 7/10/2015 5:42 PM (GMT 0)
You need to get on rectal meds.

Could your urgency be gas?

q
Posted 7/10/2015 5:52 PM (GMT 0)
Slight cramping does come with the urgency, some gas does come out, but there's always the leaky stuff too so it's not specifically gas related. I've noticed if I think about a bm it'll trigger an urgency too, nerve related. Could Canasa help? I have some of those lying around, and how would that actually be helping. Thanks Q
Posted 7/10/2015 5:57 PM (GMT 0)
I hope it ends, its the worst. Eating late contributes.

You could try :

mebeverine
Lomitil
Bentyl
pinaverium

The antispasmodic pinaverium bromide effectively treats irritable bowel syndrome (IBS) symptoms better than placebo and is well tolerated, according to a randomized controlled trial published online January 26 and in the July issue of Clinical Gastroenterology and Hepatology. Although pinaverium is used in Europe, Canada, and Mexico, the US Food and Drug Administration (FDA) has not approved it for treatment of IBS.

"Pinaverium improves motility disorders, consequently reducing stool problems as well as relieving abdominal pain in IBS patients with few and nonsevere side effects," write Liang Zheng, MD, from the Department of Gastroenterology, Second Jiangsu Provincial Hospital of Chinese Medicine in Nanjing, China, and colleagues. "Hopefully, this clinical trial will contribute to the establishment of a clinically effective, cost-effective, and safe drug as first-line IBS therapy."

Approximately 10% to 15% of people worldwide suffer from IBS, with chronic pain, fatigue, and altered bowel habits.

www.medscape.com/viewarticle/847624
Posted 7/10/2015 6:02 PM (GMT 0)
I used librax snd it helped tons
But I'm not sure if it's ok for UC
Because the same doc who let me have morphing and delaudid during a horrible flare let me on that too
When I switched hospitals they weren't giving it to me anymore
I keep forgetting to ask my GI if i can take it
Posted 7/10/2015 6:03 PM (GMT 0)
really, the only way to get it under control is to get the inflammation controlled so you don't have the urge to go. Hopefully the remicade helps you so you heal and don't get up in the night.
Posted 7/10/2015 6:47 PM (GMT 0)
Agree with everyone else that nothing will change until the inflammation is under control. You could try the Canasa but I have found hydrocortisone enemas to be very effective.

You can take both once a day. Talk to your doctor
Posted 7/10/2015 6:48 PM (GMT 0)
Can you get rectal meds over the counter?
Posted 7/10/2015 7:00 PM (GMT 0)

You-See said...
Can you get rectal meds over the counter?

No, prescription only for canasa suppositories or rowasa enemas. Both have meslamine as the active ingredient.

Steroid suppository or enema might help you as well.

You can alternative between steroid and canasa.

Call your gastroenterologist and he/she should be able to fax a prescription to your pharmacy.
Posted 7/10/2015 9:01 PM (GMT 0)
I have had success in the past doing steroid suppositories at night (seemed to quiet things a bit) and then Canasa during the day. Hope you feel better soon- inflammation be gone!!
Posted 7/10/2015 10:07 PM (GMT 0)
Since Canasa is mesalamine, best not go there if you're allergic to mesalamine.

Call and ask your doc for steroid foam retention enemas, or at the very least steroid suppositories. No, can't get them OTC I don't think.

As well, ask for an antispasmodic....my success is with dicyclomine 20mg (Bentylol)

So, to clarify...are you on Uceris? Entocort? oral

Do you take probiotics? if so, which ones?

q
Posted 7/10/2015 10:35 PM (GMT 0)
I'm on oral entocort yes. And I just started taking a probiotic as well, culterelle. It's been about 3 days with the probiotic and about three weeks with the steroid
Posted 7/10/2015 10:48 PM (GMT 0)
I've always had terrible insomnia, mostly not being able to fall or stay asleep whether it was due to having to get up to poop or not my sleep has never been good (blame my mom for that one, long story) but since I started smoking mj before bed I sleep very well, I fall asleep faster and stay asleep unless something is really upsetting to me then I'll wake up half way through the night (thankfully not usually having to poop though) I do sleep better somewhat when I don't have nocturnal poops cuz usually if I woke up more often than not I'd still be able to fall back to sleep fairly quickly...

but having nocturnal poops makes things worse so until you can get that under control I don't think there's much you can take to help you sleep through or you'll likely wake up to a mess.
Posted 7/12/2015 3:15 AM (GMT 0)
Medical MJ helped me sleep a little better. I think it slowed down my gut a little.
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