Farewell to UC, and this forum

Other than old timers PB, I don't see much of "I told you so's". Personally, I don't think " told you so's" are productive. We live and learn. It's a fact of life. "Told you so's" are just an unnecessary snub.

Kevin Watson said...
Hi Chiron

I'd like to hear your story, I'm always up for learning new stuff that helps. How can I PM you?

Kev

There is no PM (private messaging) function available on healing well forums. If one shares his/her email, then others can email that user.

Chiron: I know I struck a nerve with you by saying that more than likely you will flare again at some point. That's not something anyone wants to hear. But, sadly, it is the truth for just about everyone. That's why the literature states that UC is a chronic lifelong disease with periods of flares and periods of remissions - because it is. Very few escape that fact. You are still on prednisone to this day. Are you aware of all the umpteen millions who thought and prayed that their UC was under control only to find out upon tapering pred or shortly after getting completely off it that that was not the case? Some have gotten all the way down to 2mgs and then flared. You haven't even reached that point yet. Just two weeks ago you were flaring. Sure, your condition might be much better than it has been in a very long time but you are not in remission, I doubt even now. You probably don't want to hear that either.

Nonetheless, most people here, including me, would actually like to hear your story - without it coming across like you have found the cure and that your discoveries will help just about everyone because that comes across as being arrogant and that you know more than everyone else, including the professionals. It might help a few but that's all, but that's not a bad thing. I actually doubt that you can share anything with us that hasn't been brought up before by someone. Same thing with what helps me. When I was first diagnosed five years ago I was put on oral mesalamine by my regular family doctor which both helped and hurt and to this day that's all I take for meds. Everything else that helps me (most would say that I am in remission) are alternative in nature so I am actually very open to alternative ideas that are reasonable. In other words, my GI has basically done nothing for me and my improved condition is solely due to the research and alternatives that I have done. My protocol is in my signature but I'm not going to suggest or imply to posters here that I have the answer and that what I do would help everyone because I know it won't.

Please tell us your story, just don't make it sound like you have come across the answer for everyone because nothing works on everyone, not my protocol, not your protocol, not even meds. You haven't been on here long enough to read all the posts where someone put on a tin foil hat to stop cosmic rays and they were cured in just one week, and all the other cures, like drinking your own urine or "distance healing" (just to name a few). Personally, I hope you stick around.

Yup Red, I generally tend to as well but unfortunately some people just have such a way of bringing it out of me lol, so yeah, I'm guilty of it but I do watch myself in that regard it's just the odd time here and there like I said, people's personalities just bring it out in me hahaha.

Ok Chiron, bye!

Oh look, you're back already with another post. Lol.

hahaha.. @Chiron you cracked it!, give this man a nobel prize,

if you are really sincere and care for the public benefit then you should not withhold anything that could benefit others also you should expect to be ridiculed upon, many genius scientists were dismissed as morons in their time.

i am starting to feel sorry for the moderators trying to do their job with a ton of psychotic members high on steroids.

garylouisville said...
You haven't been on here long enough to read all the posts where someone put on a tin foil hat to stop cosmic rays and they were cured in just one week, and all the other cures, like drinking your own urine or "distance healing" (just to name a few). Personally, I hope you stick around.

It is terrific comic relief though.

Less than warm welcome is subjective, and Cherion is well versed in snide and rude comments in return. Let's not lose perspective on the manipulation that's happening here.

Either he/she leaves or stays. Move on already.
q

What I don't really understand is that Chiron was still on 20mgs per day of prednisone and NOT tapering as of just three weeks ago and stating "10 toilet visits a day with semi-formed stool, no blood or mucous, no undigested food. But it hurts like hell as it transits my descending colon and rectum. Urgency happens once the stool reaches the rectum. If I clench really hard and do deep breathing, I can hold off, but it's quite painful".

That's not remission and yet Chiron has come on here wanting to share their miraculous remission story while blasting traditional med options, implying that through their research they had discovered the solution to remission (when no one else has), also implying that it would work on many. Assuming that the above was their condition on 6/26 and they went into remission immediately on 6/27 (which I highly doubt), that was only three short weeks ago and yet they are sure they will never flare again and want to share their success with the world, even though they are probably still going 10 times per day on 20mgs of pred. I also don't think Chiron realizes that when the colon is badly damaged sometimes the pred doesn't appear to be working for a while but then begins working later, often working better during the tapering process (mainly due to the time frame on the drug). If you have done another treatment of some kind (medical or alternative) during this time period it could easily appear that the pred did nothing and the new thing you started is what worked when, in fact, it really had been the prednisone all along. Whatever Chiron's protocol is I think it is too early to have credibility until being completely off prednisone for at least six months and having a clean scope at that time. Until then it is more their wishful thinking than anything else but that doesn't mean they shouldn't share it anyway in a non-arrogant manner.

I'm not saying that there is no validity to Chiron's protocol (whatever it is), just that it is way too early to claim success. At my worst I was going over 20 times per day and through my own research and alternatives, eventually found myself down to 10 times per day and I was thrilled. I didn't declare myself in remission though, even though my condition had improved tremendously. Now I am either in remission or about as close as anyone can get (mostly through alternatives) but I'm not going to get cocky about my protocol because even I don't believe it would work on that many, only a certain select few.

I haven't read any of your posts because, honestly, I don't visit this forum too often since having a proctocolectomy with end ileo in 2010...but...all I can say is...Miracles Do Happen!

garylouisville said...
Well, at least they were healthy chocolate chip cookies. LOL

No regrets, I enjoyed everyone of them, loaded with sugar, probably 10 before I tossed the box.

Slept thru the night, no ill effects. Feel lucky NOT cocky since I am learning that is key to control. I am driving 2 hours per day until our next home is constructed near the office - motivation right there to adhere to the straight and narrow path.

Chiron I hate to say it and I do really read all of your posts that you had written, and it seems to me that you have a problem with attention. I've had a friend like this and he was exactly like that. You've written multiple times in the same thread about "almost fatal UC" "my family was about ready to watch me go" etc. We're all in the same boat as you, some worse than others but all with the same UC darn disease. Personally, if you hate modern medicine so much, and say it's worthless, then how did you not die if you were so close? Diet takes a long long time to really change something fundamentally. Gluten takes like 8 weeks just to get out of your system......anyway, best of health to you.

This post is not productive...move on.