UC and clear colonoscopy?

Okay, in October of 2014 I started having severe diarrhea and constipation, night sweats and blood and mucus in my stools. Finally in January I had my first colonoscopy and was officially diagnosed with Ulcerative Colitis and proctitis. My medications are listed in my signature but I have been on those and just recently finished my prednisone taper. I called my dr a week ago because my symptoms seemed to be coming back: sever diarrhea, some blood. Dr talked about starting me on remicade but wanted to do another colonoscopy just to see what we are working with. So I found out this morning that my colonoscopy came back completely clear. But I've still been feeling terrible and have dropped almost 30 pounds since October. Dr said we need to do a CT enterography to rule out crohns or small bowel disease. Anyway I am just very confused and wondering if anything like this has happened to anyone here. I feel like a hypochondriac or something. But I definitely haven't been making up the fact that I will use the bathroom 20 times some days and then not be able to go at all for a week?! Any advice! Please help!

I think your doc is on the right track.

Quincy makes a good point. They use such varied terminology that if one doc does the colonoscopy and another reads the results, the reading doc might not interpret the wording the same as the writing doc meant it.

And there lies the issue...you don't have enough answers/information at this point.

Even the smallest amount of inflammation can cause nausea.

BUt...you're on Prilosec and Zofran...were these to use while on Pred? Are you still on the Prilosec?

Were you scoped for upper gastro issues?

q

You do need to know that the constipation and upper gastro symptoms as you describe do go hand in hand with limited rectal flaring.

I strongly, strongly suggest rectal meds at this point to see if you do improve.

Even the mildest of inflammation (again at your doctor's visual discretion of what he would determine as "flare") can cause those symptoms.

Worth a try, nothing to lose except hopefully less symptoms.

While I have upper discomfort a lot...any form of constipation, rectal discomfort/spasming and continual upper pain are clincher symptoms for my flare. My doc finally took a look, and he said "I can talk myself out of you having a flare or talk myself into you having a flare". Which meant that I was having the symptoms that I determine as a flare, and he wouldn't state no because there was in fact such mild visual inflammation regardless. Most patients wouldn't have any symptoms at all. .... but at that point, I do.

I do have stomach/gut discomfort from too much fat or garlic, actually. Once I have nausea, many other things such as smell can trigger a worsening of symptoms.....a continuing cycle at that point.

Remember that with constipation caused by mild/limited rectal inflammation will give mixed signals throughout the digestive tract. While the upper area is still active in what it does, the rectum is sending signals to say downloading isn't happening here, so stop sending stuff to this end. I think it's like the whole system ends up in hissy fits, spasming and ultimately nausea.

Antispasmodics can definitely help. how many times can you take the Zofran?
Maybe try another antispasmodic?

A change or at least a look at some food intake can either soothe or help things to actually move faster through the digestive tract which can lessen nausea.

You might also consider to take a fibre supplement with meals. I use Metamucil capsules and started slowly.

You could also consider to add another probiotic to the Align.

Hang tough...it does take a while to get things sorted initially.
The problem is that once things seem figured out, a wrench is eventually thrown in for good measure.

q

Please...please get a copy of your biopsies report. They're not going to read each and every part to you.
You should have it for your records anyway.

q