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Starting Uceris tomorrow, what to expect?

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Ulcerative Colitis
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Posted 8/23/2015 1:25 PM (GMT 0)
Starting up uceris tomorrow, what can I expect? Symptoms now are cramping, gas, D. Does uceris usually help with these symptoms? I think most of my problems (inflammation), are in the lower rectum. Does uceris usually help with this? And how soon do you typically see results? Thank you
Posted 8/23/2015 2:20 PM (GMT 0)
I feel like uceris helps in mild situations. From what you've described in the past, your symptoms sound more severe. I wouldn't expect too much, but I hope I am wrong. If prednisone doesn't help, I doubt uceris will :(

I saw results from uceris quickly when I was in a mild flare. Probably just a few days. Later, I took it for more moderate inflammation and I had no result.
Posted 8/23/2015 5:46 PM (GMT 0)
I keep debating whether or not its severe or mild. Depending on the day this changes. Idk hopefully I notice some kind of improvement.
Posted 8/23/2015 9:31 PM (GMT 0)
I have blood on the tissue after I go. not in the bowl. I am bringing stool samples tomorrow. I've been on Uceris about 9 days and see no improvement. I was diagnosed with UC last June. Been on prednisone and that seemed to have helped. But, I'm not wanting to go on it again. After the results of the stool samples, I'll see what the doctor suggests . I wonder if this is a flare up of some sort.
Anyone else have a lot blood on the tissue?
Thanks
NANAONE
Posted 8/24/2015 3:43 AM (GMT 0)
I tried uceris. When I first got dx I was immediately put on pred. I tapered that without any changes to my flare, which at the time was very mild and confined to very low in the rectum. I told the GI I didn't want to go back on pred, and she gave me uceris forewarning me that if the pred didn't help that it probably wouldn't either. She was right. Granted my prednisone side effects started to diminish but it didn't help my flare at all. If you google uceris reviews you will see that not too many have benefited from it. I tried it for three weeks before having to give in and go back to the pred (which never did work anyway either). Hopefully it works for you, it's definitely not as nasty as prednisone....but considering how similar your and my situation has been, I fear it's not a strong enough drug.
Posted 8/25/2015 5:56 AM (GMT 0)
Jen have you seen improvement at all? What are your symptoms to date?
Posted 8/25/2015 2:29 PM (GMT 0)
I'm actually doing pretty well now. I haven't had blood in a few weeks, formed BM, usually one a day or every other day (before UC I was never regular). Only problems I seem to be having is still discomfort in my guts and sometimes my BM are a little skinny obviously indicating inflammation somewhere. Not awful things but annoying. I'm still waiting to start Entyvio, supposed to start on Sept 1st. I'm still on the pred and won't start tapering until I get the biologic. My new GI thinks the pred is helping me, I'm still pretty sure it's not but I'm anxious to taper and find out.

I emailed my GI yesterday and he wants me to lower my Apriso, since I've been taking a double dose. So as of today I'll be on:
4 Apriso
20mg prednisone
Rowasa enema every other night
2-4 florastor
2 culturelle
Posted 8/25/2015 8:17 PM (GMT 0)
My experience with Uceris has proven it to be completely ineffective. But ymmv... I was DX with UC May 2014 and it came on hard and fast and I had pancolitis with much bleeding and weight loss. However, I don't think Uceris and asacol was aggressive enough treatment to get results. If you are only having a minor flare, it may work for you. I've done prednisone far too much since getting this and that too doesn't achieve remission even with high doses. And I hate the side effects greatly and told my doc no more. So my doc again prescribed Uceris for emergency use. Well, it doesn't work at all for me. I hope you have better luck!
Posted 8/26/2015 5:57 AM (GMT 0)
Don't expect too much at first. It takes time. Try canasa for rectum.
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