Pred outburst!!!!

Sorry guys and girls-I'm going to have a rant!

I'm on my second course of Pred as some of you may know.. Great. The thing is, I'm getting all of the side effects-nausea, EXTREME fatigue, restless leg, headaches, brain fog, trouble focusing.. but seemingly no relief from the UC-I think I went maybe 8 times this morning rather than the usual 10/11, but yesterday I was in and out of the loo so many times it was painful...!

I don't want to be at work. I don't want to talk to my partner about bathroom floorboards (he's doing up the house-it's a wonderful job he's making, too), I don't want to have to keep making light of how I'm feeling to make other people feel better, and this morning I cried when I couldn't reverse into a parking space!

I've been told Imuran may be a no-no as it is contra-indicated with myeloma which runs (maternally) in the family-my nan is indeed fighting it at the moment. So does that leave me with 5ASAs and nowt else? Why doesn't anyone seem to take it seriously?! I just want to go to sleep for a week and wake up feeling better and able to eat tomatoes again!

I'm at my desk at the moment having no clue what to do for the rest of the afternoon, eating a bag of cheese savouries and drinking squash-I feel like a sulking child but I can't stop it!

I should be going to the gym today-assuming I can stay awake!

Sorry for the moan-I just needed to 'express' it..!

Thanks you lot

So true Dikid!

Pred does not work for everyone. My GI recently convinced me to go back on it. It was a thursday and they took my inflammation markers on that day which were actually the lowest they had been in months ( A 4...yey!). Well, after 4 days of 30mgs of Pred, I started bleeding again and was in TERRIBLE pain. They took my inflammation markers the following monday because I was due for Remicade. They were at a 46.

4 days of Pred, no sleep, lots of pain, back to the moonface, angry and miserable....you know the deal. It doesn't work for everyone. I wouldn't mind the side effects if it actually worked.

Trust your body and talk to your GI. If you don't feel it is working...speak up.

Yep. That's exactly where I got pain when I was on pred last. I think it might be acid. And it magically disappeared once I was off of it. And isn't it just grossly unfair to get all the side effects and none of the benefits of pred?

My theory is that pred causes so much acid that it becomes toxic to me. I have recently been trying to eat a more alkaline diet and it seems to reduce my symptoms. Also, I don't know about you but I can't sleep on pred! Sleeping is kind of important in the healing process.

Hi ElpisUnbreakable.. I might look into an alkaline diet for a while. The pain is so constant and nagging it's relentless! And yes-the sleep is a massive problem, I'm going to bed at 8pm and just laying there with my eyes closed, but fully awake, for what seems like hours..! And then almost hourly I'm waking up for 5-10mins at a time (I've taken the clock out of the bedroom so I cannot worry myself over what time it is!)..

chronicwellness-thank you for your reply. I have considered taking time off, my IBD nurse said to think about it, and I took one day off two weeks ago, but my partner works from home-he's a furniture restorer so there's always machinery going and dust everywhere, so I'm not sure whether I'd get the rest I crave..! I'm looking forward to a 4 day weekend this week, and on 18th September I'm taking three days away to go and stay with my mum-sometimes that's all we need-a mum-hug!

I know what you mean about wanting to keep up with healthy people-I feel I probably am pushing a bit too much, by going to the gym three times a week and by waking myself an hour earlier than usual to be sure I can get to work on time, but my job isn't stressful, and so I don't think people quite get it when I say I need some down time..

Thank you for the positive thoughts-they are received with gratitude and a smile.

Thanks U B Tough-it's certainly something I've been aware of. I've been living on pasta and cheese, white rice, and boiled or mashed potatoes (with carrot mashed in, too!) for a couple of weeks now. I'll eat bananas too, which seem to be a good food for me, and boiled eggs! Cake also seems to go down well-not much nutritional value but hey, I get a good sugar rush from it!

I struggle when I'm not flaring to find foods I can tolerate-salads are certainly a big no-no regardless of the current state of my UC, a reason I've asked (alas to no avail) to see a dietician..

Thanks for the advice and support!

Oh yes-extra olives, too!!! I never thought I'd miss raw red onion, either! I still eat quite a lot of cheese-I tried to cut out dairy all together but I battled finding things I could actually eat! Baked feta is a favourite when all is Ok!

I tried GF, but it seemed o make no difference-and the GF pasta was rancid! so I just stick to white rice and pasta-as unhealthy as it gets but hey-ho! Must give the body what it needs ;-) !!