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Is anyone having success with humira?

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Ulcerative Colitis
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Posted 9/29/2015 4:34 PM (GMT 0)
Due to financial reasons, I have to switch from remicade to some other treatment plan. If you are using humira, I would appreciate you sharing your results or lack of them.

Mike Whitehurst

On remicade since 2006.
Allergic to dipentum or 6MP
Cannot tolerate oral asacol.
Used prednisone for over 10 years, but been off of it since 2007.
Almost had my colon removed in 2007.
Posted 9/29/2015 10:53 PM (GMT 0)
I switched to humira last year when I was becoming more difficult to obtain IV access. I'm not a great candidate for a port because I have a clotting disorder. Almost immediately after the loading doses, I experienced horrible pain in my feet and could barely walk on them. After seeing all the usual specialists, I was dx with neuropathy and my pain management doc agreed that it was either humira triggered or autoimmune triggered. By the 3rd month of injections, my UC cramps had returned, which had never occurred with remicade and in general, I did not feel well on the drug. I started to get a giant hive at the injection site as well. Overall, not the right drug for me. I know others have had more positive results.
Posted 9/30/2015 12:50 AM (GMT 0)
I have been in remission for three months, after a five year flare because of humira
Posted 9/30/2015 12:52 AM (GMT 0)
i did pretty bad on it. it gave me c diff very fast so i only took the loading dose. ended up having four hospital stays that year.
Posted 9/30/2015 1:18 AM (GMT 0)
Keep in mind...if they are doing great on Humira, they may not be here. It works great for me.
Posted 9/30/2015 1:29 AM (GMT 0)
also, have you looked into getting financial assistance with remicade? i just lost my insurance last week when i turned 26 so i called johnson and johnson (maker of simponi) and they agreed to cover my simponi injections 100% until i get insurance. they were so nice about it.

here is their website.

http://www.jjpaf.org/medications/
Posted 9/30/2015 1:35 AM (GMT 0)
Thanks for the input. It sounds like I may need to find a way to pay for the Remicade.
Posted 9/30/2015 1:57 AM (GMT 0)
Remistart gives me up to 10k a year towards remicade.
And by that time my deductible will be met ( this year I don't have to worry about my deductible because my hospital stays helped me meet it rather quickly)
Posted 9/30/2015 2:22 AM (GMT 0)
Humira (in conjunction with 6MP) didn't even put a dent in my symptoms. Unfortunately my health deteriorated to the point where I had to be put back on prednisone shortly after completing the loading doses and having injected myself weekly for several months. I was able to achieve temporary remission during prednisone and tapering prednisone while switching over to Remicade and staying on 6MP.

I understand your cost concerns, but if remicade had worked well for me I think I would've been hard pressed to switch to another, less effective biologic.
Posted 10/3/2015 7:59 AM (GMT 0)
I've been on Humira for about 5 months now. I have loads more energy, a decreased appetite and weight loss, and partial success in terms of healing. I still have an unhealed patch on my left and at the caecum. Although the Humira hasn't been a great success in terms of getting me into remission I like the energy boost after struggling with fatigue for more than a decade. I do feel as though at the moment I have my life back.
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