Restless Colon Syndrome

I also have restless leg syndrome
I takeHylands Leg Cramps PM works every time especially in the middle of the night
We don't need this on top of UC!

Keep us posted please, you might be on to something!!!

I don't have restless leg syndrome and can't imagine my GI would give me a script (like you got for Requi) to treat my IBS....are you sure it's not just in the process of bunging you up in the colon? Since I have IBS-C I'd be scared to take anything that might bung me up...and what kind of side effects were you having that almost made you go to the ER?

Oh my!

And what happened to your spleen? why was is removed? Just curious.

I've never had restless leg syndrome, closest thing I've ever had was growing pains in my legs as a kid and they were killer, don't know if it's anything like that but I'm sure RLS sucks too.

I've actually been surfing the net a lot today and I'm planning to see my GP this week about some things I've come across that seem to pertain to me. One of them being what's called, premenstrual dysphoric disorder which is a step worse than pms, and I fit it perfectly (sadly) but when I started reading about it, it made perfect sense and one example is when I get annoyed with you lol, not trying to be a hag, just trying to explain what happens and you as well as some others are perfect examples so bear with me...I started keeping track of lots of things that go on with me 10 days prior to my menstrual cycle and that's when I get to be a hag with you and my hubby and even my son and although anyone can set me off (females too) it's men that really get under my skin but the point is, I get over the top angry over nothing that's worth getting angry about...I still do the yoga and meditation which has helped but not effective enough and I think it's because of the stupid hormonal things that happen to me AND that just happens to be when my gut starts acting worse too, for example, I get really bent out of shape (due to the hormone changes) and my gut starts to feel way worse, once it's passed then everything calms down to a point that is much more livable for me and those around me lol. I'm also going to ask my family doc about doing a SIBO test on me because I think that may be an issue as well but I'm not sure so I want to get tested and see where that leads.

Yes, I don't think any doc would RX that to anyone unless they are suffering with RLS, who knows though, maybe in the future they'll discover it as a cross over drug for gut issues too...glad you've found some help with it and good that you seem to be over the side effects, that must have been scary for you.

Hi garylouisville.

I was just wondering what your symptoms were from ITP ? If I remember correctly, I had a cousin many years ago that I think had it. She lived in another state so I don't recall exactly what her symptoms were, but I'm guessing they were mild. Apparently she just outgrew it.

Were your symptoms life threatening ?

Good for you taking control of your health !

That's quite interesting Gary.

Nerve damage/altered nerve function is something that is associated with IBD and IBS as you are well aware.

I always forget to mention this when everyone argues about IBS, but basically another way to look at the role in IBS type symptoms for those of us with Inflammatory Bowel Disease might be think about nerves in general.... One thing stands out:

After damage they are SLOW to heal..

This is pretty common to all types of nerve damage. When we get IBD there is massive changes in the structure and damage to our intestinal tissues including the nerves (metric plexus). If the nerves are slow healing we might get the continual effects/symptoms of nerve damage for some time - i.e. poop more often/altered motility and so on.

So perhaps for some of us that do reach remission it just takes time to heal and get to that coveted 'one poop' kinda day...

Maybe you found a way to cheat to it and speed things up! Would be awesome for you if it holds.

Keep us posted.

Symptoms were easy and spontaneous bruising for no apparent reason and long bleeding times. The platelets in your blood are what stops the bleeding. Children can get the disease and sometimes outgrow it so it is possible that is what happened to your cousin. Some others can get what they call an acute case of low platelets which often resolves on it's own or after discontinuing something like a med that was responsible for the low counts. Others, like me, had the actual autoimmune version which is chronic like chronic IBD. Normal platelet counts are around 150,000 to 400,000. My count at diagnosis was 4,000. Anything under 50,000 is bad and anything under 25,000 is very serious. The platelet count from a blood test is a rough estimate and can be off by several thousand one way or the other, so, my count could have theoretically been near zero. At that time I had blood blisters forming inside my mouth just from chewing food. With counts under 50,000 and particularly under 25,000 you are at a very high risk of strokes or anneurisms or bleeding out just from a bad injury such as a large cut. A car or other accident such as just hitting your head on something could be fatal as could anytime your blood pressure rises such as heavy exercising or hollaring at someone. Anytime you have counts that low your life could end at any second, even though many live with counts that low for many years and never suffer a fatal event. In most cases you don't really notice that there is anything wrong with you (such as the everyday life that sucks with UC) and can live a fairly normal life, other than the knowledge that you literally could die at any time and really have to constantly take precautions that you don't have any kind of accidents. Treatments can bring your counts up to the safer range but, like UC, some just don't respond to treatments.

My current take on IBS is that there are certain people who get food poisoning which does nerve damage which gives them IBS. That's pretty much accepted by the medical profession now. Then there are those with IBD who also get diagnosed concurrently with IBS. For those IBD'rs that really do have IBS I believe it is because the colon inflammation which gave them IBD also inflamed the colon nerves, giving them IBS. Of course some IBD'rs could also get food poisoning and IBS from it. Nerves all over the body heal slowly and sometimes never heal so when you take IBD meds that put you into clinical remission your are still left with colon nerve damage, or IBS. I still believe that there are many IBD'rs diagnosed with IBS that was just a scapegoat diagnosis that their doctors pulled out of thin air, often with little thought process, other than they are stumped so they just decided to blame it on IBS. Since the nerve damage in IBS messes up the communication with the brain, making your colon "irritable", I believe that Requip might help with this process as it does with RLS or Parkinsons.

I just had a kazillion blood tests done and absolutely everything was in the normal range except the calcium level was like .2 higher than normal. I take a lot of rolaids type things. Tried a bunch of things over the years. Had something called q-vel many years ago which worked wonders but was taken off the market. Don't know why but it had Quinine in it and that is a risk factor for ITP. The requip is the first thing that has worked since then, out of several otc selections, although I never tried Coenzyme Q10.

This is a pretty good link, don't think I've posted it, not even sure where I found it lol...


http://www.intechopen.com/books/the-amygdala-a-discrete-multitasking-manager/the-irritable-bowel-syndrome-how-stress-can-affect-the-amygdala-activity-and-the-brain-gut-axis

Talks about post infectious IBS.


This link talks about RSL and IBS/SIBO being related, not sure if you've ever come across this connection or not...I'd hate to end up with restless leg syndrome.

http://www.ncbi.nlm.nih.gov/pubmed/21570907