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ssi qu biologics trial

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Posted 10/5/2015 6:01 PM (GMT 0)
Just got accepted to the Ssi trial if anyone is in the same boat or has any questions. I got my first injection today and will be every other day now for 40 weeks and after 8 weeks they will adjust dose if needed.
Posted 10/5/2015 6:12 PM (GMT 0)
an injection every other day? for 40 weeks? How long is the injection?
Posted 10/5/2015 6:33 PM (GMT 0)
Exciting. Good luck, keep us posted.
Posted 10/5/2015 7:23 PM (GMT 0)

Bull101 said...
an injection every other day? for 40 weeks? How long is the injection?

Injection is not an infusion.... so a few seconds depending on how brave you are
Posted 10/5/2015 9:08 PM (GMT 0)
That's fantastic - congratulations, this is the most promising treatment around as far as I know. Please so keep us up to date with how you and getting on. Good luck!
Posted 10/5/2015 9:26 PM (GMT 0)
I can't wait to hear about your results - hopefully outstanding results :)

Are the trials only being conducted in Canada at this time?
Posted 10/5/2015 11:39 PM (GMT 0)
Yeah guys it's just like a needle used for insulin. Also I'm not sure about only Canada I thought I heard they were approved in the US somewhere. I will Def keep you guys posted. I watched Tyler Wilson's chrons video on you tube and he was on this therapy and went into remission and has stayed that way for 3 years I think.
Posted 10/5/2015 11:39 PM (GMT 0)
Hey this is awesome. Finally someone on the board has a chance with this study.

Best of luck! and I'm sure a LOT of people are going to follow this thread very closely!
Posted 10/6/2015 1:06 AM (GMT 0)
Here's a link to the trial. It's Canadians only, open-label:

www.qubiologics.com/clinical-trials/ulcerative-colitis/
Posted 10/6/2015 3:06 AM (GMT 0)
VerM, take a look at these:

www.crohnsforum.com/showthread.php?t=58980

www.crohnsforum.com/showthread.php?t=60661

www.crohnsforum.com/showthread.php?t=62919
Posted 10/6/2015 10:27 AM (GMT 0)
Please keep us posted. On the crohns forum it looks like it didn't work for the three posters in the first thread. Tangentially I did note one of them says she developed crohns after an iron infusion--made me think of the MAP research showing it thrives on iron...
Posted 10/6/2015 9:25 PM (GMT 0)
After first shot nausea - no throwing up but close 2nd shot tomorrow I'll keep on updating. No change in symptoms bm wise etc. Been in bad flare lately so it will be easy to tell if any improvement.
Posted 10/9/2015 3:16 AM (GMT 0)
Hi VerM,

Just wanted to check on you and make sure you were doing ok after your 2nd shot. Hopefully you didn't have any bad reactions or anything crazy like that.
Posted 10/9/2015 3:28 PM (GMT 0)
All good 3rd shot this morning - Def improvements down to 3ish bm a day from 10 - 20 liquid and blood from last week. Was in a flare last week for sure so keep that in mind. No weird side effects or allergic reactions except the injection site is red and tender which they said would be normal.

Still a bit of urgency but I am improving for sure so this is a good sign.
Posted 10/10/2015 1:08 AM (GMT 0)
Wow - that sounds pretty darn good.. That's the kind of drop in bm's many get from starting pred.

Hope you continue to see success.
Posted 10/10/2015 2:04 PM (GMT 0)
Thank you for sharing your experience. Was wondering if you are on any other meds while on this?
Posted 10/12/2015 8:04 PM (GMT 0)
Hey guys on 4th shot this weekend was rough was so sick threw up a lot and felt like my body was trying to purge itself - like when you have norwalk or something - calming down again but man horrible weekend. Tons of nausea as well. Maybe drug reaction maybe bad luck and a stomach virus who knows. I'll keep posting as we go.
Posted 10/12/2015 9:43 PM (GMT 0)
Hey I start my trial tomorrow! 10-15 BM a day. Hoping for the best. I will also post. verM sounds like we are starting around the same time!
Posted 10/13/2015 11:46 PM (GMT 0)
Keep us posted! Another shot for me today calmed down from the weekend I think it was 4-5 today not too solid.

No other meds for me they asked me to stop everything for 2 weeks prior to starting.
Posted 10/14/2015 3:32 AM (GMT 0)
Keep updating. Wishing you both luck!
Posted 10/14/2015 4:09 AM (GMT 0)
Had the shot today, have not noticed anything out of the norm, only a little tender at the site of injection.
Posted 10/14/2015 4:11 AM (GMT 0)
if you have tried other injected biologics
is this more painful than humira or simponi
im just curious
(i havent taken either humira or simponi)
Posted 10/14/2015 4:28 AM (GMT 0)
I have never tried any other injections.

Guess i should give a background of myself before more questions start rolling in

26 year old Male
Diagnosed with mild-moderate UC Oct 2013. Now moderate-severe as of last week.
10-15 BM a day, blood, mucus, major urgency

As far as drugs go, I have tried several different ones asocol, salofalk, sulfasalozine, prednisone..etc (no biologics) and nothing seemed to work.

I have not taken any drugs in about a month, so I will be doing this trial without anything else.
Posted 5/1/2017 10:12 PM (GMT 0)
Hi Everyone,

Just wanted to check in here as I saw very promising interim results posted by Qu about this treatment (in Chron's setting). You can check out the public data here:

http://www.qubiologics.com/high-response-and-remission-rates-in-anti-tnf%ce%b1-naive-patients/

I hope that it worked great the UC folks here that tried it too. Sounds very promising and exciting to me; I'm sure it does to others too!
Posted 7/15/2017 3:59 AM (GMT 0)
Any updates, CMac and VerM?

Sorry to bug you -- hope all is well and this worked for you; I'm interested in the study and intrigued by the interim results that were posted (see above)!
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