Prednisone not working - still taper?

Ugh - this is getting so frustrating! On my 5th day of 40 mg prednisone and the bleeding is back. I called my GI nurse and she told me to still taper down to 30 mg starting tomorrow and that she will call me after discussing with the dr. Why would I reduce the dose if the current dose isn't working?
I have an appt for this Friday...I'm looking forward to discussing directly with the GI instead of this constant go between with the nurse😤

Leslie - age 37
Dx Aug 2015 with moderate active non specific chronic colitis.
Canasa - didn't work
Pred - current - not working

I think it's too soon to say it's not working, but if you taper, it may slow progress if any has been made. I would probably tough it out for a while longer on the high dose but I know not taking your doctor's advice is not a great option. It's to be on the same page with your doctor's office..

I think there is a tipping point where you don't have results at 40mg, and either you try a higher dose, or you taper off regardless of symptoms but I am not sure 5 days is enough time - I like to give it about 10 to see if there are significant results. I'd never not had response in that timeframe.

the nurse can't tell you not to taper. No staff at a medical office, except a MD can change a doctor's prescription (except maybe emergency reactions). Saying to follow the prescription until the nurse can get instructions form the doc is the only option.

Now a well set up office would allow the nurse to check with doc and get back to you same-day. Not all offices are well set up.

That said, 5 days is not too long. Some people get results in 2-3 days. Not all. Some people need 60mg. Some need IV.

Thank you all for your responses!

The rx I got last Thursday was for 5 days at 40 mg, 5 days at 30 mg, 5 days at 20 mg and 5 days at 10 mg.

Guess I will just follow dr's orders at this point and see if/what I hear tomorrow. Have a good night all!😄

Nurse called and said the GI wants me to continue the prednisone taper down to 30 mg as originally prescribed but wants me to start the Canasa again.
Hopefully it works but I'm not feeling too optimistic at this point...