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Ulcerative Colitis
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Posted 10/18/2015 12:17 AM (GMT 0)
After thinking this was something I ate, I've come to the realization that I am no longer in remission:( there is sometimes only bright red blood, sometimes blood in the stool. I'm sad. I don't want more medication. I'm on 50mg of 6mp and 4 lialda daily. Dr. Said we can try cortifoam for a few weeks and see what happens. I'm so young and none of my friends have this and no one understands me. I know it's ment to be its just hard sometimes when I have no one to talk to. If anyone has any suggestions I'd really appreciate it. I also take vsl#3 when I remember and that's about it.
Posted 10/18/2015 12:38 AM (GMT 0)
I'm not a 6mp expert but that seems like a low dose. Have you been tested for "therapeutic" level on that?

If you have not been using mesalamine enemas at night you really need to use them for a couple weeks. And if your GI has never suggested enemas to you then you need a new GI. Get the RX first from your current GI then go GI shopping for someone better.

Use the enemas every night at bedtime even after bleeding stops. Then you can transition to suppositories. Yes enemas are not as easy as taking a pill but they work and can help you heal. VSL#3 is good (I've used it) but it does not help bleeding.

Take it one day at a time. Yes it sucks that you are young and should be out having fun not talking about RX meds. Get healed first and then go out and have fun.
Posted 10/18/2015 12:50 AM (GMT 0)
6mp dosing is different than imuran. Because imuran essentially turns into 6mp in the body a lower dose is less potent of imuran.
However maybe go up to 75 or 100 mg of 6mp.
Rectals are a good idea too
Posted 10/18/2015 1:23 AM (GMT 0)
He did recommend enamas. He's an amazing GI would not give him up ever. I chose cortifoam cuz it's easier for me to hold in. But if your saying enemas are better then the foam, then I will request a script.
Posted 10/18/2015 2:27 AM (GMT 0)
I am sorry. You have a lot of options at least. You are young and whatever happens, there will be a happy future. Try not to stress.
Posted 10/18/2015 3:27 AM (GMT 0)
Thanks. I'm trying. But being in college, working, volunteering and dealing with this is hard. I'm usually very positive but today wasn't one of those days.
Posted 10/18/2015 4:48 AM (GMT 0)
Sophora, I am sorry to hear this. I upped mine a few weeks ag0, I just added another half a pill, so I take 75 a day now.

I am holding strong but trying lots of anti inflammatory foods too. Walnuts, fish, etc.

Also adding curcumin this weds as well as tart cherry pills.


Keep trying!!!!!
Posted 10/18/2015 5:02 AM (GMT 0)
You went up to 75? Is it helping?
Posted 10/18/2015 2:26 PM (GMT 0)
Yes, I felt like I was teetering and the blood tests showed I was not at therapeutic levels. I added a .25 in the morn and same at night so 75 a day. Just that much more has made me super tired and now I can't drink wine as I get wicked sick, even with a couple of glasses, like a really bad hangover feeling.

But I am still in remission but I hate to take it. I feel winded and just unwell, I think it's the drug. I am looking into curcumin and other things to start taking as well. If I have to go off it, hope that will work, and just try to counter act the effects of 6mp on my body!
Posted 10/18/2015 3:19 PM (GMT 0)
I hear you. Same here I'm not at a therapeutic level either. Why don't you try taking the whole thing at night? That's what I do. And I thank Gd have no negative effect from it
Posted 10/19/2015 4:25 AM (GMT 0)
Will wait to see what blood tests say next month! Good idea though! Have you tried splitting the dose? Maybe keep it more steady?
Posted 10/20/2015 3:09 AM (GMT 0)
Oh never thought of that. Either way, I'm not at a therapeutic level, so increasing my dose might be the answer
Posted 10/20/2015 5:14 AM (GMT 0)
I see no other way!
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