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Bleeding for 6 months, pain now

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Ulcerative Colitis
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Posted 11/23/2015 4:31 AM (GMT 0)
I started symptoms of UC at the end of this past April and was diagnosed shortly after. I have been on lialda since the beginning. Put on ucerisis recently but only got worse. I only tend to go to the bathroom 3-5 times a day however the bleeding has increased and not going away. Blood soaked toilet paper, bloody mucus, red toilet water, etc. Lately I've been experiencing cramps and feeling constipated today even though ive gone to the bathroom. My stomach and lower back hurt with pressure feeling down below.

I want so badly to get pregnant but am afraid this will hinder actually getting pregnant or make for an awful pregnancy
Posted 11/23/2015 7:59 AM (GMT 0)
Welcome to the forum. This has been going on for too long. Have you been on prednisone? Also Lialda itself doesn't seem to cut it anymore. You may have to go up a tier and try immunosuppressants or even biologics.

about pregnancy, it depends on how you overall feel. I know I'm too weak for a baby and I also don't want my UC genes passed on to my child therefore I decided not to have kids.
Posted 11/23/2015 12:17 PM (GMT 0)
Since April is too long to go while flaring that badly with blood and the works. How recently were you put on uceris? Steroids generally work within 2-3 weeks and put your symptoms in control while other uc maintenance medications are tried. If uceris doesn't work then you might want an oral prednisone. You're going to have to get aggressive in treating your uc.

Clearly, lialda isn't strong enough for you on it's own. You need some much stronger uc medications like immunomodulators (Imuran, 6mp, aza) or likely biologics (remicade, humira, simponi) to the lialda.

A number of people here have had happy and healthy babies despite their uc and their medications. However, you got to tame your uc symptoms, and get that under control first...
Posted 11/23/2015 2:22 PM (GMT 0)
Since no one else asked have you tried any rectal meds? If your feeling constipated and having pressure and pain down there then you need to be treating the inflammation there. I suggest asking your doctor for Mesalamine enemas or steriod enemas or both!
Posted 11/27/2015 1:22 PM (GMT 0)
I have also been flaring since march, started UCERIS last week no more mucus just blood like you said soaked, predinsone stopped working for me and side effect well... also on steriod enima
Posted 11/27/2015 1:36 PM (GMT 0)
I agree to start rectal meds to help with inflammation. However if you are having tons of BMs daily they won't work as well as you heal you will be able to keep them in longer and than you will heal more.
What dosage of lialda are you on? Hopefully 4.8g

You may want to add something like imuran or 6mp and a prednisone taper ( start high and slowly lower) to carry you through until the meds kick in.
Yo can also skip straight to biologics like remicade and since those sometimes work faster. You may not need prednisone to carry you over the Uceris may be enough.


Good luck.
Posted 12/3/2015 1:27 AM (GMT 0)
Thanks guys. The Friday after thanksgiving I started a paleo diet. No dairy, grains or processed food. Even though I continued to see blood and mucous, I felt like I saw a slight improvement. In the mean time I was out on 4g nightly of mesalamine enema. Immediately after doing one my blood is back bad and my tailbone area hurts along with pressure down below. I've only done two days in a row of the enemas. Not sure if it is a Flook or a side effect

Post Edited (Shockleej) : 12/2/2015 6:35:21 PM (GMT-7)

Posted 12/3/2015 1:54 AM (GMT 0)
I know there are a lot of pregnancy horror stories but there are also a lot of positive ones. A friend of mine went into complete remission for really one of the first times when she got pregnant. (Things did get a little dicey after the pregnancy but she was able to control it.) It would make sense to me - your body stops attacking itself when there is life there.

Lots of pregnant women on remicade too.

You probably already know this but having the surgery will reduce your chance of conceiving.
Posted 12/6/2015 9:12 PM (GMT 0)
UPDATE just took two positive pregnancy tests!! If my bleeding would go away, I'd be the happiest woman ever!
Posted 12/6/2015 9:41 PM (GMT 0)

Shockleej said...
UPDATE just took two positive pregnancy tests!! If my bleeding would go away, I'd be the happiest woman ever!

Congratulations!
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