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Have you ever gotten different side effects when returning to Prednisone ?

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Posted 12/20/2015 6:29 PM (GMT 0)
Of course each person reacts differently to Prednisone. I am interested in your side effects and whether side effects changed when you started taking Prednisone again after some time ? Were there any differences when you used it during winter compared to summer (sun exposure) ?

Thank you
Posted 12/20/2015 7:45 PM (GMT 0)
Every time I have to be on prednisone, it's a different experience including how effective it is. The most difficult thing about Pred for me is the speediness, lack of sleep, I get so serious about anything and everything, it's terrible. There have been times when Pred knocked down a flare in less than a week and other times when it does nothing, go figure.
The most I've been on is 80mg, it was not a good time…
best of luck to you.
Posted 12/20/2015 8:55 PM (GMT 0)
Hi! I have had a flare since this past June, and since very high doses of Prednisone stopped working about three years ago, my Dr. was reluctant to put me on it again. I am on weekly Humira shots, ( starting to build antibodies against it ) Lialda, and started with 40 milligrams of Prednisone about two months ago, now down to 20. Prednisone gives me a huge appetite , and gives me anxiety and agitation. I have slight blood in my stools , but if I go back to 30 mg. my anxiety gets worse .
When I was on it three years ago, I was on 60 mg. to start and weaning off of it took forever..I didn't feel the anxiety that I feel this time around. I have to be on it.. Waiting to start Entyvio, in 2016- if Medicare will pay for it. Have to be on Prednisone for at least another 2 months. Also love the moon face it gives me?.
Good luck!!!!
Posted 12/20/2015 9:07 PM (GMT 0)
It's been well over a decade since I've been on pred, with me it never really gave me side effects other than racing mind the first time I went on it and gave me about 2 weeks of some relief then the 4 more times I went on it I got nothing out of it, including nothing much for side effects either.
Posted 12/20/2015 9:34 PM (GMT 0)

pb4 said...
It's been well over a decade since I've been on pred, with me it never really gave me side effects other than racing mind the first time I went on it and gave me about 2 weeks of some relief then the 4 more times I went on it I got nothing out of it, including nothing much for side effects either.

Racing mind? How was that? I noticed my thoughts are different, but I didn't think much about it.

Edit:
I googled and probably don't have it. People mention that they can't sleep because they can't calm down...
Posted 12/20/2015 9:41 PM (GMT 0)
I always get the same side effects. i get fat, mood face, acne, irritable, joint pain/arthritis, insomnia, hairy. lol.
Posted 12/20/2015 11:32 PM (GMT 0)

emilp89 said...

pb4 said...
It's been well over a decade since I've been on pred, with me it never really gave me side effects other than racing mind the first time I went on it and gave me about 2 weeks of some relief then the 4 more times I went on it I got nothing out of it, including nothing much for side effects either.

Racing mind? How was that? I noticed my thoughts are different, but I didn't think much about it.

Edit:
I googled and probably don't have it. People mention that they can't sleep because they can't calm down...

It wasn't fun actually, my mind would literally race from thought to thought in a short period of time, I was also more physically charged too, not just mentally....I could exercise with tons of energy while on pred if I wanted to...back then though I wasn't exercising as I was super thin and didn't have the means to (no home gym and wouldn't risk going to a gym).
Posted 12/20/2015 11:34 PM (GMT 0)
Also, the racing mind did make it difficult to sleep as well since it was continuous, it was exhausting actually lol. And I already had insomnia issues since I was a kid so I hated pred for the racing mind side effect but it only happened the first time I went on it...never happened the four more times I was on it after that.
Posted 12/21/2015 9:04 AM (GMT 0)

notsosicklygirl said...
I always get the same side effects. i get fat, mood face, acne, irritable, joint pain/arthritis, insomnia, hairy. lol.

That's a lot of side effects... I wonder why some people have more of them.
Posted 12/22/2015 4:20 AM (GMT 0)
ugh! prednisone! works to calm flares however I call it my instant angry pill. 45min after taking I feel upset about the whole world! also I cannot control my appetite and gain weight. long enough and my face gets moony and I have more hair growth. I am weaning down on a course right now and cannot wait to be off.
Posted 12/29/2015 11:25 PM (GMT 0)
I am not sure whether this is from Prednisone... I have a problem with frequent urination. I also have a feeling that urine is leaking when holding longer, but then I check and see that it is not.

This started happening when I was on Dexamethasone IVs. I hope this will pass.
Posted 12/30/2015 1:37 AM (GMT 0)
I just started prednisone again yesterday so we will see.

This is my third time on it in 2015. First time lasted 6 months and I didnt get too many side effects while on it but once I went off I got pretty bad acne on my face and back/shoulders. I think by taking it early in the day Helps avoid the racing thoughts/insomnia.

The second time was only a 3 week taper starting at 15mg before my first remicade infusion to see if I could get it somewhat in control.

I really didn't want to go on it again but Im boarding a flight in about 20 minutes and going to New York for a five day vacation. I started yesterday at 20mg and am planning on doing a 20 day taper going down 5mgs every 5 days leading into my next infusion. I only did it this time so I could enjoy my trip and hopefully feel a little better over the next week. Just a little safety blanket that hopefully subsides the urgency and frequency for a bit.
Posted 12/30/2015 5:11 PM (GMT 0)
I had a really achey body last night which carried over to today. Kind of have a headache and had chills throughout the night too. Dont really remember those side effects before so thats fun...assuming its from the prednisone. Hopefully it doesnt last.
Posted 12/30/2015 5:30 PM (GMT 0)
or it could be a bonus you received during your flight -

hopefully it resolves soon -
Posted 12/30/2015 9:02 PM (GMT 0)
I tend to get the same side effects, but sometimes they come on more quickly or more severely despite the fact that I always start at 40 mg and always follow the same taper schedule. The first time I took it, insomnia only bothered me for a few weeks, for example. Then when I took it most recently, insomnia was a problem the entire time I was on it.
The big fat face and appetite increase are constants.
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