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Posted 1/1/2016 10:35 PM (GMT 0)
For the new year, I am trying out this SCD diet. I have a few questions, and would love to hear your stories.

Has this diet worked for anyone?

Has anyone used a yogurt maker to create the special yogurt? Could you recommend a yogurt maker brand?

Thanks!
Posted 1/1/2016 11:37 PM (GMT 0)
I tried the diet and didn't have luck. It may have helped me to maintain if I had tried it when I was in remission, but I tried it in a severe flare up, and didn't notice any improvement in symptoms. On the other hand, if I had been in remission, it would be difficult to tell whether it was doing anything.

I have a tribest yogurt maker. I have heard of people making it without a yogurt maker, some do it in the oven with the pilot lit. I like to do it in the yogurt maker because it keeps the temperature very consistent. I usually buy cultures, some people use store bought yogurt as the starter. I have seen a lot of good reviews for the EuroCuisine maker and it's only $20 on amazon. I think I got the tribest because you can make a big container or a small one.
Posted 1/1/2016 11:53 PM (GMT 0)
hey dis -

i have tried neither - i do better with kefir & my own custom diet -

are you still flaring or do you need to update your signature ?
Posted 1/2/2016 12:47 AM (GMT 0)
SCD diet helped DD to a great extent.
DD followed SCD diet for close to 2yrs.
While flaring- this diet greatly helped her with her symptoms. She got C.diff while in diet. Did fecal transplant and followed the strict diet for another year .Gained remission due to Fecal transplant but gained all her weight back in 1 year while in SCD.
We bought yougurmet yogurt maker from Amazon. And I still uses it.
Posted 1/2/2016 12:55 AM (GMT 0)
I am still in a flare right now. The prednisone isn't working this time around like it did last time. What is your diet like?


juststud said...
hey dis -

i have tried neither - i do better with kefir & my own custom diet -

are you still flaring or do you need to update your signature ?

Posted 1/2/2016 1:03 AM (GMT 0)
Thanks for sharing! Hopefully I get the same results.

I just ordered the Yogourmet Maker. Should be here in a few days. :)



Bloom93 said...
SCD diet helped DD to a great extent.
DD followed SCD diet for close to 2yrs.
While flaring- this diet greatly helped her with her symptoms. She got C.diff while in diet. Did fecal transplant and followed the strict diet for another year .Gained remission due to Fecal transplant but gained all her weight back in 1 year while in SCD.
We bought yougurmet yogurt maker from Amazon. And I still uses it.

Posted 1/2/2016 1:10 AM (GMT 0)
Hi Disneygirl, I have recently been diagnosed with UC and went onto the SCD mid flare.

I can put my hand up and say I had success with the diet as I was unmedicated when all symptoms including urgency/pain/blood/mucus stopped a couple of months back now.

I have stuck strictly to the diet and ensure that all animal products are grass fed wherever possible and if I am ever unsure of anything I just leave it out at this early stage. Just stick to the book and give it time until you find out whether it works or not for you. It doesn't work for everyone so keep that in mind.

I make my own 24hr yoghurt and consume it at breakfast and also in the evening as a desert with stewed fruit as I seem to be handle that well now. I use a basic yogurt maker and nothing too complicated or expensive like this one http://greenlivingaustralia.com.au/yoghurt-maker

I do use mesalazine foam enema twice a week now for maintenance at the recommendation of my GI. My GI is very open minded about the diet and other methods but wanted to make sure I have all bases covered just in case the diet doesn't work out in the long run.

Good luck and Happy New Year!
Posted 1/2/2016 3:48 AM (GMT 0)
I suggest you look at the Univ. Massachusetts IBD-AID diet, which has a clinical trial to support it. Some similarities to SCD, but allows more carbohydrates.

I am improved on that diet, allow it is coincident with new drugs, so it might not be the diet that is really helping.
Posted 1/2/2016 6:19 AM (GMT 0)
I have improved greatly on SCD but I don't believe that the diet alone can bring you into remission. Take it from me to not try to go off your meds and do diet alone if flaring.

I completely agree that we have a gut dysbiosis that contributes to the disease
Posted 1/2/2016 2:07 PM (GMT 0)
Uc is very, very individual. No diet modification is going to work for everyone, universally. I have yet to find a diet modification that helps my uc symptoms at all.

If you're flaring badly, I'd see your gastroenterologist. Flares have a tendency to get exponentially worse when not well treated. I'm a firm believer in hitting a flare early and hard. Leave the diet modifications for lingering symptoms when you're mostly healed as they help some, but won't stop a raging flare in its tracks.
Posted 1/2/2016 3:24 PM (GMT 0)
I did the diet for about 8 months and still bled. However I did the yogurt and I got my yogurt maker off amazon. Mine only did 16 hours so I had to add a few hours before they ran out to make it 24h. Not sure if there is a yogurt maker out there which has 24h by design. As a starter I used the plain yogurt from Danone.

I would also suggest to add lots and lots of spinach to your diet. You can search this forum for the spinach & sunflower seed diet. I think that the spinach greatly reduced my bleeding.

Hope you get better very soon.
Posted 1/2/2016 4:07 PM (GMT 0)
I eat tons of spinach too. It is one of the few vegetables that I can eat even raw. Never causes problems. And it is odd because similar veggies like kale just kill me.

Casey_LB - I have never heard of the Massachusetts IBD-AID diet but I pretty much eat a very similar diet now. When I googled it, I found some very helpful recipes that look super easy. When I tried the SCD diet, I was just miserable. Without some starchy carbs, I get very grumpy. Carbs keep the serotonin and dopamine levels in our brains functioning so I am just not sure it is a diet that would work for everyone. It just made me sad and I actually don't usually feel that way. But maybe I needed to give it more time.

recipes here: http://www.umassmed.edu/nutrition/ibd/ibd-aid/
Will have to try the Zucchini Lasagna....

This diet looks very reasonable. thanks for sharing!
Posted 1/4/2016 1:12 AM (GMT 0)
I've been doing the diet since the day I was diagnosed which was hmmmm 3.5 years ago now ish? I agree with a bunch of the other posts here and will say the diet alone may work for 1 in a trillion to get to remission but for me the diet AND medication helped huge. I've never not done the diet, so I can't say what i'd be like not doing it- but I do believe i would be WAY worse off if I didn't do the diet, the science makes sense, "you are what you eat!" Even now after being on the diet STRICT as hell when I have a cheat moment and have a sweet potatoe or something I notice a change in gas levels.

I would recommend to stick fully to the diet at least till your in remission... now im going to do some version of SCD for the rest of my life, since I'm one of those paranoid people that Im scared of getting worse etc. so I will do anything and everything possible to try not get worse... I'm insanley thankful for this diet and vitamains being out there... I wish you the BEST - try the diet and STICK with it... it makes sense...even if you dont notice results right away.. or if you don't notice anything, you are what you eat.... its not going to make you worse you're putting REAL food in your body
Posted 1/4/2016 1:14 AM (GMT 0)
The diet kept me in remission for almost 10 years. Everyone is different. Don't let anyone tell you diet has no effect at all, but it varies for everyone.
Posted 1/4/2016 5:32 PM (GMT 0)
Thanks for you input and advice. I have almost completed the intro diet and I'm just about ready to incorporate the apple sauce. When you first started, did your d worsen? I'm not having any more blood (yay!) but I'm having lots of d.


KV18 said...
I've been doing the diet since the day I was diagnosed which was hmmmm 3.5 years ago now ish? I agree with a bunch of the other posts here and will say the diet alone may work for 1 in a trillion to get to remission but for me the diet AND medication helped huge. I've never not done the diet, so I can't say what i'd be like not doing it- but I do believe i would be WAY worse off if I didn't do the diet, the science makes sense, "you are what you eat!" Even now after being on the diet STRICT as hell when I have a cheat moment and have a sweet potatoe or something I notice a change in gas levels.

I would recommend to stick fully to the diet at least till your in remission... now im going to do some version of SCD for the rest of my life, since I'm one of those paranoid people that Im scared of getting worse etc. so I will do anything and everything possible to try not get worse... I'm insanley thankful for this diet and vitamains being out there... I wish you the BEST - try the diet and STICK with it... it makes sense...even if you dont notice results right away.. or if you don't notice anything, you are what you eat.... its not going to make you worse you're putting REAL food in your body

Posted 1/4/2016 6:40 PM (GMT 0)

Somebody said...
I just ordered the Yogourmet Maker. Should be here in a few days. :)

You may find the yogourmet runs too hot. It will still make yogurt but the author cautions against too much heat. I think it kills the bacteria or something. Some people buy a plug in dimmer to lower the temperature. If you look on amazon it will say "those who purchased this item also purchased these" and you will see the dimmer.

I ended up ditching the heating element and just using the thermometer and plastic container. I found that just turning on the oven light in my oven and propping the door open about 1/2 inch creates the perfect temperature to make the yogurt. Its trial and error but once you get it down, its easy. The yogurt is really good too. My kids even love it.
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