Uti's and UC connection?

OK

IM at my wits end! since diagnoses i have literally down to the day suffered continual UTI's and the antibiotics are what throws me into a flare. So nearly every 3 months I'm flaring again as my body seems to hang in there and just cave in after this amount of time. Now due to this i have been taking them frequently to nip the infection in the butt and continue with life as UTI's are the worst thing!

2 weeks ago i had a kidney infection and the usual antibiotics that are gentler on my system failed (Macrobantin - Nutrofarantoin) then i was prescribed Bactrim and again this did not work either, then this failed so i was put on Augmentin Duo forte. Now by this stage i was certain a flare was inevitable however i was willing to try anything and risk flaring to stop the pain ;-/ Augmentin failed also and they realised i had a very resistant bug to deal with and was put in Doxycyline, this worked however now i am flaring.

Does anyone else experience continual Uti's? I am going back to the urologist who is doing a cystoscopy as he wanted to do this some time ago but i put it off due to work and life. Im so scared that when i get another UTI i will be resistant again, i have a flare to look forward to now.

Im also convinced there is kidney issues as for sometime i have been having trouble with my voiding, i have little to NO urine stream most times and have to strain to empty my bladder & also had excruciating kidney pains since march 2014.

Blahh, im a mess yes i know..

I continually get UTI s my GI Doc said its because the fecal matter is getting in my vagina!
I wear Depends at night and any poop that I have on the Depend will cause that problem
And the only anti-biotic that works for me is Leviquin

It says you have a low Netrophil count (white blood cells) also known as Neutropenia within your signature. Having that makes you more prone to infections as your body isn't able to efficiently fight off infections on its own. That might be part of your problem. And it can lead to sepsis (infection of the blood) if your Netrophil count is way out of range.

A rarely reported side effect of Salafolk (asacol or mesalamine) is low white blood cell count. Has that been discussed with your gastroenterologist? It could be medication-induced, and clear up with discontinuation of Salafolk.

I always have gotten urinary pain but not really diagnosed with UTIs
once I had a cortisone shot and than got a UTI after, doc actually checked me out and prescribed anitbiotics
normally I used to take azo or Cystex, since getting diagnosed with IBD I have just taken tylenol and drank like 6 cups of water to flush it out
i know it doesnt cure it but it helps with the pain
im too scared to take antibiotics
id rather UTI over flare up or c. diff

Hi...You should ask your GP to send your urine away for culturing to make sure they know exactly what type of bacteria is infecting your bladder.

Interstitial Cystitis can be a willing partner with Ulcerative Colitis. I had a bout with infections and non-infections but cloudy urine. It was suspect I might have IC because of having UC...but the scope showed no signs. Once I had the scope, those symptoms disappeared.....seems maybe whatever was flushed out possibly.

If you're having testing for diabetes as well...hopefully things will be eliminated going through complete testing.

One thing is possible....you might have a tight urinary tract or stricture or something that's not allowing your urine to flow properly...that could be a reason for inflammation or infection.

For sure have a culture done at the very least...especially since you're waiting to get into the urologist, and you've been on many antibiotics.

D-Mannose is a good supplement to take if you have recurring bladder issues. As well...you have to make sure your intake of water is enough (are you having a lot of thirst as well considering you're being tested for diabetes?) I don't know what the dosage is, but it would be worth looking into I think.

q

E,coli in the kidneys is migrated from the bladder. Did they draw from the kidney to take the sample?

Did you have an MRI or CT with contrast of your kidneys, bladder and urinary tract?

As long as they continue to do more in depth investigation, you going off the 5ASA medication could be a wise one.
If it were me, I would want it to be a process of elimination as that being the last possibility.

Maybe call the Urologist office and see if you can be put on a cancellation call-list? Express your absolute discomfort, etc.... ;-)

You're in a difficult situation. I hope you get answers, for you being in such pain must be mentally taxing.

Oh, have you checked out foods with salicylates? I might have a list to post.

q

Indigo69, I get them often as well. Way more often than before I had UC.

The perks of working as a plebotemist and having scientist in a lab behind me. So my urine was done at work today and sure enough bacteria present, the scientist let me look at it and gee those little invaders are gross! Tonight they are testing it for antibiotic suceptabilty and i should have further insight tomorrow. So far i am now flaring due to all these UTI's due to the antibiotics :( Vicious cycle but i guess at least i have some sort of insight.

Hi quincy,

They are culturing it today, and the results will be sent off to the urologist. Im exhausted as the antibiotics are killing my gut, I'm in a full flare now but still not sure if it is C-Diff so dropping my stool off to the lab today for testing. Hopefully i will know by monday and i can go from there. Can't have anymore time off work really as I've had so much already for these reccurant infections. Im really getting depressed :-( Im on Salafalk supp once a day and 4g enema at night also 4g salafalk in morn oral (salafalk is asacol) Been doing the butt regime for a week now and no change. Looks like another dose of pred :-(

Came down with bad kidney infection with first flare in 2009, have taken Cipro, Floraquin, hormones etc. but UTI returns without fail. I can control it by eating very low-carb but when I slip the smell and burning returns. All you can do is try to avoid carbs and improve your immune system as it is a peripheral manifestation. I have just learned to live with it. I assiduously avoid all emulsifiers and that has helped a lot. I don't take any drugs but try to avoid sulphur containing foods, that really helps flares for me as well.

Indigo69 said...
JudeTN

That is horrible. Well my culture grew nothing in the lab but i had the opportunity to look at it prior under microscope and i saw the bacteria in my urine and the scientist said is def a UTI but then nothing grew? Im baffled and he said Iit happens sometimes. Can't wait to see the uro. Having urin infections is just evil, so painful. Not fair at all.

Hi Indigo,
Normal urethral meatus flora often shows up in the urine upon microscopic analysis -- from contamination. As you urinate, vaginal/urethral flora is picked up and lands in the cup. This can happen even if you used the disinfecting wipe first. These bacteria then multiply rapidly at room temperature and you can see them under the microscope. This is why in order to formally diagnose a UTI they look for the number of "CFUs" (Colony Forming Units). The number generally has to be >100,000 CFUs in the culture in order to be considered a UTI (this number can change pending on the situation). I will say however, that many practitioners just go by the clinical presentation to treat the presumed UTI before waiting for a culture to come back. Any more questions on the workup of UTIs let me know!
Take Care,
Josh

Oregano oil can help kill off proteus mirabilis, the bacteria associated with UTI's