CDiff

i noticed a difference the first day of taking it. by the second day, my bms go down a lot as well as all the cramping.

I was just about to hop on here and make a post about the fact that I was just given the news that I tested positive. So I can't give you advice, but we'll go through this together!

Not to hijack this thread, but any other advice about CDiff from anyone would be appreciated!

"no no no, there will be no kissing or hugging"

(dru, despicable me)

Bacon Girl said...
glogirl, were you prescribed vanco, too??

i've kind of become a c diff pro after doing 4 stinking rounds of antibiotics for it. my "routine" is always lots of probiotics- culturelle and saccharomyces boulardii. those are the only two that the antibiotic wont kill off. vanco kills off all the others like vsl and renew life so taking them during the course is a serious waste of money since the vanco is designed to stay in your system for the entire course of treatment. i am always on 125 mg, 4x daily for 1-2 months. i still eat probiotic foods during but definitely load up after treatment.

also, vanco depletes your electrolytes and gives me TERRIBLE restless legs, shakiness, dizziness, neuropathy, cramps. uhh it just sucks. make sure to supplement with magnesium, sodium, potassium and calcium or you will be miserable the whole time you take it.

Yep, Vanco. I'm currently in the middle of a prior authorization insurance issue that could take 5 business days to resolve, and an emergency supply is $865. I can't wait, I have to get this in my system pronto.

That...sounds like a nightmare. I want to feel better, not worse! I'm glad you warned me ahead of time, though. I didn't know that about the probiotics. I'll have to run to the store (if I can manage to not have to poop for an hour) and get some. I'm already on a probiotic but not those specific ones.

I was diagnosed with c-diff a couple weeks ago and have been floundering in anti-biotics every since. I was started on Flagyl which gave me horrendous side effects, I felt so creepy and sick on them. Then I switched to Vanco after 6 days of Flagyl, which I couldn't tolerate anymore. I've been on Vanco for 8 days and have seen minimal improvement. It's a little better than when I was diagnosed, but not tremendously. I'm hoping the last 5 or 6 days I'll have a miraculous turn around on the Vanco and be c-diff free. I read somewhere a lady finally felt symptom relief on the 10th day of Vanco... which I'm hoping will be me. Others say they feel better right away, which isn't promising for me. I hope this Vanco works! If I have to take it again, I wonder why the next round would work and not this one... Hope you all get better soon! What a crappy thing to have c-diff and ulcerative colitis.

Standard protocol for a uc flare is get a stool test. As there's a chance it could be cdiff, we're at increased risk (especially those of us on immunomodulators or biologics). Cdiff doesn't respond to uc medications, only antibiotics.

I was just diagnosed with C Diff too! An ignorant nurse gave me one of the top antibiotics for causing it for a bv infection. Needless to say my OB was livid as am I. I was almost in remission after a long stubborn flare during which we doubled my remicade dosage.

I started vanco last night - 250 mg 4xday for 10 days.

So when we have UC with this and the c diff hopefully clears do we usually continue flaring? Or is the c diff just mimicking a flare? I am also getting a colonoscopy tomorrow. Things have been so bad for me lately :(

Well, finished my Vanco Friday night after 10 days of it. Now tonight I've developed the gasiness and see the same stuff in the toilet tonight that I saw before being told I had it. Not to mention went to the bathroom 3 times this morning. And I'm not supposed to take a stool sample back in to them until next month when I go in to see them for a followup. Any suggestions? Doubt they are open tomorrow with it being MLK holiday tomorrow.

Totally agree with Dikid.
I had C-Diff over the summer. Things weren't too bad until I was prescribed Vanco.
Vanco caused me to flare badly. Didn't get better until getting on Prednisone and Dificid.
Dificid took care of the C-Diff and Prednisone calmed down the flare before Remicade helped out.

You might need Vanco at a higher and longer dosage, but call your GI and let them know what's going on.

Prednisone does not cure C. diff its a bacterial overgrowth that needs to be stopped
antibiotics or FMT are the only two ways we have now to cure it

I had C-diff twice in the past and both of them right after colonoscopy. Took Flagyl twice but c-diff kept coming back. Finally
I said enough is enough and did FMT with my 10yrs old son's poo.
Third day bleeding stopped and three weeks later diarrhea stopped.
I will never take antibiotics again for c-diff.

I am curious, those who have c-diff did you do colonoscopy recently?

Had my third case of c-diff this past summer. Haven't had a colonoscopy in several years now. Did not have colonoscopies prior to my two previous cases either.
Things went from bad to horrible once starting Vanco. The Vanco caused my UC to flare. Finally got on Dificid for the c-diff and Prednisone for the flare and changed my Remicade to 10mg/kg every 6 weeks.

Had been on Vanco when diagnosed with c-diff before, but was also on Prednisone. Thinking the Prednisone masked the Vanco from affecting my UC.