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Ulcerative Colitis
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Posted 2/15/2016 12:19 AM (GMT 0)
So I have been flaring on and off but mostly on since Nov 2014. I've been on Prednisome, Lialda and started Remicade. I have also been doing cortisone enemas at night.

I would not say that I am going a lot (2-4 times a day but lately more of 3-4).

Currently I am on 4 pills of Lialda in the morning and going for remicade infusions. I will be receiving my 4th infusion the second week in March. I have also been doing nightly cortisone enemas.

When I wake up in the morning I will go to the bathroom. Formed (pretty narrow and lightly brown...sorry if it's to much info). But then when I goat night (always 20 minutes after I eat dinner I don't know why but this is somthing new) there will be grainy looking stool, some formed stool with blood and then then little balls and strands of red that come out. I know that tonight when I do the enema, that when I wake up, again I will have no blood.

Also, lately my stomach will start to hurt out of know, so I'll go to the bathroom and feel immodestly better.

I really don't know what's currently happening. I also don't know what is working and what isn't working. I'm convinced 100% that the Lialda is doing nothing. Can someone please help sum this up for me! It would be greatly appreciated!!
Posted 2/16/2016 12:50 AM (GMT 0)
Any takers for what's going on or if anyone has experienced this? Thinking about not doing enema tonight and see what happens when I wake up.
Posted 2/16/2016 1:31 AM (GMT 0)
Narrow stool indicates remaining inflammation. The balls and strands at night are likely mucus. Seeing mucus and a little red indicates some remaining inflammation. Overall, you're seeing solid bms which is a sign things are going well. Your frequency is fairly low 2-4. I'd say you're doing fairly well with only mild inflammation remaining.

Steroids, such as cortisone enema are really good at stopping bleeding but only good when you take them.

Has the remicade improved anything at all? You've been on it since November.

I'd stay the course, if there's been improvement. You can continue healing in more time. If you feel you've plateaued or gotten worse, then a change might be needed...
Posted 2/16/2016 2:06 AM (GMT 0)

iPoop said...
Narrow stool indicates remaining inflammation. The balls and strands at night are likely mucus. Seeing mucus and a little red indicates some remaining inflammation. Overall, you're seeing solid bms which is a sign things are going well. Your frequency is fairly low 2-4. I'd say you're doing fairly well with only mild inflammation remaining.

Steroids, such as cortisone enema are really good at stopping bleeding but only good when you take them.

Has the remicade improved anything at all? You've been on it since November.

I'd stay the course, if there's been improvement. You can continue healing in more time. If you feel you've plateaued or gotten worse, then a change might be needed...


Thank you for the response. What do you mean by narrow stool means remaining inflammation? I don't think that I have heard that term before.

Also, it seems the remicade works as my symptoms decrease for a few days after but then goes back to how it was after 2-3 weeks. I'm not sure if I should see more improvement after my 4th infusion.
Posted 2/16/2016 9:31 AM (GMT 0)
Hi Sporty,

I had exactly the same symptoms as u described in your first post when i was recovering during my first flare. I think I was caught somewhere in the middle i.e. the meds had reduced the inflammation greatly buyt my colon was still not healed and not functioning properly. I think sometimes the wounds in my colon were being reopened. I never understood why the blood came AM an not PM.

I'd say you have to work through this current situation and treat it as positive and as a healing process. It takes time for your colon to function properly again.
Posted 2/16/2016 11:01 AM (GMT 0)

damo123 said...
Hi Sporty,

I had exactly the same symptoms as u described in your first post when i was recovering during my first flare. I think I was caught somewhere in the middle i.e. the meds had reduced the inflammation greatly buyt my colon was still not healed and not functioning properly. I think sometimes the wounds in my colon were being reopened. I never understood why the blood came AM an not PM.

I'd say you have to work through this current situation and treat it as positive and as a healing process. It takes time for your colon to function properly again.

Thank you for the response. Where you doing rectal therapy at the time? And if so, how many times a day? AM/PM or just PM?
Posted 2/16/2016 12:21 PM (GMT 0)
I wasn't no. Was on asacol dose. I analysed everything like u might be doing now but could find no logic. UC waxes and wanes and flares can present differently. Looking back my advise to me would have been to tune out a little and focus on getting better. I definitely over analysed to no gain .
Posted 2/16/2016 2:01 PM (GMT 0)

Sporty821 said...
What do you mean by narrow stool means remaining inflammation? I don't think that I have heard that term before.


Inflammation thickens the walls of the intestine, reducing the space available for stool. As a result, stool is often thin, pencil-like, and often has a flatspot/groove on one side. As you heal, stool gets thicker.

Some do have a short response to remicade during the loading doses. The purpose of the loading doses is to get remicade up to a therapeutic level (optimum concentration to heal you) within your body. If it doesn't last long enough after the initial loading doses then you might need a stronger dose, like 10mgs per kilogram instead of 5. Or more frequent infusions.
Posted 2/16/2016 5:22 PM (GMT 0)
What are you eating during the day?

Your evening meals till trigger a bm...something going in stimulates peristalsis, so anything in lower colon will be evacuated when there's inflammation.

The stringy, mucusy stuff is from inflammation, over activity in the colon, possible food choices or a combo.

Could you maybe add a mesalamine enema to the mix and see if that might help?

You could consider to add a fibre supplement and an antispasmodic so see if that slows down the daytime overactivity should that be part of the reason.

Are you soon to have a period?

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