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Switching from Remicade to Humira

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Posted 4/27/2016 9:52 PM (GMT 0)
Hi
Been on Remicade the last 6 1/2 years been in Remission almost 5 1/2 year ,Remicade is not working ,,they want me to try Humira anything i should no ,,
Posted 4/27/2016 10:28 PM (GMT 0)
I took 3 rounds of Humira (4 shots in one day called the intro shots, then 2 shots 2 weeks later, then 1 shot 2 weeks later) and my joints hurt so bad, I got to the point that I could not walk. Had to stop Humira and go on a LONG taper of Prednisone! It was awful! I hope you have a better experience. Good Luck to you.
Posted 4/28/2016 5:06 PM (GMT 0)
I've been on Humira for 6 months without any problems. I take it on Thursday nights at 7pm. I am pretty useless for the rest of the night when after I take it, but the next day I feel amazing! I normally sleep really well the night that I take it too. I don't think that it has helped me in particular too much, but then again nothing I have taken has ever really seemed to put me into remission.

A friend of mine has been on Humira for over a year and it has kept her in remission! She has had amazing success with Humira!

The Humira Complete program is really helpful! They teach you how to use the medication and inject it yourself. It is so much easier that going for an infusion treatment.
Posted 4/28/2016 5:18 PM (GMT 0)
RMA,

Have you discussed Entyvio with you GI?

Remicade worked great for me for almost 5 years and then it stopped. I tried Humira without any success and then moved on to Simponi which just as ineffective. I wanted surgery so I moved on without trying Entyvio.

Humira is a similar anti-tnf med to Remicade & Simponi, maybe you want to consider a different biological mechanism like Entyvio.
Posted 5/5/2016 10:54 PM (GMT 0)
Thanks
Glad there is another 0ption Entyvio.
Started the first 4 shots of Humira today,,will let you no how it goes ,,
Posted 5/6/2016 8:55 PM (GMT 0)

lmadcock42 said...
I've been on Humira for 6 months without any problems. I take it on Thursday nights at 7pm. I am pretty useless for the rest of the night when after I take it, but the next day I feel amazing! I normally sleep really well the night that I take it too. I don't think that it has helped me in particular too much, but then again nothing I have taken has ever really seemed to put me into remission.

A friend of mine has been on Humira for over a year and it has kept her in remission! She has had amazing success with Humira!

The Humira Complete program is really helpful! They teach you how to use the medication and inject it yourself. It is so much easier that going for an infusion treatment.

Do you get really tired from it or something? What makes you "useless" for the rest of the night? I haven't had that experience. I'm lucky, I haven't had any side effects from Humira.
Posted 5/12/2016 6:37 PM (GMT 0)
I've been on Humira for about 4 months now, and I haven't had a flare, but my bm's haven't normalized either. I have been reading a lot about the combo of diet changes, so I am going to continue the Humira, while trying to take in more spinach and sunflower seeds, no dairy products or processed foods. If anyone has diet advice, always happy to hear!
________________________________________________________________________
Male, 52
Dx'd w/UC in 2007, and struggling ever since.
3200 MG Mesalimine daily.
100mg sertraline /day (never had anxiety issues b4 the UC!)
Posted 5/12/2016 7:39 PM (GMT 0)
Try adding some some Metamucil, as that certainly helps firm things up a bit.
Posted 5/12/2016 8:19 PM (GMT 0)

iPoop said...
Try adding some some Metamucil, as that certainly helps firm things up a bit.

Not to take over this post, but do you know how one can add Metamucil without having awful gas? Even after I was on it for a while, that was still happening, so I gave up.
Posted 5/12/2016 9:02 PM (GMT 0)
Never had issues with fiber and gas. However VSL gave me bad gass..
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