Entyvio

Hey guys,

I just had my 2nd infusion of Entyvio last Wednesday (4/27). I know people say this is a very slow acting drug but I feel like there are some changes to my bowel movements as well as pain etc. and frequency, not a big change but small improvements here and there. Is there any chance that it can start showing effects in such a short time?

Thanks,
M

I am on steroids, but my dose has not changed since I've seen these changes.

As long as you aren't experiencing negative side effects from the injections, then I would keep going. Good luck to you!!

MONKEY10 said...
I have been on entyvio almost 2 years.. the longer on it the better it seems. slow at times but labs are normal for the last 6 months. Still have a pull up on.... but not so bad anymore.

Why wear a pull up if you're doing well on entyvio? I would always judge my condition by whether I could "hold it". If I didn't trust myself without a pull up, I would say my condition was poor.

I started Entyvio while on Prednisone so I'm not quite sure when it kicked in but I tapered the prednisone early on the process and was in remission fairly quickly (faster than the 14 week timeline I've read elsewhere). I'll confirm my full remission status in a scope next month but I'm doing very well.

For reference, I've eaten ice cream three times this week with absolutely no bloating, nausea, changes in stool, etc. I consider my ability to tolerate lots of dairy and sugar a sign of a healed gut. Terrible for my diet but an amazing feeling. It's hard to find Entyvio success stories online but I think that's because the folks it works really well for aren't in the forums as often.

That said, my urgency is the one symptom I still have even while in remission and has been the case for my entire disease history. I even had a slight accident fairly recently. So, people have their own standards of what's remission/normal.