Proctitis

Hi

Ok was diagnosed with proctitis via flexo sigmoidoscopy Nov

Have had symptoms everyday since March last year ( mainly needing to go to the loo around ten times a day just to release yellow mucus with bits of blood

Have been on pentasa sup and octasa oral meds since Nov - last week was advised to swAp pentasa for prednisolone supp - have been on the for a week and a few days only change is noticing a bit more blood and the mucus seems to be thicker and more of a dark creamy yellow rather than a slightly see through yellow


Question is anyone else had this and would it seem to get worse before better if healing ?

It's showed distal proctitis but further up was fine - biopsy results came back inconclusive they don't know whether crohns or uc - they said more likely uc though - yeah maybe il try that the gi nurse said give it three weeks for it to work I just don't want to leave it - other than the mucus I don't really have any other symptoms never any mucus on the actual stool just on its owns - don't really get pain

Yep! I had the exact same thing... the steroid suppos made me worse... I had your symptoms for 2.5 years until last april when I did steroid ENEMAS... NOT suppositories AND oral mezavant. Your doc may or may not be saying" since its so dismal and at the bottom treat it there..." I heard that for years until finally we just tried oral and that with the steroid enema within 2 weeks i was in remission... Also be careful with those darn suppositiories... they made me worse... they worked for a bit then made me worse and i even remember trying them once after 2 months of not using... and it was horrid they made me worse and I havent touched them in over a year since ive been in remission... everyone is different, but i had minor proctitis for 2.5 years flaring... go back to your doc and try other options, steroid enemas and maybe even oral? keep trying meds till its gone, i remember how annoying it was... hope this helps!

I have ulcerative protitis too. Diagnosed in my teens and I'm now 47. I was diagnosed initially with a sigmoidoscopy and my then doctor didn't see any signs of it past the initial area. I have since had a few colonoscopes and it has remained limited to a very small area.

When I first was diagnosed my flare was quite bad, and yes it can get worse before it gets better. I let it go too long before my initial treatment and it was a bugger to get under control because of it. I used the rowasa enemas at that point, but haven't used them since. Once it got under control it's been pretty easy going and I have remained mostly in remission over the years. I have minor flares every so many years.
I take sulfasalazine and it works great for keeping me in remission. It's a pretty old drug, but it works for me so never tried changing to anything else.

I also keep canasa supposterories always on hand and can generally nip it in the bud quickly for me. They work really well for me and may for you as well once you get it under control. You'll eventually hit upon what works best for you. :) I just had a colonoscopy today actually and all was fine. Good luck with everything! I hope you're able to get it under control quickly. :)

Myself, I push it up as far as I can. So basically finger length. I know it's gross, but they helps me tons. They do sell rectal suppository applicators, Sephure makes them, but I've never used one myself. You can find them on amazon.