HealingWell
Search Close Search
☰

Chickening out on Remicade?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/23/2016 10:58 PM (GMT 0)
Ur doc is in San Diego and likely did not get your message.
DDW16 is going on
I would call and speak to the nurse to make sure he got the message
Do you have access to his personal email, or just to mychart?
Posted 5/23/2016 11:05 PM (GMT 0)

Dikid said...
Ur doc is in San Diego and likely did not get your message.
DDW16 is going on
I would call and speak to the nurse to make sure he got the message
Do you have access to his personal email, or just to mychart?

I saw that too, but figured that a fellow, nurse, or someone could contact me. I'm just not happy that I am even dealing with any of this now. I have never hated UC more in my life than I do now. I don't even want to have to think about UC now with a newborn to take care of, but here I am. Grr!

I have his email but he doesn't use it for patients anymore (very serious about it)...gotta go through mychart only now. I'm sure I'll hear from someone this week.
Posted 5/24/2016 1:38 PM (GMT 0)
why don't you have em page the #IBD fellow on call, they answer pretty quickly when I have called
Posted 5/25/2016 9:13 AM (GMT 0)
WG3 did you ever hear back ? Also where are you at on your prednisone taper ? I'm still stuck at 30 so they are now gonna cscope me Thursday and decide officially regarding a biologic ... wish me luck!
Posted 5/25/2016 12:44 PM (GMT 0)

GMSAF said...
WG3 did you ever hear back ? Also where are you at on your prednisone taper ? I'm still stuck at 30 so they are now gonna cscope me Thursday and decide officially regarding a biologic ... wish me luck!

I didn't hear back yet...almost a week. I am at 10mg now so it's pretty low amount.

I'm glad to hear that they are scoping you before deciding to go to a biologic. I think it's better to be absolutely sure it's needed. Of course, best of luck! Fingers crossed that your scope shows enough improvement to keep you away from biologics.
Posted 5/25/2016 3:32 PM (GMT 0)
Almost a week- unacceptable in my opinion. I hope they will get back soon. It must be overwhelming to deal with this and a new baby. I got UC when my son was 2 years old, so I didn't have to deal with it right after. Hope you just feel better on your own and don't need them or any new stuff to add to your UC cocktail.
B
Posted 5/26/2016 1:19 AM (GMT 0)
Ugh this is so annoying! I would call again and let them know that you have not recieved a call back and it's been a week. Ask them if you can remain on the line until they get someone on the phone with you.
I am a little surprised cuz the office staff is usually pretty nice. Although I don't know if Rubin has his own staff (I see someone else there)
✚ New Topic ✚ Reply
12