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Xifaxan....day 3

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Ulcerative Colitis
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Posted 5/26/2016 2:26 PM (GMT 0)
Hi all. I've been dealing with 24/7 feeling of needing the bathroom for almost 2 years. Dr. Has no clue why-when he scopes me he never sees inflammation. Recently been going to the bathroom 7x a day formed stool so he suggested SIBO test. Results came back positive. He thought maybe this is why there is urgency all the time. I'm on my third day now of Xifaxan to treat the SIBO. Currently experiencing not formed stools and now diarrhea. I'm also on 50 mg 6mp, 4 lialda, using cortifoam and probiotics, tuemric and omega 3 fish oil. I started FOD map diet as well. Getting fed up with all of this and don't know what to do. Would appreciate and ideas. Thanks
Posted 6/3/2016 12:39 AM (GMT 0)
WhAt is sibo?
Posted 6/3/2016 12:50 AM (GMT 0)

kelina said...
WhAt is sibo?


/www.google.com/search?q=SIBO&ie=utf-8&oe=utf-8
Posted 6/3/2016 12:54 AM (GMT 0)
Was there inflammation on a prior scope. I was not clear if the Lialda was maintenance or just in case. If there is no inflammation, any UC meds could likely be lowered.

Will the Xifaxan also kill of a lot of good bacteria? Did yall discuss probiotics? Most of the dry weight of stool is bacteria, so it does sound like you have SIBO with 7 formed stools.

good luck
Posted 6/3/2016 12:54 AM (GMT 0)
SIBO is the accronym for Small Intestinal Bacteria Overgrowth.

I personally think that a lot more IBD patients have SIBO then are tested for it, SIBO can mimic IBD symptoms.

How long are you supposed to be on Xifaxan? You have to kill off the bacteria and then repopulate it with good bacteria. What probiotic are you on? When I was tested for SIBO they recommended Florastor for a good probiotic to help with treating the SIBO.
Posted 6/3/2016 1:04 AM (GMT 0)
Hi! Thanks so much for answering guys. So now I'm on day 10. Really nice improvement thank Gd. No more diarrhea. Formed stool once a day or so. No more growling colon and no more talking stomach. However I still ALWAYS have this slight feeling of needing the bathroom all day every day. It's so so so frustrating. I'm on lialda as a medication for UC for a while-not due to the SIBO issue.

Following FODMAP diet for SIBO purposes. Nutritionist said to stick with it until I finish Xifaxan. And I take a probiotic called maxi health intestinal protection. My last scope in March had inflammation only in the rectum but that is solved now.

I wonder if the urgency feeling (it's not like I have two seconds to run to a bathroom it's just there 24/7) is due to microscopic inflammation. Idk...it's been 2 years of it...any ideas would be much appreciated (rectal steroids and foams don't help much)
Posted 6/3/2016 2:59 AM (GMT 0)
only a biopsy can check for microscopic inflammation, but the Lialda and cortifoam should manage it.

lets hope at day 14 you feel improved
Posted 6/3/2016 11:19 AM (GMT 0)
I wish that would help. But cortifoam does not get rid of urgency feeling.
Posted 6/4/2016 3:25 PM (GMT 0)
Sephora - I am on Xifaxan too. Day 8 today. How long did it take for the side effects to subside and for your stool to become formed and frequency down? I had D and upset stomach in the beginning too. It seems to have slowly stopped and my bm's are becoming formed again. Now I just have frequency and formation (little pieces) issues - 2-5 times a day with random blood.
Posted 6/4/2016 3:36 PM (GMT 0)
What about adding a suppository such as canasa? You could also consider an antispasmodic and a fibre supplement.

Have you tried Kegal exercises?

Great to hear that the xifaxin has helped and that bms have changed for the better!

q
Posted 6/5/2016 1:27 AM (GMT 0)
@totesmagotes like you my stools started to form again and I got about once or twice a day. Stools formed at around day 3-4. Now I take the pill with no side effects. I'm on day 12 today. And the urgent feeling @qunicy I've tried canasa I believe it makes things worse for me. And I will for sure look into those exercises! Thanks! Today happened to have been a great UC day so thank Gd for that. Hope to stay this way now.
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