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Ulcerative Colitis
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Posted 9/4/2016 1:53 AM (GMT 0)
Hi I was recently diagnosed with ulcerative colitis about a month ago after years of symptoms. My colonoscopy was clear but my biopsies came back with uc. I was just wondering why it wasn't visible in my colonoscopy. Does this means it's not that serious? And has anyone else been diagnosed by just biopsy.


Thank you.
Posted 9/4/2016 3:04 AM (GMT 0)
Did it show any inflammation or scarring?
Posted 9/4/2016 3:16 AM (GMT 0)
It showed inflammation
Posted 9/4/2016 3:29 AM (GMT 0)
He said the colonoscopy was clear but my biopsies were postitive for uc.
Posted 9/4/2016 3:34 AM (GMT 0)
inflammation is not clear. maybe you were clear of ulcers and/or polyps - but visible inflammation is not "clear"

the biopsies likely showed crypt cell deformation, evidence of chronic inflammation - and diagnostic for UC

do you have active symptoms?
Posted 9/4/2016 4:19 AM (GMT 0)
Yes my biopsies came back with crohnic active uc. I have digarrea, pain, night sweats, nausea, mucus. I'm currently in a flare at the moment and my medication has been increased. There was no visible inflammation only cellular.
Posted 9/4/2016 5:33 AM (GMT 0)
there are microscopic forms of UC. Maybe that is your case. I am not sure how biopsies show active UC, since they usually give evidence of chronic damage - not at the moment status.

the part about inflammation has gotten confusing. I am not sure when you were speaking about what was seen on scope by eye, and what was detected from biopsies. But if you do have inflammation and symptoms, it needs treatment. What have you been prescribed?

UC is always serious. Your symptoms tell how serious this flare is to you. Your inflammation level and extent tells how severe your UC. What part of the colon is inflamed?
Posted 9/4/2016 12:09 PM (GMT 0)
I have had colonoscopies in which my GI's first impressions have been "all looks pretty good!" and then the lab results have come back showing much more inflammation than he had been able to see. At this point I am trying to decide on new meds to address this inflammation, even though my gut is giving me hardly any symptoms.

In your case, it seems to me that there would be two things to address: the symptoms you are currently having, and also the signs of inflammation.

UC is, unfortunately, something that needs to be figured out again and again, symptoms changing from flare to flare, meds tweaked and/or changed... and it's generally best when we can work as a partner in care with a GI who really listens to us and respects us.

Hopefully you can get out of this flare soon!

What meds are you on?
Posted 9/4/2016 2:28 PM (GMT 0)
if you could get a copy of the report and share it with us, that would be helpful -
Posted 9/4/2016 2:39 PM (GMT 0)
Definitely the copy and share suggestion. We can all be clear rather than guessing.

q
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