Ladies....back from ER- Bartholin cyst but RVF? No real answers.

I spent 2 days in ER and still did not see a gyne.

CT scan said there was no tract from rectum to vagina but there are gas bubbles in vag. The technician only used a tiny amount of water/contrast as I was afraid it would go through fistual and further burn me. There is a tract from left anal canal towards medial left gluteal cleft...already aware from MRI. Thickening of rectum, colon etc.

The ER doc examined me and said she felt a "bump" and that the inside of my vag was red.
I'm thinking that was the fistula that I feel poking me.

So I left the ER with a ton of percocets and told to use Replense for the dryness. I have no real answers as to why I'm burning or what's going on. I was told I had to wait for a gyne referral. I leave exhausted and feeling no better. Just frustrated.

I get home to read the CT report and it says I have a 2 cm left sided Bartholin cyst. I had to google what that was. The ER doc never mentioned this. i'm looking at the pictures thinking I don't have this....I look "normal" on the outside....not like I have a huge abscess or zit. This am the entire area is swollen, inside and out. In fact it looks like the inner parts of me are coming out (sorry to be gross). I have no idea what to do, how to treat it, what I'm treating.....but I'm freaking out.

The burning hasn't been so bad as I'm on my period. A quick reminder as to why I hate pads....

So for 29 days I've been burning and passing gas through my vag...I've been crying and pleading with anyone who will listen...GI, CRS , even Humira nurses....to do something.....no one calls back, no one has answers. I've been examined 3 times over the last month and no one said I had a Bartholin cyst.

My family doc is away until the 19th. I know she's put in a referral for a gyne but I'm afraid to know how long this will take.

I don't know what to do anymore...and frankly I'm afraid things won't ever go back to normal. I've been telling myself that things will get better next week....but every week there's something new.

I'm not eating because the pain is all consuming and I don't care. I'm 5'2 and now 108lbs. I've postponed my return to school and cancelled my ballet classes. I have to move but have zero motivation or strength to do so. I can barely get laundry done, never mind my poor dog.

Could the Bartholin cyst be whats causing the incessant burning? And the RVF is just passing gas but nothing else? The entire vaginal region is inflamed, not just where the cyst is supposed to be (on the labia...but it's not there)

As far as bowel...doing ok but side effects from Humira are concerning...on top of this is nausea, had a migraine, and my hands burn to the point where it hurts to move my fingers. This used to happen during bad flares but IVIG instantly stopped this. Unsure why it's happening now. WBC went from 12.6 to 7.7 this month.

I have my second loading dose on Thurs and IVIG on Friday. A bit worried that I won't be able to tolerate anymore. It just keeps getting worse and worse and I'm left to cope myself.

Oh U B, I'm soooooo sorry that you're still suffering like this could you try the MJ again for pain relief?

I did a lot of sitz baths with lots of epsom salts, at least 3 times a day (sometimes more) along with the mj it really helped ease the major discomfort. I really hope and pray that Humira will soon take affect and clear your pain and fistula.

Lots of love and (((((HUGS))))) and HEALING VIBES TO YOU!!

Do you know which gyno you've been referred to? Could you call and explain the referral has been sent and your doc is away but this new, urgent situation has come up and you can't wait?

The Bartholin cyst only occurs in 2% of the population ages 20-29. I'm 43. From what I read draining it involves another horrific procedure like I had with the perianal abscess...and possible insertion of a catheter for 6 weeks. Joy.

I've never had any female issues nor STD's.
This is another thing I have no control over. I'm so tired of suffering.

Could the Humira have caused the cyst?

I'm afraid of doing more sitz baths. I wondered if that's what caused the dryness given that I've been living in the tub much of the summer due to the peri anal abscess.

Yes. It hurts to wear underwear...pee, shower etc.

The CT said it couldn't find the RVF. I was relieved when I heard this but it doesn't explain my symptoms.

Yes, good idea. She referred me to the gyne clinic at Women's College Hospital. I'll call on Monday.

I guess I can always go back to emerg if it gets that bad once my periods over.

I don't have anything helpful to add except to say I am sorry you are having such a hard time!
Hang in there.

So sorry to hear you are in so much pain. When I get inflamed and sore in that area I use coconut oil. I slather it all over and then wear a pair of old panties. The coconut oil is soothing, anti viral, and works like a mild anti biotic.