Any saf(ish) long term pain or sleep medications to help you survive?

I am in such vicious pain night and day due to UC and rectal area pain that I may induce myself into a brain aneurysm or something similar from the stress and Torment. I literally have not slept though the night in years. I don't want to go to the emergency because I know all they are going to do is give me IV steroids for a day then send me home with more and steroids the last time I took them for only a short 2 month taper made me so sick and near death in a different type of way i never want to take them again.

I am trying to get to see a UC specialist who hopefully can get me on entyvio infusions but I have to survive until who knows how bloody long it will take (probably months in canada) until that even becomes a possibility as I can barely get out of bed now let alone cook or go to the store and I have no one to help me at all and may not make it unless I get some temp meds to take for up to 2 months until hopefully I get an appointment with the uc specialist.

I need some pain meds and sleep meds to help me survive for this period or I think I may not make it. The problem is that I recently read this in a UC article's findings:

Somebody said...


According to Higgins, the causes of ulcerative colitis aren't clear, but they may have something to do with an interaction between a person's genetic makeup and another factor, such as infection or the use of non-steroidal anti-inflammatory drugs, a class of painkillers that includes ibuprofen (Advil) and naproxen (Aleve).

I was literally about to go buy aleve but then decided to research it first and found that quote. So Advil and Aleve are 100% out.

I am wondering if anyone has been on long term pain meds and or sleep meds and what are the names of them. They can be prescription or over the counter type. Preferably I am talking to people with UC who did not get their symptoms increase when using them for up to or over 2 months. I would like to avoid long term Tylenol use due to internal bleeding risks. Also I don't want to take Aspirin long term as I get the hearing damage side effect from it.

Thanks

Post Edited (Tortured) : 10/6/2016 11:08:37 AM (GMT-6)

Thanks, I forgot to mention I had an extreme bad reaction to benadryl last time
I took it, all the skin on my eyes and ears burned then peeled off after taking
it one day.

I will research ambien and Tylenol PM, did you take them for long term though?
It has to be something I can take far beyond the usual 4 day max label
recommended time for me to survive.

How close are you to legal marijuana states like Colorado or California? That would be worth trying. And some cities have lowered the legal ramifications of having small quantities of marijuana to a slap on the wrist. St Petersburg FL I believe has done this even though in FL it is non-legal.

I've used generic Benadryl in sleep aids found at Walmart but your experience with that sounds awful.

If you can't safely get MJ then perhaps a pain clinic would be a place to visit. You have a diagnosis that could support treatment. Just be careful on opioids because they slow the gut down and toxic megacolon is a side effect of that.

use a topical nupercanal ointment on the anus at night, and get a prescription to generic ambien (zolpiderm). Taking a Teylnol II a few times a week is not a problem.

You can also try Celebrix or other cox-2 NASID which does not have the bad gi effects of regular NSAIDS.

good luck

I don't have a GI and I don't have a family doctor and that is that. Just getting up is hard enough for me to do and I despise the canadian system and the $hit I have to do to get anything done for me. $%^# surgery, I will die first and I don't care.

I've taken ambien long term with no bad effects. Its effective for me with no after effects or morning sleepiness. Id look up and research long term effects of any drug you take. I didnt find pain meds to be useful. Canasa has been great to get my rectum pain under control. Hope you find relief.

You live in Ontario? Do you have a GI? You seem a bit misinformed....your GI can get you on Entyvio in as little as 2 weeks or maximum a month depending on insurance issues.

As far as MJ...again all you need is a referral to a legal dispensary and that should only take a week or 2.

Depending on where you live there are MJ stores on every corner (no script needed). Some are more reputable & knowledgeable about chronic pain but you generally want something with more CBD. I'm in Toronto but I've seen shops in Durham, Stouffville etc etc

For sleep ...I usually take gravol. Pain Tylenol 3 or stronger. But usually MJ does the trick , including inducing sleep.