What are the chances of my proctitis spreading

Did you have biopsies done throughout your colon including the cecum?
Do you have the results from your first biopsies?

Likelihood....no one can predict subjectively, so no use in assuming. Hoping is a different matter, but doesnt change the results. Mine was 15 inches (38cm) bloody mess of inflammation when diagnosed. It's never spread beyond that point and flares are always limited below that area now (as per symptoms and scopes)....so i have clinically improved, although with last scope a year ago, I had psuedopolyps in the sigmoid which I hadn't 2 years before that.

Firstly, you need to determine if the inflammation is uc, cd or otherwise.
Personally, I dont think suppositories are enough for treatment....., but the area is regressing. If you do have UC, a med that totally covers the rectum and into sigmoud such as enemas would be a better choice. Trick is to cover beyond the area.

What dosage is the salofalk supps? And if its only 500mg, using the, twice a day would be better.

q

Thanks so much for this...obviously it is just what I wanted to hear.

With regards to my first lot of biopsies, several were taken throughout my colon and all came back normal even where inflammation was found.
Still waiting for my latest results.
I am on 1g nightly. Do you think splitting the dose to 500mg morning and night works better?
My symptoms have completely subsided after only a week on my supps.
Thank you both for your replies.

It is not clear you had UP. IF the biopsies are normal, than ordinary proctitis needs to be considered.

The odds of UP spreading may not exactly apply to you if you do not have UP. Whatever is causing the proctitis (e.g, infection, allergy, ???) would be the key factor in whether it spreads.

The meds are the same right no whether it is UP or proctitis. But a suppository is likely not reaching high enough.

good luck

the light just got a bit dimmer -

So no one on here only has UP?

I only ever seem to read the worst cases on line yet the statistics state otherwise.

I just hate the uncertainty of this thing.

I started with proctitis too. I seriously believe my GIs never believed for one second it would progress the way it did. I think they said the chances were low, like 10%, but it's a roll of the dice. I have to wonder if getting diagnosed with proctitis, in my case, was due tot he fact that I went to the doctor right away when I saw blood. I could have waited longer and it's likely I would have gotten a different diagnosis.

Try to think positively, but also don't take proctitis lightly. Your best bet is to take your salofalk suppositories as prescribed, whether you're feeling good or feeling bad. Think of it as your insurance policy. As noncompliance is a big cause of flareups and uc spreading. Don't let complacency get you!

My friends dad has had colitis since he was in his teens but by the sounds of it he handles it very well.
DBwithUC as much as I would like to still think that there is hope that it is something other than UC I sadly don't think that will be the case.
My scope that I had 2 weeks ago, the dr diagnosed me then with UC as he saw a few small ulcers...he said it was mild to moderate however I was having the worst symptoms I had ever had at that point.
I really do find this foram so useful and so glad I jumped on board.

I started getting symptoms 18 months ago when I was 3 months pregnant of blood and mucus also had an annoying noisy rectum which felt like it was filling up with fluid. After having baby and symptoms were still present they decided to send me for a scope and told me to take salofalk which cleared my symptoms fairly quickly but then 5 weeks after i stopped taking them a started to get symptoms again.
Went to another dr/consultant and they decided to have another look especially as I was very symptomatic at the time. Have been on salofalk since and my symptoms have ceased again.
No diarrhoea but stools were on the softer side when I was symptomatic I have also never had pain.

My original diagnosis was mild UP and I was treated with suppositories which gave me instant relief and totally stopped all my symptoms. My GI had little concern it would advance much beyond that. 4 months later I started to flare and it got bad very quickly....and less than a year after my initial diagnosis I had surgery to remove my colon and get a permanent ileostomy. I think my case is rare, unfortunately for me, but I truly am completely happy with my life now and am not held back by illness or my stoma. Best of luck with everything!!