Posted 6/9/2016 8:17 PM (GMT 0)
Hey all,
My progress has ebbed and flowed since I was diagnosed with UC in Feb 2014.
At first it was terrible. After the first colonoscopy I was WAY worse. Every terrible symptom of this disease I had.
My doctor put me on Balsalazide (colazol) and that was it.
I went home and wasn't getting ANY better. I would wake up in the middle of the night at least once per night sometimes more to run to the bathroom. I soon experienced my first accidents as well.
I then discovered SCD diet and started in March. I got the book, the science seemed to make sense.
At first I saw no effect except MASSIVE weight loss. (I would later realize this was because I was not following the diet correctly at all.)
In June, I was at an all time low and the diet wasn't working. My doctor then prescribed me Uceris. He said I could go on an 8 week run with it, but no longer than 16 weeks. I also was fed up with feeling terrible and my fiance helped me restart the SCD intro diet making sure I was eating the right things. It was easier in the summer because I was commuting an hour and a half twice a week to grad school. (This may have been what triggered my UC) I made the chicken soup correctly, plenty of gelatin and cheesecake.
I began feeling better. Against better judgement I decided to slow down on the Uceris. (I wanted to save some for around my wedding in August and a trip we had planned in July.) Things got worse throughout the summer but I was able to take some Uceris around the trip and wedding so I got through okay.
I then tried FMT in August, using my fiance as a donor. (What a gal)
Initial results were actually great. Formed stools twice per day. But it was alot to keep up with and she would sometimes have bouts of diarrhea that made me nervous. All the while I am doing strict SCD.
Throughout my last year of grad school I took 16 weeks of Uceris (from about Sept to January). This left me with joint pain (steroid induced I suppose) and my results were intermittent. Still taking Colazol. After this point however, I believe I reached a new plateau in healing. From this point forward I've had no accidents.
I did one week of Hydrocort enema and then began began Rowasa around January and Lialda in May because I didn't think colazol was doing anything and hated the 9 pills per day. Still 100% SCD. I began gaining weight and started exercising.
In March I began to feel like I was backsliding, so I went back on the intro diet and had formed stools! I think this was the little push my body needed. I've had formed or semi formed stools every day since. (Except one day I ate alot of peanut butter) I've recently added fish oil as well. (Dr. Carson, original) I've learned my "best foods for UC" as well and try to eat these as much as possible.
My doctor says this is remission, however its a little inconsistent. Still the stools are formed, no diarrhea.
I'm hoping to hit the next stage of healing.