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Is very fowl smelling bowels a norm side affect for a person w/ UC?

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Ulcerative Colitis
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Posted 11/8/2016 8:40 PM (GMT 0)
My husband has been chronically struggling with UC for 4 years. He had remicaid infusions, with minimal help for 10 months and is now about 3 weeks into Entyvio. For months, his bowels have become so fowl smelling, that sadly, it stinks the entire single story house. I'm concerned of additional problems and am inquiring if this degree of foulness is considered "normal" for a person with UC or should we consider testing for additional problems?

*side note, just 5 days ago, Dr. Found a blood clot in his leg. They're still deciding how to treat clot...worried about him going on blood thinner.

Anticipating your reply/help.

~concerned wife
Posted 11/8/2016 8:48 PM (GMT 0)
Yes, i believe it is normal sadly. I am sorry he's not having more luck. I hope Entyvio works well for him.
Posted 11/8/2016 8:55 PM (GMT 0)
Has he had a stool test to look for pathogens? Stuff like a cdiff infection is characterized by unusual bad odor...
Posted 11/8/2016 8:57 PM (GMT 0)

notsosicklygirl said...
Yes, i believe it is normal sadly. I am sorry he's not having more luck. I hope Entyvio works well for him.

Thanks for the reply Notsosicklygirl. :)

I see from your history that you recently had surgery & have
the j pouch. Mind if I inquire how the process went for you? My hubby has agreed to give Entyvio a try for a total of 3 mo. And if there's minimal improvement, Dr wants to remove entire large intestine. He's just been so ill and has lost so much weight that he can't afford to wait much longer.
Posted 11/8/2016 9:02 PM (GMT 0)

iPoop said...
Has he had a stool test to look for pathogens? Stuff like a cdiff infection is characterized by unusual bad odor...

iPoop, no he has not had a CSA, but that is a great idea and partly why I'm on here....wondering about additional info if there's something else we need to be monitoring. I'm not sure what cdiff infection is, but will look into it. Thanks!
Posted 11/8/2016 9:56 PM (GMT 0)

Concerned UC Wife said...

notsosicklygirl said...
Yes, i believe it is normal sadly. I am sorry he's not having more luck. I hope Entyvio works well for him.

Thanks for the reply Notsosicklygirl. :)

I see from your history that you recently had surgery & have
the j pouch. Mind if I inquire how the process went for you? My hubby has agreed to give Entyvio a try for a total of 3 mo. And if there's minimal improvement, Dr wants to remove entire large intestine. He's just been so ill and has lost so much weight that he can't afford to wait much longer.

The progress was pretty grueling, but ended up being well-worth it for me. I think the important thing is to manage your expectations. You're never going to have a perfect colon, more trips are to be expected, but once you get over that aspect, there are a LOT of benefits. I rarely worry about whether I will be able to do something. I am able to go anywhere & on a whim. I am also no longer dependent on drugs and doctors. I spend way less on medical stuff, next to nothing this year. It has opened up a lot of doors for me - I would never want to go back to the way I was living with UC. I was always getting blood drawn and going to DR appointments. If I were one of the lucky people who were 100% stable for 10 years on something, I am sure I would feel differently, but I was flaring all the time and remission lasted only 6 months - a year, if I was lucky... I could never plan ahead or be a reliable person - my health was just too unpredictable. Hopefully he doesn't need to consider surgery, but if it does come to that, it may work out for the best. Imagine life with UC in the past? smilewinkgrin

and of course stool tests should have been done a long time ago!!! When a flare up doesn't respond to drugs, it is good to check if it's something else.
Posted 11/8/2016 10:05 PM (GMT 0)
some people report foul smell. my gut microbes were so depleted that I lost all smell, and only as I healed did normal odor return.

c-diff infections are a common occurrence with UC, and they do produce very foul smell, but also usually lots of blood too. unfortunately the stool test for c-diff often gets false negative, so at least two tests should be done.
Posted 11/9/2016 1:56 AM (GMT 0)
Foul smelling bowl is a strong indication of C.diff infection . Ask his GI for a stool test. C.diff is very common with IBD people.

If C.diff is active in many cases UC medications won't give the expected results.
Posted 11/9/2016 7:58 AM (GMT 0)
I agree as well that he should be tested for cdiff. I've had it once and the smell could raise the dead. I'll never forget how bad it was.
Posted 11/10/2016 2:26 PM (GMT 0)
Back in the early summer months my UC flare was terrible with lots of BMs and blood and awful
Foul smelling gas and poops. I couldn't stand the odor when I went. It kind of had a sulfur and rotten eggs odor. However, as I started to heal and the bleeding stopped the odor seemed to disappear. Note that my gastroenterologist did two stool specimen tests for CDiff and both came back negative. I was wondering if the undigested food in my colon may have had something to do with the smell??
Posted 11/10/2016 2:44 PM (GMT 0)
more likely nana, it was probably the liverwurst and tofu sandwich you had for your midnight snack - does it to me every time smilewinkgrin
Posted 11/10/2016 3:40 PM (GMT 0)
Our gut microbe is a bit weird (less bacteria diversity, and large concentrations of species others have low amounts of) compared to normal people. What you're eating and therefore indirectly feeding those gut microbes impacts their leavings that you smell. Maybe try some probiotics or yogurt, prebiotics, and/or fermented foods like kefir or sauerkraut to even your gut population out a bit.
Posted 11/10/2016 10:19 PM (GMT 0)
Soymomore, I haven't eaten liverwurst in years even though I love it!! Also, I've never eaten soy !! (lol)
Maybe you meant this for someone else??
Posted 11/14/2016 11:34 PM (GMT 0)
Do they smell like chicken or turkey, or something more exotic such as quail or ptarmigan? Mmm...fowl. tongue turn
Posted 11/15/2016 9:51 PM (GMT 0)
Depending on what you eat . The smell can be better.

Try scd. Stay away from foods that ferment in the gut.
Posted 11/15/2016 11:27 PM (GMT 0)
Have you tried antibiotics?also florastor helped me, get at Walgreens or amazon
Posted 11/17/2016 12:23 AM (GMT 0)
For me, in my long history, the only time that things were that bad smell-wise was when I had c diff. So do tell him to get tested and to make sure it is really clear where the lab is and how to deliver the sample because the toxins die off quickly in warm air and that's why there are so many false negatives with the standard toxin test.
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