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Entyvio & major hair loss

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Ulcerative Colitis
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Posted 12/1/2016 2:08 AM (GMT 0)
I've been on Entyvio for 3 months and it's working like a dream! The past month or so, however, I've noticed a significant amount of hair loss. I only have shoulder length hair and have never had an issue with hair loss (I'm still in my 30s).

I've noticed so much hair in the drain in the shower that I have to clean it several times a week. It comes out in the comb and when I run my fingers through it in general.

I don't want to complain to my doctor especially since the Entyvio is working so wel. I do know that it's a relatively new treatment though. Has anyone else expierienced this? I don't have another appt with my doc until May (6 months away). Is it something I should mention??? Even if I do, I don't think they could do anything about it anyhoew...
Posted 12/1/2016 3:57 PM (GMT 0)
So, I have been told many times that remission is actually what causes hair loss. If you are flaring, your body puts your hair into a resting state to conserve energy. When you are healthy again, new hair starts growing underneath and pushes the old, "dead" hair out. This is the hair loss part. It sucks, but it will come back. It's actually a good sign though!
Posted 12/1/2016 4:01 PM (GMT 0)
Hairloss is a tough one to track down. Bad flares can leave us malnourished, we can be anemic, have low levels of vitamins B, B12 and D within our systems, and any one of those things can cause hairloss. Hairloss tends to be a delayed-reaction, it doesn't happen when we're flaring but rather several months in.

The hair will regrow. You can get a blood test to make sure your iron, and vit b, and d levels aren't out of range. If they still are then you might need to supplement to get your levels back up and regrow the hair.

Many of us with UC have a MTHFR gene mutation which can lead to several different degrees of low folate (vit b12).
Posted 12/1/2016 5:09 PM (GMT 0)
I've always had hair loss like that -- even pre-UC. I clean the drain in my shower every day. I swear I shed as much as my dog! My hair is just as thick as it was when I was a kid. Unless you experience hair loss in clumps I don't think I would worry about it.
Posted 12/1/2016 5:10 PM (GMT 0)
P.S. ... glad that Entyvio is working for you!!

me too :)
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