Need tips for a flare up

Sorry to hear that you're struggling. Nobody knows what causes UC flares, so I wouldn't beat yourself up on "could of's" and wouldn't try and blame yourself for your flare. Sometimes prednisone can be avoided, certainly give a nightly rowasa a try for a few weeks. However, if you start backsliding then don't hesitate on adding a steroid enema (less side effects) or prednisone itself.

" Nobody knows what causes UC flares "

i thought dropping 6MP caused your flare ?

i know what causes mine -

to say that we have no control over our flares is a bit misleading -

folks need to understand that we're not just victims who have to just accept things -

not saying it's anyone's fault, but the fact remains we do have some responsibility as to how we treat our UC -

soynomore said...
" Nobody knows what causes UC flares "

i thought dropping 6MP caused your flare ?

i know what causes mine -

to say that we have no control over our flares is a bit misleading -

folks need to understand that we're not just victims who have to just accept things -

not saying it's anyone's fault, but the fact remains we do have some responsibility as to how we treat our UC -

Haha there's no universally accepted flares are caused by X within medical literature with UC. There's so many i ate a single snickers bar, missed one dose of medications and therefore it's my fault i flared posts over the years. Such explanations are often unfounded but common for us to want a reason. I find blame the patient to be very, very counter productive and that's what I'm trying to avoid. Yes, i flared due to removing 6mp, glad you finally accept that (after trying to pin it what you perceive as changes within my very consistent diet so many times). However, very, very seldom is such a conclusion possible with any absolute certainty.

Hardly misleading to say uc is unpredictable as that's a part of uc's description within medical literature. We can flare for absolutely no perceived reason, when perfectly adherent to our proven treatment plan. Therefore the uc prognosis is uncertain and uc can be darn aggressive within the first 5 years. Uc can be one heck of a wild ride full of ups and downs and tons of surprises.

antidepressants do help some folks - quite possible the change had an effect on you - take some time and use the search function to see what you can learn

Hi...you don't need prednisone! It's awesome you have the rowasa and started it. Ask the doc for refills, and use them nightly till you have no urgency and mucus. Then use them for another week and start tapering them to every second night.
Use the rowasa nightly and the canasa during the day. Or you can add the cortifoam during the day if you need that extra if your symptoms don't start improve in a week...and eventually switch to the canasa.

Just as an fyi...all uc flares will involve the rectum, so rectal meds will always be of help.

What was the maintenance dosage you mentioned?

Flares happen.

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How did the scope go?

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Just wanted to thank you all for your support- I am feeling much better. The rowasa is amazing, I am glad I was able to retain them. I wasn't able to before. Just took deep breaths if I felt cramping and did them very slowly.
Thanks again, this community is so supportive and informative.

Scope went OK. Mild proctitis to 5 cm. This proctitis is so stubborn. My doc added uceris rectal foam on to clear it up.


Why is proctitis so hard to get rid of? Can it take months?

Uceris foam is pretty pricey, you might get sticker-shock at the pharmacy. With 4 cms of inflammation, a steroid suppository or hydrocortisone-enema would be similar but cheaper options. Proctitis inflammation is stubborn.