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OT – Diagnosed with HPV

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Posted 12/6/2016 11:15 AM (GMT 0)
I had my pap smear done some time 4 months ago and it came back abnormal but wasn't informed much about it really. Yesterday I went to repeat the test and they told me that HPV came back positive. I'm very confused and I didn't get much help, explanation and assurance. I feel so totally useless and I don't know what will be. Being on Azathioprine doesn't help my body to get rid of the virus in any way. The nurse said I'll probably test positive again.
Posted 12/6/2016 4:28 PM (GMT 0)
Aww. I am sorry to hear it Andrina. I know it's very, very common. I am sure there are options that will work for you. Often people don't have symptoms at all, but you must have gotten it from your husband so he should really go get a thorough work up. I hope the recent test comes back negative.
Posted 12/6/2016 8:28 PM (GMT 0)
What do you mean it's common? Do you think I'll develop cancer?

I have no purpose in life. Only sick all the time
Posted 12/6/2016 8:38 PM (GMT 0)
NO. I don't think so. A large % of people have it. Actually, the vaccine Gardisil, protects against the HPV strain that causes cancer. Too bad it didn't come about sooner. I don't think most strains of HPV cause cancer and not everyone gets cancer regardless. You will just have to have paps more often.
Posted 12/6/2016 9:57 PM (GMT 0)
Did they specifically say if it was a high risk strain? There are several different strains not all are worrisome.

I have had an abnormal pap before and it has come back as HPV but not one of the cancerous strains or high risk strains. Since then I have had several normal paps. Mine actually have only come back abnormal while I was on immunosuppressants. Once on Remicade and also while on MTX. My obgyn said abnormal paps are not unusual for her RA and IBD patients bc of their meds.

I wouldn't get too down about it. I would clarify what strain it is with your doctor and just make sure you are diligent with your Pap smears. If it's a low risk strain, men are often carriers and have no idea because there are no symptoms and they don't get the fun annual checkups we gals get!!
Posted 12/6/2016 10:15 PM (GMT 0)
I agree, unless you were told it to DNA high risk strain you should be ok. My younger sister has had it for years and hasn't had any issues. Just has to get pap's every year.
Posted 12/7/2016 1:26 PM (GMT 0)
Abnormal pap smears AND hpv positive though? Can the virus heal?
Posted 12/7/2016 1:56 PM (GMT 0)
Abnormal pap abd HPV frequently happen together bc HPV can cause abnormal cells. HPV can go away. HPV is really a non issue unless it is a high risk strain.
Posted 12/7/2016 3:01 PM (GMT 0)
Breaks my heart to hear you say you have no purpose in life. I struggle with that too.
I'm sorry you have to deal with this. Sounds like your doctor really let you down. Perhaps go back with a list of questions.
Posted 12/7/2016 5:38 PM (GMT 0)
My gyn is actually awesome but I guess she didn't have answers.

Reason why I say that is because I'm constantly sick. I can't do my own house hold, rely on others etc it's frustrating.
Posted 12/8/2016 11:10 PM (GMT 0)
I received a voicemail today and she said that the results were normal. Does it mean I can finally breath?
Posted 12/10/2016 12:17 AM (GMT 0)
i'm sure it's ok, otherwise she would never use the word 'normal', so u can definitely celebrate it :) You say you are constantly sick, there's a proverb in Polish which says that people who struggle with poor health all their lives usually live up to one hundred while those who are very strong and healthy often collapse all of a sudden. Sounds like a wishful thinking, but this has a medical proof in case of sepsa which kills mostly very healthy and strong people. I read this theory in a medical paper many years ago when there was a horrible outbreak of sepsa in Poland, my parents didn't let me go to school during this time. At one school, many children got infected and those who died were only the healthiest sportive types. Interestingly, one girl who had the highest exposure to the virus didn't catch it, and she had some auto immune disease and very weak immune system
Posted 12/10/2016 1:41 AM (GMT 0)
I have had HPV and abnormal PAP's. Shortly after I had my son I had some abnormal PAP's as well and I just went every 6 months for a while and eventually I tested negative and didn't have to have the tests done so frequently anymore. So sorry you had to worry about it - if it makes you feel any better I got a call from my Dr. about recent blood tests and they told me that my bad cholesterol was slightly elevated and my blood platelet count was slightly elevated as well. Have been worried about it all day long.....I hate that they called me on Friday. I will worry until I go to the Dr. on Monday.
Posted 12/12/2016 5:28 PM (GMT 0)
I'm not happy when someone has to worry about something but in a sense as "you're not alone" I guess it's some comfort. Hope you got more clarification today.

Ewa I'm from Germany so when did that outbreak happen? Because I was probably still in the country but I don't know if we got it. I lived in the west part though. I never heard about that proverb. Interesting. I'm just frustrated sometimes because I want to do so many things and some days all I do is sleep. Just now I went shopping and I started to feel faint again and it destroys my mood completely.

I didn't know you can test positive and later negative again. That's definitely comforting. Thank you all.
Posted 12/12/2016 11:52 PM (GMT 0)
Hi Andrina. I got diagnosed with HPV during a colonoscopy in the spring of 2015. They found anal warts inside my rectum (a possiboe symptom of HOV is warts). I had no visible symptoms and would have had no idea I had it if I hadnt been getting a routine scope for my UC. In my case, I had to have a rectal surgeon perform urgery to remove all of the warts to reduce my risk for cancer. I also have to have check-ups once or twice yearly for the rest of my life by the anal surgeon to make sure they have not come back. So far, so good...the warts have stayed away. I would ask your doctor about cancer risks and if she or he does not answer all your questions, I urge you to find one who will. I love my anal surgeon and trust her with my life. She also instructed me to get the HPV vaccine even though I am above the age that insurance covers it, because there are many strains of HPV and it will protect me from getting many of the other types that are likely to potentially cause cancer.

HPV is incredibly common. In most healthy people, there are no symptoms and they can fight it off after a year or two.
Posted 12/13/2016 12:21 AM (GMT 0)
i think it didn't spread to Germany, as far as i remember this epidemics was when i was 15, so twelve yrs ago. It hit military camps, schools and hospitals (where several doctors died and only one patient). I think your feeling weak and faint may be also due to a prolonged stress, so you should stop worrying (i read that hpv is easily cured) and have some real relax :)
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