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Accident at work, Time to call doc back?

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Ulcerative Colitis
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Posted 1/24/2017 2:40 PM (GMT 0)
I had a good morning and was all positive...I literally drop my stuff down at the office and head to the bathroom. I didn't even make it to the stall. It got on my underwear but none on my pants, thanks God. So I cleaned up the best I could without a faucet there or my wipes. I ran to CVS and bought women's depends, some more wipes and a box of zip locks so I could throw my underwear in them once I got cleaned up more.

I zoomed back to work (lucky I work on a college campus and the store was close by and I didn't have any appts until later in the morning), and now I'm wearing them. Yup. I'm 36 and wearing adult diapers. Not as as umconfortable as I thought and the reassurance that even if I have a small accident, it won't be the end of the world.

So, two weeks into 40 mg pred and I'm having full blown accidents. Scope scheduled for next Thurs. Think I should call the doc and let him know?

I'm still doing corto enemas at night and cortofoam in am. I started the 30 mg pred this am and am supposed to taper for another 2 weeks.
Posted 1/24/2017 3:28 PM (GMT 0)
Sure, I'd call and leave a message with your doctor. Not a good sign with an accident, as it usually means severe rectal inflammation. I'd expect next Thursday's scope to show that...

At least you're prepared now.
Posted 1/24/2017 4:11 PM (GMT 0)
Have you had stool samples done?

By you saying you had a good morning before the accident, what did that mean?

Hope the rest of the day fares better for you.

q
Posted 1/24/2017 4:15 PM (GMT 0)
Oh I just meant that I had a positive attitude and was all like- I'm going to have a good day, eat right (less candy and cookies than the day before) and had a good frame of mind. I had already gone twice before I left the house which is pretty normal for me.

Haven't had a stool sample done in ages. It's never really been about the D (like when I had c diff) but the blood and needing to go NOW, and sitting thet and for ever to empty out.

I feel like if I call my doc he's just going to say wait it out until next week.
Posted 1/24/2017 4:21 PM (GMT 0)
Got it. I agree to wait till you see him.

Have you tried other probiotics?

How long on the steroid enemas?

q
Posted 1/24/2017 4:58 PM (GMT 0)
Using steroid enemas for since Thanskgiving.
Been taking two diff probiotics. Floristor in the am and recently added NOW Probiotics.
Posted 1/24/2017 5:16 PM (GMT 0)
I almost had another one! Just made it in time! Idk why today is so bad. I am hesitant to eat anything now :/
Posted 1/24/2017 5:26 PM (GMT 0)
Was it watery stool with blood?
Posted 1/24/2017 5:31 PM (GMT 0)
Could be stress????,you have fatty foods[they can go thru me quickly on occasion]??.
Posted 1/24/2017 5:41 PM (GMT 0)
Watery and very loose in the am. Then later in the evening time, the blood kicks in so it's just going with bloody residue stuff. In the evening is when the urgency (in the past month or two) has been the worst and I need to be right by the bathroom. And even then, I'm just sitting there basically feeling like I have dry heaves but out of my anus. It's painful and my butt is always sore. I have to use the hemmroids wipes and ointment bc by the nighttime it's raw. It used to hurt to sit and it still does a little (by the end of the day) so I'm usually just chilling on the couch trying to lay low.

In terms of diet, Today I've hada protein shake, plain veggie soup for lunch, and plan on having apple cause as a snack for this afternoon and maybe pb crackers.

Yesterday I had oj and a breakfast bar (breakfast), homemade Mac and cheese for lunch, popcorn for a snack, cereal for dinner. And some peppermint patties and a 2 cookies for snack after dinner. No fried food, staying away from meat. I usually try to do cooked veggies with dinner but have been staying away from most veggies even if they are cooked.

I don't have much else going on in terms of stress in my life. My BF is really supportive. I've literally tried to think of everything it could be.

Last scope showed only severe proctitis and the pred wasn't helping then either. Was usun mesamlinr and corto enemas and after 4 months and Uceris it finally cleared. I'm literally at wits end. Idk what to do
Posted 1/24/2017 5:54 PM (GMT 0)
I'd get a stool test as the onset of this (the accidents) seems pretty quick, and not responding to steroids is also suspicious of c diff.

Having ulcerative proctitis doesn't mean you get an easy pass on the whole UC thing. As the rectum always has the most severe and stubborn inflammation, you might therefore need immunomodulators (Imuran or 6mp) or biologics (remicade or humira) to control your symptoms.
Posted 1/24/2017 9:43 PM (GMT 0)
If it's watery then it's not a great sign. It means that your colon isn't carrying out its function due to the fact that it's inflamed or riddled with ulcers . Now I would say that you might have to use Anti TNF and/ or chemotherapy ( 6mp) if you do not improve but then having said that it all depends on how far the disease is. Good your getting a colonoscopy, also try and get your doc to take your c reactive protein (CRP) this is your inflammatory markers. Watch out for dehydration and under no circumstances take stool thickening agents unless advised by your doctor. Watch out for blood thinners such as aspirin or Neurofen and avoid opioids at all costs=> blood thinners make it easier for you to bleed and opioids slow down everything which isn't recommend unless your doctor says so. Hope this helps you.
Posted 1/25/2017 1:06 AM (GMT 0)
Gosh, that stinks, literally. I think if I were you, I would keep up with the back-up plan, ie. the depends, until you have your scope. That's only a week away. Hopefully one more week of prednisone gets you in better shape too. Can you take it easy with work for a while to give yourself some time to relax and heal? Definitely get stool tests. Even if you don't suspect something, you never know, you may need an antibiotic, especially since you're not having a steadfast response to prednisone. Accidents in your 30s are a bummer. It's like, you just accepted that you're over 30 and now this...
Posted 1/25/2017 1:26 AM (GMT 0)
Doggiedo, when I read what you ate, it was all sugar, from mac and cheese, cereal, to cookies, you may have a lot of yeast in your gut and colon, sugar is the worst for it!! with pred I don't think you should have these accidents. Pred though and antibiotics can really do a number on yeast overgrowth. Maybe read up on that. Can't hurt to really eat clean for a few days, no dairy, gluten or sugar (no pasta) and see if it helps. Just eat baked chicken, fish, veggies, if it's boring and taste dull, it's probably good for you smile no juices of any kind, they are sugar. No pop. No milk. Just water and herbal tea.
Posted 1/26/2017 12:36 AM (GMT 0)
You mentioned you recently added a new probiotic. Maybe that's contributing to it? Different probiotics affect people differently. Unfortunately you have to experiment. Hopefully you can get some relief soon.
Posted 1/26/2017 11:40 PM (GMT 0)
Yea those are oh thought. I tried to keep it easy today with the starches but it's hard bc the veggies give me gas pains. It's like I just don't know what to eat. Some say stay away from fiber, others say just cooked veggies.

I did eliminate the newer probiotic, so just sticking with floristor right now. I stayed home from work today- I'm just physically exhausted. I've been to the bathroom 8x today which isn't really that bad although it hurts to sit, my rectum is that sore. I was able to lay most of he day and get the cortofoam in for a few hours. Not sure how that much helped.

Really just holding out until the scope next week /:
Posted 1/27/2017 5:03 AM (GMT 0)
Knowing what to eat is the hardest for me too. It's so frustrating how inconsistent it is -- both from person to person, and day to day with me!

I am flaring right now as well. For about 4 days I couldn't eat a single thing - lost 7 lbs, and actually felt quite a lot better when I started eating again (chicken and rice). Now I've been eating for about a week and it's starting to get pretty bleak again...

For me, the things that I am avoiding big time during this flare (from experience) are really fatty foods (fatty meats, ramen, etc) and spicy foods (and I LOVE spicy foods!! - that I miss the most) I also avoid fizzy drinks and Gatorade (not sure why-gatorade always makes me sick almost immediately)

Multiple GIs and my PCP have also said that your body will build up an intolerance to anything you eat A LOT of. For me, that was gluten/refined carbs. I cut out pasta, pastries, & pizza this month and I think I will be able to slowly add them back in next month.

Safe-ish foods for me (nothing is 100% safe!) are applesauce, miso soup, cooked vegetables, pureed veggie soups, chicken (even chicken teriyaki is good for me), rice (even fried rice), and mashed potatoes.

One thing that strikes me about your case is that you will be having a scope when you're severely flaring. My doc advises against that...would rather get the flare under control a bit, then take a look. That may not be possible for you, but that is the one reason I would say leave a msg for your doc, so they will know you are going to be very inflamed.

Best of luck. I have had accidents at work too - there is nothing worse.
Posted 1/27/2017 11:31 AM (GMT 0)
I would definitely get checked for C Diff again. If you did have it mildly the steroids can make it much worse. Hope you have a better day today.
Posted 1/27/2017 5:01 PM (GMT 0)
I called my doc and asked them to call in a stool sample request. I'm suppose to travel out of state after work tonight until tomorrow afternoon for a class (getting PhD on the weekend- like that's just a greet thing to add into the mix). I'm going no mater what, but it will impact me doing the stool test and getting it back to the doc before the weekend.

Why oh why did I wait until today to ask for a test? At this rate it won't be back until next weeek, Monday if the earliest!
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