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UC sucks because.....

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Ulcerative Colitis
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Posted 2/22/2017 5:04 AM (GMT 0)
Felt like having a venting session after a setback today:

UC sucks because:

1) I'm exhausted all the time but have to work full-time to sustain all my medical treatments

2) I Love exercise, but cannot do anything strenuous anymore. Body has become weaker.

3) I've developed other health issues secondary to it

4) Pain keeps me from getting good sleep

5) Can't travel much or eat out often
Posted 2/22/2017 10:05 AM (GMT 0)
1) steriods
2) causes Depression
3)damm urgency toilet where are you?
4) Fear of bowl removal
5) Whom and when to tell them about your disease
6) people telling me to sort it out...
7) costs? And time lost enjoying and living life
Posted 2/22/2017 10:22 AM (GMT 0)
Because I'm made to feel like my illness and bodily functions are "disgusting" or "gross" and so now I have internalised if and feel embarrassed, ashamed and disgusting.
Posted 2/22/2017 11:35 AM (GMT 0)
From a different perspective: Having an ileostomy sucks because:

I no longer have an excuse to spend time reading whilst on the loo.

(That's all I can think of).
Posted 2/22/2017 1:33 PM (GMT 0)
UC sucks because:
1. It takes down healthy people in the prime of their lives and makes them struggle to make a living, be good parents and/or productive members of society.
2. UC has so many different permutations that GI's have trouble sorting out what RX will work. So they try one, then another and so on. Trial and error.
3. It's not a "nice" disease and we don't get much understanding or sympathy from non-UC people."Can't you just hold it?"
4.It can be isolating due to 1, 2 and 3 when no one around you understands what it's like.
5. It's expensive to treat if lower level RX doesn't work and can force people into poverty if their insurance won't cover meds and if they can't work thus can't afford insurance.
Posted 2/22/2017 5:38 PM (GMT 0)
I can completely identify with everything you guys wrote. Thanks for sharing smile

The worst for me are family members who have never had UC and have never read about it offering meaningless advice. I've been told by family members to eat healthy and reduce stress as if it will magically disappear! Some people will tell me to try juicing or raw fruits/veggies.

Funny thing is that i've been on SCD 15 years or so and people tell me to try cutting out junk food!! So infuriating!
Posted 2/22/2017 6:55 PM (GMT 0)
Everything I eat/do revolves around thinking about how doing/eating whatever will make me feel later, even when the disease isn't active.
Posted 2/23/2017 1:57 AM (GMT 0)
Had to drive into Manhattan[New York] today about 1:00 and even though my UC is OK i still get anxiety knowing i will sit in traffic somewhere and might get the urge to go. Went to look at a job contractor friend wants help with which would mean leaving my house 5:00-5:30 in morning. I know i wouldn't have emptied out my system by then,the thought of getting the urge on the parkway early in morning gives me anxiety.
Posted 2/23/2017 2:21 AM (GMT 0)
Feeling like I can't make plans...knowing Obama Care repeal could mean I cannot afford health care anymore, and now I have a pre existing condition. My kids disappointment about things I haven't been able to do, and fatigue.

Shaz032, you made me laugh. Probably since that is the opposite of 20 minutes I need in the am these days.
Posted 2/23/2017 2:45 AM (GMT 0)
Because it is about to cave my life in
Posted 2/23/2017 10:23 AM (GMT 0)
Jane, I identify with eveything your wrote. Thanks for sharing.
Posted 2/23/2017 12:02 PM (GMT 0)
It keeps me from being the person I want to be.
Wondering when I'm going to poop my pants because someone is taking up time in the only bathroom available.
Always spending money on meds and procedures.
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