Posted 3/6/2017 12:28 AM (GMT 0)
After 5 years on Remicade, and achieving full remission, I decided to stop it (long story involving a severe lack of $$$). When I tried to go back on it I never was symptom free again, and also developed pneumonia. Due to this my Dr has switched me to Entyvio. She warned me that I "might get worse before I got better". Sure enough, I am now in a full blown flare: mucous, blood, urgency, severe pain.
She's put me on 40 mgs of Prednisone with a 5mg a week taper (I am now at 30mg), to bridge the gap. These are my only two meds.
Has anyone ever gone through this? Is it normal to feel so sick? I am so discouraged and regretting my decision.
Thanks for any advice