Sterlara updates (I changed the title)

Linda,

How are you feeling?

My stomach noises are quieter, which is a good thing and I'm able to sleep better.

I still have a little bit of discomfort emptying my pouch but it's getting better.

A side effect is that I'm able to breath through my nose a little easier. Similar to when I was on Prednisone and my sinuses were clearer. The down side is that I've gotten 2 nosebleeds since my infusion. I think that has to do with the cold/dry winter weather/air.

Linda,

Maybe you should be on a higher dose of Prednisone, at level were you don't bleed and then taper down fast to 20 mgs. Just to give your body a chance to heal before you start to taper.

I hope that you feel better soon.

Great KEith, I hope it continues to improve I have just been back and forth to potty,warm blood, bright, I think from my hemmroids and fissure sight. No improvement yet. Back on asacol HD, pred and now Stelara.

I have not had any sugary sweets at all since starting Stelara, I don't even crave it. This is NOT like me! I've been taking diflucan every few days. It helps. I've been putting "jock itch cream" same stuff as Monistate on my butt crack to take away the red and soreness (yeast) and dang it works! I was using zinc ozide, but that wasn't my issue, it was yeast. My energy is really good. I have biked the last three day for on hour at the gym about 14 miles. On 20mg of Pred. I sleep 10 hours a night. Today was a better day, but I took two asacol HD last night and two probiotics. Ton of gas and poop this morning, but it cleaned me out less blood today. I guess I need the asacolhd for now.

 

So far my MOOD is amazing, every since my infusion, I am happy! I think because it has helped with the pain I was having in my body. Poops are the same. No urgency really at all during day, just morning time. I'm a new person mentally, even my boss said something to me about it. I can't do whey protein and possibly eggs.
What i do have is constant dull pain when I swallow, the lymph node below my jaw, left side. I thought maybe my tonsil, but it's not. Almost like I'm getting a cold. It's been that way since infusion. It doesn't hurt to touch from outside , only when I swalllow. I know a side effect they said is sinus issues in about 10%of the people. I sound almost like I have a nasal cold, but I'd don't feel like I have a cold, if that makes sense. Seems like I'm always blowing my nose. I've been working out every day, no problems with energy.
No complaints so far, compared to entyvio and humira, Where I felt very very ILL!!!! I'm doing great. Two weeks as of today was my initial infusion.

Miracles,

I'm happy that you are feeling better, I had to go back on antibiotics for a few days but I am feeling good. My energy is back too, I'm sleeping less and feeling good.

The Stelara is working for me but it just needed a little help from the antibiotics.

For those considering Stelara , it has been great so far. It was instantaneous after the infusion my mood changed to happy and energy. I am not kidding. I think what happened was it took a lot of pain out of my body. I'm not bent over in my stomach area. I'm not feeling sick. I can't drop in pred yet, 20mg, I have to take omoperzole too. I work out every day. I have a new life since the infusion. Poops are the same. Mushy . Bloody sometimes. No urgency. Only one accident since starting. I would recommend it for those that failed humira, entyvio , 6mp, or remicade.

Week 3, still great energy and no pain so much throughout the body. Happiness is wonderful. Poops the same . I'm trying to get off prednisone, have been on it since beginning of January. This is the longest ever. It helps. I go down to 15mg I bleed. Go back up to 20mg. Yo yo ing . Should I ask for prednisone enemas?

It depends where you inflamation is located, if it is not in your rectum than the enemas will not touch the affected areas.

Have you tried Entocort or Uceris? It is dispersed in the intestines.

Prednisone can also cause SIBO. You may want to try a low/no carb diet for a while; bacteria's food is carbs so starving it from its food source could help with the SIBO.

I'm glad that you're able to taper the pred and you're feeling better.

Congratulations on the wedding.

I'm feeling a lot better myself, I've had this slight cough for awhile now and craving sweets. I was at the PCP over the weekend and asked for a Fluconazole script, I think that I had a lingering yeast/Thrush infection from the antibiotics and Stelara wasn't allowing my immune system to fix it. I feel so much better after 3 days, my pouch is emptying easily, no diarrhea and more energy.

The shots are really easy and do not hurt.

Hi Keith, I'm down to 5mg of pred, no accidents . If I stay away from bread of all types, I'm golden. My poops are mushy , never really thick, rounded big. I feel super! I have been of asacol now two weeks. I take my shot on May 9th, so I'm 5 weeks in. I hope to be off pred in a week. Are you still taking yeast pill? I do, every 5 days or so.

I will post after I've been off pred a week or so thAt is the true test.

I hardly bleed at all now. If I have bread, thT make my butthole feel inflamed like I have rock sitting there and I go blood and skin like stuff back and forth for a while and cramp out.

So basically I'm eating meat and veggies.

Sound s like we r both doing better