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Isatis Cooling Help and Advice for my UC

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Ulcerative Colitis
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Posted 4/5/2017 2:31 PM (GMT 0)
I started taking Isatis cooling about 2 1/2 weeks ago. Immediately, it seemed to help with the bleeding that I was having. Everything seemed fine for about two weeks and then last week I had a couple of days with really bad diarrhea and a lot of blood one of those days. I backed off the Isatis cooling and did not take it for a couple of days and then have been gradually reintroducing it much less. Originally I was taking three pills three times a day which is what is recommended. Right now I am just trying to do two pills two times a day. Did anyone else have experience like this or know what is going on? I'm wondering if my body was detoxing but I've also been having stomach pain ever since, although it is getting a little better each day. On the positive side, I am not having ANY bleeding now and I have had bleeding regularly for over two years. I am going to the bathroom only like twice in the mornings so I feel like things are improving but just not sure about the episode last week and wondering if the dosage was too much for my body?
Posted 4/5/2017 3:26 PM (GMT 0)
Hi DanielleMel! I am a big Isatis Cooling girl - it got me into remission 2 years ago out of a really bad flare. Like you, I noticed the biggest help with bleeding immediately. Back then, my acupuncturist had me on a big dose - 5 pills/3x a day until things were under control.

Healing from a flare is a long and arduous process and I always have a hard time knowing what is causing what symptoms. Maybe try stopping the Isatis for a few more days to see if the other symptoms clear a bit - if bleeding comes back, give it another try. Only going twice in the morning is awesome and it sounds like you are on the right track.

Full disclosure - I went on a girls trip 2 weekends ago and was REALLY ridiculous with my eating and drinking. Like I didn't have UC and was 25. Hahaha. I started having symptoms and was terrified I had started a flare - a few days of Isatis and everything piped down. I hope this turns out to be your game changer too. smile
Posted 4/6/2017 1:45 AM (GMT 0)
Wow, well that is encouraging. Also, good to know we are about the same age too. Did you have any stomach pain ever with the Isatis Cooling? Also, grape seed extract you take? When reading your profile I related so much to a lot of what you have done. I have tried every diet in the book, even the GAPS diet but none really helped my UC. I even had food testing done, and wasn't even sensitive to any foods. I am going to lay off the Isatis for a bit then. So do you only take it when you feel a flare coming on or do you take it regularly?
Posted 4/6/2017 11:20 AM (GMT 0)
Hey there! Sometimes when coming out of a flare I did have stomach pain; but in taking things in and out to try to troubleshoot, it seemed to be related to taking colostrum. It eventually went away for me but I didn't think it was related to the Isatis Cooling. I take Olympic Labs grapeseed extract - I buy it from Amazon. I got the idea from someone here - I did the uBiome testing, and came back with really unbalanced bacteria. My proportion of firmicutes to bacteriodes was really off - the GSE seems to help the consistency as even out of flares I tend to go towards D. Might be IBS, might be coffee, might be my nature. smile

I did food testing too and was sure I would come back allergic to everything - the only things that came up were pineapple and beta glucan. Go figure! However, those just test for actually allergic reactions - so if there is a fermentation issue like some people (like me!) have with FODMAPS, that would not show up on a test.

I generally just take Isatis if I feel symptoms creeping in at this point - it had been awhile so I was terrified when this last little scare happened. I'm really relieved that it got things back in line for me.

This is a great place to get ideas for treatment - it's where I heard about Isatis and everything else I have tried! smile My email is in my profile and you are welcome to email me directly. I hope you continue to get better!
Posted 4/6/2017 2:46 PM (GMT 0)
Thanks so much. This is super helpful! I have not heard of the uBiome testing. I am going to google it. I am positive something is off in my body and if I could find the missing link, I could at least control the UC well. My dr wants o put me on 6MP and I am very uncomfortable with that idea and against her strong advice I am waiting while I research and try alternative things. So did you stay on your maintenance meds? I am super healthy otherwise and have no other problems at all so I feel like if I go on 6MP (which is a chemotherapy drug actually) I think It will harm my healthy parts even if it controls the symptoms of my UC. And thanks again for taking the time to respond and help me!
Posted 4/6/2017 8:29 PM (GMT 0)
uBiome is a really cool company - I was able to get my testing done for free as they were doing a study on IBD. I have mine checked about 1-2x a year just because it's interesting to see how things shift. I feel like my gut bacteria was thrown way off due to stress in my life, as well as going super low carb - and that is what triggered my first flare.

I did stay on my maintenance meds, as they are just mesalamines and so there is little risk to continuing. I did go down to 1/4 of the standard Apriso dose - partly because when symptoms pop up they are more rectal in nature, and partly to space out the cost. I usually only use Canasa 1-2 times a month, or if I am feeling symptoms creep in.

During my last flare (2 years ago this summer) Pred stopped working for me, and my doctor made an appointment for me to come in and start the Remicade process. I had bought a bottle of Isatis but hadn't taken it - I was trying so many things I couldn't keep track. But it literally changed everything for me and I'm really thankful. I understand where you are coming from - if I HAVE to take the meds and there is no other choice, I'll do it - but it's good to have options.

GOOD LUCK! I hope you will keep coming around and let us know how you do. smile
Posted 4/7/2017 1:21 AM (GMT 0)
Are you taking Isatis Cooling from this company : Health Concerns ?

I just want to make shure I order something reliable!

Thanks for sharing, heard only good about this supplement, I may do the move myself!
Posted 4/7/2017 1:25 AM (GMT 0)
Climbsnowgirl- yes, that's the one! I usually get it from Amazon. I hope it helps you too...keep us updated!
Posted 4/7/2017 1:40 AM (GMT 0)
Arghhh this is so frustrating, no one is shipping to Canada... sad

May have to go see a Chinese herbalist and order with them. This is not going to be easy ahahah

Thank you for the quick answer and so glad it works for you!!!
Posted 6/5/2017 1:38 AM (GMT 0)
So what does this isatis cooling do? Cant really find a good write up for it. Thanks
Posted 8/1/2017 5:49 PM (GMT 0)
How are you doing on it?
Posted 8/1/2017 8:32 PM (GMT 0)
Danielle, how are you now? My daughter seems to have similar problem.
Posted 8/1/2017 9:19 PM (GMT 0)
I'm on Stelara and I have no idea what might interact with this medication, since it's constantly in my system I'm weary.
Posted 8/1/2017 9:22 PM (GMT 0)

Brad8769 said...
So what does this isatis cooling do? Cant really find a good write up for it. Thanks

Qing Dai is the active ingredient, here's what we know about it (so far):
/www.karger.com/Article/FullText/444217

Post Edited (eekseel) : 8/1/2017 3:30:10 PM (GMT-6)

Posted 8/1/2017 9:54 PM (GMT 0)
Therearemiracles, I would try taking a very small dose first and then add more. I felt safe giving it to my daughter since our medical doctor recommended it.
Posted 8/8/2017 11:34 AM (GMT 0)
Had just one pill yesterday, terrible headache later on. Lots of blood again today. I just took two this morning. I'm going to give this a few days , if headache persist ,I will stop. Two is am and two in pm will be my next few days. My next step is steroids until is see my doctor in October.
Posted 8/10/2017 3:03 PM (GMT 0)
therearmiracles,

How are you doing with Isatis Cooling? I just finish 10 days of Isatis 3x 3pills/day and got really impressed. Like, what are those herbs? Almost frustated that this medecine is not prescribed at the first stage of the disease.

The second day I had formed stool again, that only happen with 15 mg of pred or more for me... Unfortunately, I got some lactose few days ago, but now I'm back on my feet and stool are formed again!!!

We'll see how it goes without it. I also have my first Stelara injection after 4 wks tomorrow. Hope Stelara will keep me good. Else if, I'll do another round of Isatis.
Posted 8/10/2017 3:40 PM (GMT 0)
Hi! I'm getting better. It seems like I have beginners luck at every supplement, so I'm praying this one sticks!! It is really amazing how it takes the inflammation out of the whole body. My stools are mushy, but much better than a few days ago. Blood is less. Today it will be 3 pills , 3 times a day. I'm staying on it for two weeks at least. I'm doing canasa every two days. I've Been reading from his book (Dr. who made the herbs) and he said give it 30 days . I would be happy with any relief.
My Stelara shot is on 9-4. This isatis cooling has been better for me than Stelaras last two shots. I felt they did nothing. I would give up Stelara for IC in a minute if I continue to improve. I went golfing yesterday and didn't have down Imodium beforehand! I didn't even worry about a bathroom and I felt like my poop shute was tight, no urgency feeling. Now come on somebody! What?? Woot woot!
Posted 8/10/2017 3:56 PM (GMT 0)
therearmiracles,

So excited to read your post! Seems we both did the good thing to give it a try. So happy that it does give you some relief! And it super weird that we feel the same about it. I did fail most of medecine and this thing work. Like what the...!!

Thanks for the information, I'll order now to do a 30 days soon! Do you have a link for this information?
I still want to see what Stelara can do for me. But I also feel the same as you, my last shot (which was the 3rd one) didn't do much. It's like if the loading dose was too long ago... For shure, the dose and concentration in the body is still a subject of research. When they'll fix it, Stelara should be more effective for more people.
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